Chronic illness has me home bound for over eight years. Wishing to share with others what I have learned and find a friend or two. Polymyositis (muscle deterioration), interstitial lung disease... read more
Chronic illness has me home bound for over eight years. Wishing to share with others what I have learned and find a friend or two.
Polymyositis (muscle deterioration), interstitial lung disease (aka styrofoam lungs), thyroid removed (micro cell cancer), diabetes type II (prednisone related), on oxygen support, ischemic colitis, GI bleeds, anxiety from prednisone side effects, depression, PTSD thanks to parents from hell. If you wanna talk shingles just been through a nasty case.
Meds: high dose prednisone, tacrolimus(prograf), levoxyl, mepron (had PCP, deadly pneumonia), alprazolam, antidepressant, ranitidine, CoQ10 which is great for muscles and brain, and support vitamins, most recently added Xanax because of the side effects from the prednisone causing panic attacks.
Buddhist and a Tibetan dharma teacher. Broad science back ground and have never stopped learning. One gorgeous brilliant accomplished violin playing, science seeking (double major biology and performance violin) just turned programmer daughter with a great job and guy. One amazing husband who is slowly accepting my deterioration. Yet helpful in every other way. Just to name a few things going on. Brother who doesn't bother to send a Christmas card or call. Sister who says she will help but has reasons why she can't and finally understanding. And one great friend whom I have known since second grade and helps as often as she can.
That's me. Have had an interesting life so far. Just once in a while when too many things are wrong and I find myself in a hospital again, I do take a mental down fall then. My therapist is great. I pull out of the doldrums or I never would have made it to 63 and counting. Homebound for a long time now.read less
Answers/Comments written by endlessPred
Question asked 28 Jul 2014 • 2 answers
endlessPred's comment: “Dear Readhead. This is not the place to criticize. I asked for where I could read this information from you. Anyone who knows me knows I do plenty of reading. The conversation is a much longer string of information. If you allowed private ...”
Question asked 2 Oct 2014 • 2 answers
endlessPred's answer: “Your doctor will want to know what type of pain you are having. Also the condition of your liver and kidneys. It is dependent upon your condition and what else you take. Both organs are affected with me and so we use acetaminophen based pain ...”
Question asked 2 Oct 2014 • 2 answers
endlessPred's response: “Gabapentin was given to me for severe nerve pain from shingles. Although it helped some, I had a lot of side effects including arms flying out, twitches and such. And something I called brain zaps. Like an electric shock in my head. I was at full ...”
Question asked 2 Oct 2014 • 1 answer
endlessPred's answer: “I am on constant prednisone. I get a flu shot even though my immune system is suppressed. You cannot get the nasal spray or be near anyone who has received the nasal spray. That one has a live virus and will give you the flu. The shot is dead virus ...”
Question asked 1 Oct 2014 • 4 answers
endlessPred's answer: “It depends upon the dose, which you do nt mention. Death can be an outcome if not carefully controlled with proper doses.”
Question asked 1 Oct 2014 • 2 answers
endlessPred's answer: “The methyl pred is to reduce inflammation. It is not a pain killer. It would be used in case something is pressing against a nerve. Time to go back to the doctor for that followup appointment.”
Question asked 30 Sep 2014 • 2 answers
endlessPred's answer: “The answer is yes. The more you take the more anxious you can become. Let your doctor know. This may not be the right medication for you.”
Question asked 30 Sep 2014 • 3 answers
endlessPred's response: “You have lost a lot of blood. The ER will help you replace fluids. Without it you may not survive.”
Question asked 29 Sep 2014 • 4 answers
endlessPred's answer: “Generally the prednisone is first because it works quickly and last long. Methotrexate can be contraindicated if there are any lung or organ problems. Prednisone is then preferred. If condition is under control and the flare is subsiding, generally ...”