Multiple Sclerosis - has anyone started on tysabri? What is your opinion?

12 Aug 2010

You may find this link helpful.
http://www.drugs.com/comments/natalizumab/tysabri.html

13 Aug 2010

I was scared of the side effects also. So, I decided to go from Avonex to Copaxone instead. In my opinion, unless I was have severe mobility issues, the fact that 1 in 1000 get a brain infection, which can lead to death or severe disability, wasn't worth the risk. I have a 8 year old so I wasn't going to risk it. Everyone is different. But you have to decide what's most important to you. Because everyone with MS is different our individual reaction to any therapy comes with the same difference. I hope that helped.

8 Sep 2010

I too am looking into starting Tyabri and yes I am a little scared. I have been on the shots and can not tolerate them. My Neuro is very posative with it and she isn't the type to jerk me around. She says the few patients she has on it are doing fairly well. Now I haven't been on any M.S. meds for over a yr and have been in remission. I'm kinda afraid if I do take something it will all kick back in plus there is that rare brain disease. But I'm also waitig for the the other shoe to drop due to not taking any meds. I've tried Rebif and Copaxone... I'm still r/r.Probably didn't help your question but the more I know the more I'll let you know~GOOD LUCK ! ~AMy in PA

30 Mar 2011

I am thinking of switching to Tysabri because I developed Nabs from the avonex and copaxone I have been on for 5 years. I had two back to back flare-ups and my neurologist said that I developed antibodies and need to start a new regimen. He also mentioned Gilenya, we are supposed to decide by next week. Anybody had severe back to back flare-ups? It effected my eyes, optic neuritis. Thanks

14 Apr 2011

Yes, I took tysabri for six monthes, after several years with beta-seron. It required going to a hospital, once a month, spending 3-4 hours hooked up to a saline drip solution with a tube and needle in my arm, while my vital signs were being monitored. I felt very minor relief, at best, and changed to a different drug treatment-copaxone, which I have been taking for six monthes, and am considering changing also.

7 Dec 2011

I took tysabri for 2 years. I liked it. After my 21st infusion, the nurses started having hard time threading my veins. They even wanted to put a port in me. I said "thats not cute!" I am only 35 years old. That's when I researched and found gilenya. I was finally approved for it so hopefully I will be observed for my first this friday. Wish me luck... $;-)

15 Jun 2012

I am moving on tysabri too(as i am a Rebif user) as my doctor recommended me. I don't really think about side effects because there are few, and i've been tested for that auto-immune condition that you can get from this as a side effect and i can't develop that disease, so I am really happy i am finally moving from 3 injections/week to 1perfusion/month. Hope you'll get better and wish you good luck ! :D