... drugs)? The hypothesis is that surfactant (which keeps the alveoli in your lungs inflated) needs cholesterol, so if it is inhibited the alveoli collapse and you get fibrosis
7 Mar 2012
Haven't heard that before, but that doesn't mean anything at all. My cholesterol has always been a low number, not that I deserve it from what I eat - genetics. I was diagnosed 6 years ago and the disease was confirmed by open biopsy. I'm on 3L. of oxygen, take 10-15mg prednisone and it works for me. It started with a weird pneumonia and I haven't been too bad, really. When I get an URI, my doctors medicate me ASAP and I end up needing to take the antibiotic 2X longer than is recommended for normal people. But so far, so good. I can't tell if I'm deteriorating now or just out of shape and need some therapy, but I don't seem to have as much energy as I used to. I'm 62.
Last visit to the doctor included bloodwork to detect any signs of autoimmune disease. I'll keep you posted.
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... been told that the drug pirespa has shown positve signs. This drug, as I understand it has only been approved in Japan. I have a prescription ...
1 answer • 3 Oct 2010
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It's a study using the drug macitentan
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... called MedQuery?
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