... with the condition. My Gastro. tells me it's not food related and my Celiac Panel test came back negative, but I've been in a flare up for some time now and I'm confused as to whether I should stop eating Gluten or any other foods. Any advice would sure be appreciated
29 Dec 2011
I would first ask if you have had food allergy tests done? If not, I don't know how your doctor can be 100% certain it is not the cause. I personally know it can raise liver enzymes & cause common bile duct spasm, IBS & many other conditions. I would hope you have had the food allergy panel done before a judgment is made about what is causing your condition. I am allergic to milk proteins, corn, pork, strawberries, & quite a few other things I love. I have drank milk all my life, & had intestinal problems all my life. If I accidently eat anything with corn syrup or corn meal, corn gluten etc... I am in trouble with my gut. Just my thoughts...
29 Dec 2011
Rhyes, did you have an endoscopy and was a biopsy taken? Thats the only conclusive way to know if you have celiac disease or gluten allergy, two different things altogether. I have celiac and the only way to heal the lining of the intestines is an absolute gluten free diet. Minda
30 Dec 2011
Thank you for the advice. I have only had a Celia Panel done and they told me it came back negative. I have also had a colonoscopy which they said looked clear, but they diagnosed me with Microscopic Lymphocytic Colitis which they also told me looks normal but the biopsy shows something wrong. I've heard that even if a Celiac Panel comes back clear, we can still have a sensitivity. Other than that I haven't had any other allergy tests done. Are there allergy tests that you can take to check for everything?
30 Apr 2013
I have lymphocytic colitis and the gluten free diet does help! I did the blood test for gluten free and it came out false but those can come out false negatives... like someone else said, the only true way is to have an endoscopy and to see the villi and see if they are damaged. But that's $1,000. My GI doc told me that if it helps me then do it, and it did. I think I have more of an intolerance. It's helped with motility definitely and I have more energy and my muscles don't hurt as much anymore :)
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