Still unsure what my true condition\illness is. Started with chronic sinus infections (I had surgery for this but it may have caused another issue ENS, still have sinus infections but deeper)/ headach's every day/scalp tender to touch and "indented" on top (seriously) /memory issues(forgetful)/ disorented/ confusion/ low tolorance for any stress/ Extreme fatigue/mental exaustion/ weeping at inapproiate times/uncontrolled upsetting thoughts/ exaustion/ perfuse sweating (not age related)/ Hands numb when waking, lower back extreme pain waking in night/ not getting restful sleep/ legs to knees painful and stiff/ upper middle back pain and pressure between sholder blades/ cracking stiffness in neck and back somewhat releaved by anti-inflamitory meds. finally complete breakdown of physical mental strength, extreme fatigue, could not get out of bed even though I wasnted to, became dizzy to the point of passing out. At times this would come on without warning and I would pass out (sleep). No Depression meds helped, only anti anxity med took edge off. Any stress triggers eithor fatigue or if pushed to have to do mental work... think and concentrate..on something that I ABSOLUTLY HAVE TO DO (like fill out forms, or write even a simple letter) I go into a sortof manic stage where I can not sleep at all... cant shut my mind down, like everything that has bothered me, or trama in my life, all comes back at once. After a week or so it subsideds, and I am back to disorgnization, confustion, fatigue, crying, headachs, and preception of time. I no longer go out, I avoid friends and socializing (not at all my before self). even noise or types of distractions bother me now, I am easly agitated now. one of the most upsetting changes is, When I try to orgnaze things like keeping records or paperwork in order, I find later I have put these things in odd places with no order or reason, that is very scary to me. My doctor still believes this is Depression but now may be more bi-polar and had put me on medication for that, but side affect is i am more disorented. The onley thing that had a marked effect on me was when I became ill (could not catch my breath-shallow short breaths) and was treated with Prednisone, for the first time in almost 2 years I was almost normal, energy and thinking, and mood, I was motivated to get some things accomplished that I had let go for a long time. But I dont know why this had such an effect on me. Medication ended and back to same old. Why would Prednisone have this effect on depression?
May have chronic fatigue, but diognosed depression, only med that made positive affect-prednisone ?
- 17 Sep 2009 by sandigiffin1
- depression, rheumatoid arthritis, sinus node dysfunction, hemorrhoids, infections, gynecological conditions, hysterectomy, osteoarthritis, sinusitis, macular degeneration, back pain, sciatica, chronic fatigue syndrome (cfs), prednisone
17 Sep 2009
Some of this sounds like menopause and the brain fog and anxiety that go with it. I am not a doctor but had the brain fog and anxiety during peripause and menopause. Talk to your OB/Gyn and let him/her know and see if they can coordinate with the doc giving the antidepression meds and/or the doc who put you on prednisone. Prednisone does temporarily give you a burst of energy, but, it also may have treated one of the underlying conditions, that is why I suggested the doc coordination. Even if you had a hysterectomy, the body can still go through menopause. Hope you feel better soon.
22 Sep 2009
So sorry for u! I understand totally where u r coming from.Ive been dealing w/lots medical probs for last2years.All doctors drive me crazy bcuz they do not know what is wrong w/me either.I have been telling them for over a year that steroids helped me.I discovered it on accident too.They gave me some when i was sick w/bronchitis&my windpipe area was inflammed&disrupted my breathing.I felt so good after i got on those steroids!I forgot how it felt to feel&THINK like a normal human being w/o any pain!Dr finally put me on steroids again a couple of weeks ago.I can actually get out of bed¬ cry bcuz of pain!I can even stand&THINKto cook again for little while.Dr tells me that steroids have helped by decreasing the inflamation through out my body.They still do not know whats causing the inflamation,of course.But w/research ive done,i can confirm:Steroids DO help decrease inflamation in the body.The million$ question is:WHAT IS CAUSING THE INFLAMTION!Find that out&u r a winner!Hope this helps!Good Luck&GOD BLESS!
