Chronic illness has me home bound for over eight years. Wishing to share with others what I have learned and find a friend or two. Polymyositis (muscle deterioration), interstitial lung disease... read more
Chronic illness has me home bound for over eight years. Wishing to share with others what I have learned and find a friend or two.
Polymyositis (muscle deterioration), interstitial lung disease (aka styrofoam lungs), thyroid removed (micro cell cancer), diabetes type II (prednisone related), on oxygen support, ischemic colitis, GI bleeds, anxiety from prednisone side effects, depression, PTSD thanks to parents from hell. If you wanna talk shingles just been through a nasty case.
Meds: high dose prednisone, tacrolimus(prograf), levoxyl, mepron (had PCP, deadly pneumonia), alprazolam, antidepressant, ranitidine, CoQ10 which is great for muscles and brain, and support vitamins, most recently added Xanax because of the side effects from the prednisone causing panic attacks.
Buddhist and a Tibetan dharma teacher. Broad science back ground and have never stopped learning. One gorgeous brilliant accomplished violin playing, science seeking (double major biology and performance violin) just turned programmer daughter with a great job and guy. One amazing husband who is slowly accepting my deterioration. Yet helpful in every other way. Just to name a few things going on. Brother who doesn't bother to send a Christmas card or call. Sister who says she will help but has reasons why she can't and finally understanding. And one great friend whom I have known since second grade and helps as often as she can.
That's me. Have had an interesting life so far. Just once in a while when too many things are wrong and I find myself in a hospital again, I do take a mental down fall then. My therapist is great. I pull out of the doldrums or I never would have made it to 63 and counting. Homebound for a long time now.read less
Answers/Comments written by endlessPred
Question asked 12 Jan 2014 • 2 answers
endlessPred's response: “Ran into this old question. I have the same problem being on oxygen. I have a nasal spray and take Mucinex per my Pulmonologist . Any time one coughs up stuff you are heading toward pneumonia. I now have a home nurse as my ILD has gotten worse. So ...”
Question asked 13 Jan 2014 • 2 answers
endlessPred's answer: “Hi. Ran into this while looking at old questions. Have you talked with your doctor? The doc ought to have told you all the side effects. This would be very normal response you had.Did you read the insert with the medication? Be sure you always do ...”
What are the dangers or problems when stopping the synthroid? I took levoxyl for 10 yrs then the in?
Question asked 16 days ago • 2 answers
endlessPred's comment: “Ask your doctor, pharmacist, or read your medical insert or place in the medical search bar above. You need it, plain and simple. Not taking it should have you quite sleepless right now. You may even be hallucinating thinking you are well. Be smart ...”
Question asked 12 days ago • 2 answers
endlessPred's answer: “Slowly over time. Your doctor will tell you how to do it. Completely depends upon how long you have taken it and what dose has been taken. It is an individual process. Never, ever stop cold turkey. You may experience severe reactions depending upon ...”
Question asked 12 days ago • 4 answers
endlessPred's response: “Not your age but am 64. You can still do something about that beaten down feeling. Anxiety is interesting. First comes fear. Fear of failure, fear of what others think, whatever frightens. Then comes anxiety which is fear about what might happen. ...”
Question asked 13 days ago • 1 answer
endlessPred's answer: “In the US there are generic and brand versions of this medication. I prefer the Prograf although I got used to the generic. A lot depends upon amount taken and how your body is reacting. Your pharmacy will tell you who your manufacturer is. Once it ...”
Question asked 13 days ago • 4 answers
endlessPred's answer: “I agree with the others. How old is he? This problem is over diagnosed and sometimes it is a parents desire for a reason a kid is not paying Attention or too active. He needs a specialist, child psychologist, and time with a child therapist to sort ...”
Question asked 13 days ago • 2 answers
endlessPred's comment: “Skipping a pill will not matter. Thyroid meds adjust very slowly. One gone is nothing to worry about.”
Question asked 13 days ago • 2 answers
endlessPred's comment: “I have a weekly with four time periods per day. Very helpful when I have to take an antibiotic multiple times per day. Which is easy to loose track.”
I have been diagnosed with RA and perifrial neuropathy. Could my joints been due to just the neurop?
Question asked 13 days ago • 3 answers
endlessPred's response: “RA and other diseases are very possible. They can be complicated. When in doubt you should request a second opinion. This may help by changing a medication or confirm both diagnosis. The possibility of pain relief and slowing the RA seem most ...”
Question asked 15 days ago • 4 answers
endlessPred's answer: “Grapefruit juice affects a lot of medications. It has a chemical in it that competes with those drugs making it less effective. Be sure to read the printout that come with your prescriptions. A lot is in there to help you. For more info enter ...”