Chronic illness has me home bound for over eight years. Wishing to share with others what I have learned and find a friend or two. Polymyositis (muscle deterioration), interstitial lung disease... read more
Chronic illness has me home bound for over eight years. Wishing to share with others what I have learned and find a friend or two.
Polymyositis (muscle deterioration), interstitial lung disease (aka styrofoam lungs), thyroid removed (micro cell cancer), diabetes type II (prednisone related), on oxygen support, ischemic colitis, GI bleeds, anxiety from prednisone side effects, depression, PTSD thanks to parents from hell. If you wanna talk shingles just been through a nasty case.
Meds: high dose prednisone, tacrolimus(prograf), levoxyl, mepron (had PCP, deadly pneumonia), alprazolam, antidepressant, ranitidine, CoQ10 which is great for muscles and brain, and support vitamins, most recently added Xanax because of the side effects from the prednisone causing panic attacks.
Buddhist and a Tibetan dharma teacher. Broad science back ground and have never stopped learning. One gorgeous brilliant accomplished violin playing, science seeking (double major biology and performance violin) just turned programmer daughter with a great job and guy. One amazing husband who is slowly accepting my deterioration. Yet helpful in every other way. Just to name a few things going on. Brother who doesn't bother to send a Christmas card or call. Sister who says she will help but has reasons why she can't and finally understanding. And one great friend whom I have known since second grade and helps as often as she can.
That's me. Have had an interesting life so far. Just once in a while when too many things are wrong and I find myself in a hospital again, I do take a mental down fall then. My therapist is great. I pull out of the doldrums or I never would have made it to 63 and counting. Homebound for a long time now.read less
Answers/Comments written by endlessPred
Question asked 1 day 3 hours ago • 1 answer
Support groups: diabetic
endlessPred's answer: “Insulin can and should be stored in the refrigerator door. Even the pen type should have spare pens kept in the refrigerator. When that hot all my insulin stays in the refrigerator. You can also use a small cooler when traveling in high heat, but ...”
Question asked 2 days 22 hours ago • 3 answers
endlessPred's response: “I lived with two alcoholic parents. They fought, punched and spent every penny on booze rather than shoes for us kids. I saved my mother from suicide many times. The earliest i recall was when I was 7 and took a butcher knife out of her hand as she ...”
Question asked 2 days 3 hours ago • 4 answers
endlessPred's answer: “Cirrhosis of the liver basically means the liver is starting to die. It no longer worlds right. The liver tries to Regrowing new tissue. The liver gets larger and larger and more no more dies. Since your tests were getting back to normal the liver ...”
Question asked 3 days ago • 2 answers
endlessPred's answer: “Cymbalta has nothing to do with gabapentin. The first medication is for depression and and the other for nerve pain. Please contact your physician to better understand why you are taking these. You can find more about these by looking them up above ...”
Question asked 3 days ago • 3 answers
endlessPred's answer: “Check with your local humane society who may have suggestions for you as well. They generally know the local possibilities.”
Question asked 19 Jul 2014 • 2 answers
Support groups: constipation
endlessPred's answer: “Magnesium can be wrong if you are on other medications. Before you take these talk with a doctor. And drink plenty of water. Eat balanced meals with fruits and vegetables at all meals.”
Question asked 4 days ago • 3 answers
Support groups: diagnosis
endlessPred's answer: “Bed rest. Hugs. Laughter. Reassure her that you are there for her. Take her to appointments. Be sure the father is involved as much as possible, if he is around. Make her special meals from childhood. I spent 6 weeks on bedrest. It was very scary ...”
Question asked 3 days ago • 1 answer
endlessPred's answer: “The use of alcohol with prednisone usage has multiple reasons to avoid it. Depending upon what is the dose or nature of inflammation treated, prednisone by itself has numerous problems through out the body and mind that may cause damage or even ...”
Question asked 4 days ago • 3 answers
endlessPred's answer: “This is a controlled substance for a reason. It is addictive. To stop taking it at your dose can seriously harm you and affect your heart and body. Tell the doctor and ask to be taken off. It will take real time of weeks and probably months. Be ...”
Question asked 10 days ago • 2 answers
Support groups: calcium
endlessPred's comment: “Very good. Anxiety can get the best of us. Wishing you well, Karen”
Question asked 6 days ago • 5 answers
endlessPred's response: “Thor. You have quite a few battles going on. You need to balance protein with carbohydrates, the white flour and muffins, and so forth. There is help out there. I don't know where you live, but any church can help find food for you. Clothes are ...”