26 Sep 2009
You sound like me in a lot of ways. I still am in the process of trying to get help for the things I was diagnosed with so far. As far as the areas of pain and muscle stiffness you are having, I have problems in the same ways and I was diagnosed with Fibromyalgia. I also have Osteoarthritis in my hip on both sides and I too suffer from Depression. I still have the numbness in my hands and sometimes my feet or other areas but I also was diagnosed as a Type 2 Diabetic about 5 years ago and now I take insulin and oral medications for that. I strongly suggest that you don't give up and decide to live with the problems you have been having because in my case, there was something really wrong and it may be that you need to try going to another medical facility and even have some blood work done to see if that shows anything... which you may have already done.
A rheumotologist or neurologist would probably be a good choice in finding out why your joints and muscles are stiffening and painful. I too, just like you suffer from chronic fatigue and my gosh, I can't get to sleep either and get overly anxious when having to go to an appointment the next day or even when needing to fill out forms... I get so overworked about that mentally and it's like you describe, it's like you can't shut your mind down. So I do hope for you that you are able to get some help. I am still trying to get help for myself and it is especially hard because of my financial situation but don't give up. You must try to push yourself to call around and make appointments and go despite the fears and anxiety because you don't want to lose your will to live and enjoy life by feeling like you feel everyday. Perhaps somewhere along the way you will find the right medications and people to help you feel better. Be Blessed and thank you for sharing the information you did because I thought I was the only one and that the doctors didn't believe me but my symptoms are not in my head and neither are yours.
3 Oct 2009
I too am in complete disorientation these days. Diagnosed with RA and osteoarthritis, fibromyalgia depression and gyn problems. Started losing the ability to do the simplest thing. Know I can hardly fall asleep because of tingling sensantions. I too went back to almost normal when given prednisone. Doctors all give me differents meds and diagnosis
and I know Its not in my head. Side effects of meds have unfortunately gotten into my daily
routine of living as well as having to live with the pain of the disease. I hope you find some
solice that you are not alone and that frustration only makes our days that much harder for us but hopefully at some point the aggreviation and pain will let us get on with lives.
13 Apr 2010
I don't have much to say except I've helped two people who took Prednisone and all I have to say is speak to your Dr. re: bone deteriation with that drug! It is hideious. Your bones will get very brittle after usage. Depression will make pain feel much worse than it really is because you fixate on it, like a toothache. I take 80mg of Prozac and still have trouble shutting off my mind. I stay up late until I'm very tired and then sleep and my pain lasts forever. We all have to live with it. If we took the dosage that we truley need to kill all the pains we'd be zombies. Then we'd have NO life at all. I try and stay still and sit all day until I need to do someting then I put up with the pain and go do my thing! 1st deal with the depression and see where you stand with your true pain level. Don't try and do things you're not able to do anymore, life threw shit your (our) way and instead of stepping in it and getting stuck, just slide on it and go forward! Please be well. I hate to see someone like me, it's depressing enuf.
13 Apr 2010
damn sounds like you are having it rough..i have suffered with depression all my life and chronic pain ,and then opiate addiction for years ..i still function a little but only when i have too,otherwise i dont leave my house,even though im pretty miserable i still isolate..but anyway enough about me.i just wanted to tell you i will be praying for you and i hope things get better..just try to hang in there you will make it..
13 Apr 2010
I can't really say much about prednisone because even high doses did nothing for me(I have fibro,osteo arth,celiac disease and now possible ra),but your symptoms are EXACTLY what I have dealt with. On a whim my neurologist(treating me for severe migraines,dizziness,memory loss,numbnes in hands)checked my b12 level-was extremely low-sent me to a gi doc to see why found out i had celiac disease and my small intestine was not absorbing anything-I thought it was crazy that all my symptoms could be because of that-but I started with b12 injections weekly until my levels were normal now i get them monthly. I then had to start a gluten(wheat) free diet and as my intestine healed many of my symtoms subsided-my memory and concentaration returned to normal-it was like coming out of the fog. No more profuse sweating,shortness of breath,i was able to handle stress better so i slept better,no more dizziness.
I still have my other health issues to deal with but this one diagnosis I can better cope with everything else. So don't give up-it might be worth asking to have your b12 level checked. I hope you find some answers!
