I am certain that I had a severe reaction after my MRI using Magnavist in May of 2009. I am still having problems with muscles and nerves (particularly in the legs) but also with connective tissue. I tried to contact the Yale Medical research team to help me verify if I have it by forwarding to me docs in the NW familiar withe the symptoms and condition. My provoked 6 hr urine test confirmed that I had very high levels of Gadnolinium in my body, even 18 months after the MRI test. I am in constant pain and am now having trouble walking. I am 58 yrs old. Karen
Magnevist - Is there a chat group or support group for those with nephrogenic systemic fibrosis?
- Posted:
- 12 May 2011 by kbeagle
- Topics:
- magnevist, connective tissue disorders, muscle, nerves
Details:
Responses (2)
pledge
Mary63200925 Dec 2011
Welcome Karen, & I am so sorry about your reaction. I also had an allergic reaction to magnevist & it's now listed along with all my other allergies to meds on the card I carry. Be sure you do this in case you are ever in an accident & unconsious so you are never given it again. I just broke out in hives(as far as I know!)& have to be pre-medicated now for any dye type of x-ray or MRI. I wish you well... Mary632009
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Similar questions
What to take for pain when have it everyday from mixed connective tissue disese?
1 answer • 9 Jan 2011 • 
1 star
Connective Tissue Disorders - I have been diagnosed with connective tissue disease. I am not sure?
... what that is but I do know that I am getting worse. it started in my elbows and now it has gone into the rest of my joints and bones. I think ...
1 answer • 6 Jul 2011 •
Hello. I just joined this support group after reading some of the great supportive advice from you?
... seasoned addicts, much like myself. I have lost too much to re-count in this limited forum but suffice it to say, that were it not for startin ...
5 answers • 22 Jul 2011 • 1 star
I am 24 yrs old, I am addicted to Hydrocodone.. I want to kick the habit, but I honestly need it?
I have had Mixed Connective Tissue disease since I was 12 yrs old. I wasnt allowed to participate in Physical Education when I was younger, due to ...
3 answers • 30 Jan 2012 •
Is it dangerous to stop using Etodolac after being on it for years?
I have been treated for a mixed auto-immune disorder for more than 25 years. The Etodolac either no longer controls the connective tissue pain or the ...
1 answer • 24 Feb 2012 •