So I have heard two things. 1: You can only test positive for Lupus if your in a flare, and 2: if you have Lupus you will always test positive. Which is it? And is MS the same way? If my MRI comes up clean, can it still be MS? And, finally if its my thyroid, and the basic test is normal, what specific testing can I ask for, for that? Seems like I have to hold my doctors hands and guide them thru everything. Thanks Team. I have so much hope for the future, and a week ago I was ready to just give up. You have all made this so much more bearable.
9 Jul 2012
Please freakinouthere, read my second answer from your other question. Please find a doctor who is educated in Lyme Disease. It is very prevalent in this country moreso than they realize. It really sounds like that is your problem. I have given you a bunch of places to check out the symptoms on the other question. My friend who has lyme disease is really worried about you, as it is commonly misdiagnosed for Lupus, and MS. Please let me know how you are doing, I really do care!! BTW, you can have fevers and major pain with lyme disease too.
14 Aug 2012
I have Lupus, and I do not always test positive. When I am not flaring, my ANA comes back negative. There is also a very small group of ANA-negative Lupus patients, meaning they have Lupus, but have never had a positive ANA test. It isn't common, but it does happen. My friend is ANA-negative, and her doctor is one of the leading Lupus experts at the University of Michigan, so I'm inclined to accept his expert opinion. They are much less skeptical about this in the UK, where they seem to be a bit ahead of us in terms of the study of diseases like Lupus, Fibromyalgia, and Chronic Fatigue (at least based on much of the research and information I have read from that area, as opposed to here). There they rely on a variety of information for diagnosis, including history and symptoms, and don't seem to put quite as much emphasis on basing the diagnosis on just one test (although that is a major factor they look at; they just don't dismiss the diagnosis just because the test is negative - not without other supporting factors).
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