14 Apr 2010
Dear Sandigiffen: May god and Spirit give you thier blessing as you are going through Hell. You don't say exactly where your pain is, but it sounds to Me like PMR or Polymyalgia Rheumatica... aching & stiffness , worse on arising in the morning , effects shoulders & upper arms , neck , hips , & thighs. I also get horrible hand and wrist pain You definately need to see a rheumatologist. From your description of your head pains , and that dent, I fear that You may have something called "Giant cell arteritis"! This disease goes hand in hand with PMR. On the good side, you and Prednisone get along well and that is a blessing as prednisone is the drug of choice for both diseases. Don't let anyone touch your sinuses [I also am constantly sneezing, runny nose, cough.etc.] hell Girl you and I got the same symptoms, and social problems. My neighbors aren't to swift...
so when an enemy of mine spread the word that i've got the H1N1 Flu virus or aids, well at least they still wave ! But they ain't gonna' visit ! One more thing Sandy, please check out depression. Prednisone can and often does create heavy depression. If you need help , if I can help you in any way , I am for you and I am Sacosam
14 Jan 2011
not really sure this is just a thought if you have been to a good internal medicine doctor and you've tried all these other medications there must be something not right, or like me with Chronic pain you have not hit the right medication, I know I can understand just how you feel just like a totally different person, I want you to keep searching, you have it in you I have have some of the same worthless feelings and so much back pain that I didn't think I could live but I am writing to you now, I think it's so hard to have to be able to think and process things without so much effort but maybe this will help out there somewhere is someone with the exact or a variation of just how you feel just to know that you are not alone means the world I want you to be safe and to continue to hang in there, sometimes you probably feel like you are taking baby steps just to thrive, Please keep trying
31 Mar 2011
You need to get a second opinion. I have chronic fatigue and fibermyalgia, and although you may or may not have those illnesses, you need to see an internist or specialist who treats those illnesses. Not all doctors are receptive to dealing with them. I was lucky enough to change to an internist who diagnosed the problem quickly and found a new drug they have now that helps greatly. I also have a tremendous support group in my family and friends which helps.
Some of my symptoms are exhaution, body aches so bad, unable to focus or think straight, nausea, dizziness, depression (not clinical-just caused by being so sick) The doctor put me on Savella and Provigil last May. I have been smiling ever since I got to the full dose. I can now focus, think straight, very happy, and feel pretty good most of the time.
Please see a doctor who deals in those two illnesses and get it marked on or off as a problem. If it is the problem, you could go off some of your other stuff, and the Savella and Provigil changed my life. Best of Luck
1 Apr 2011
your doc should put you back on it if it helped yo to get back to your old self!and i agree with others ,sounds like you have fibro!and meds work different on folks prednisone put me out of my head when i was in the hospital pulled pick line out and don't remember doing it ,nurse said i walked the halls all night!it was causing me to be sleep deprived !
1 Apr 2011
Prednisone can make you very hyper & very hugery, It's not something you want to take for long periods of time tho', as it does have bad side effects. It can cause osteoporosis. I can't believe your question was asked 2 years ago. Hope things have gotten better for you,
It sounds to me like you might have Fibromyalgia & Anxiety along with it. Are you on any medications yet, & how are you doing now? Sounds like you need a really good work up, medication, & mayber some counseling. Hope this gives you some help, & hope you are feeling better by now. Please let us know...
20 Apr 2011
So sorry to have a you feel like this... but I agree with Sacosam. The symptons are so PMR. You do need a Rheum Doctor! Predisone is a steroid, it would help a any person feel better depending how much they take, even a healthy person would feel better, and the only side effect seems to be the loss of sleep. So it seems... Steroids are silent, they will catch up to you. Get to the Rummie Doc. You need some serious trial and error meds to help wean off Predisone. But it is not going to be one script and you are better. It will most likely be a "cocktail" and certian meds at certian mgs will be individual for your symptons.
- Prednisone Information for Consumers
- Prednisone Information for Healthcare Professionals (includes dosage details)
- Side Effects of Prednisone (detailed)
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