I still don't feel like I'm at even 70% of what I would think to be normal. I'm always waking up stiff and in pain, if I sit or stand too long my body seizes up and pain is too much. How can I feel better without taking more meds? What else is there to make my body work better, feel normal, without seeing a doctor every month? I can't sleep without going to extremes like no sound, no light, heavy meditation, meds, and not having my husband in the bed sleeping next to me. My back can't take any weight or pressure and forget exercising because I'll be laid up in bed for a week- I can't keep missing out on work, on life, for every little miss-step or wrong sleeping position that puts me out- Please help me live again.
I've been on flexeril and neurontin for over a year, why am I not getting better?
- Posted:
- 8 Jul 2011 by faelord13
- Topics:
- flexeril, neurontin, insomnia, muscle spasm, pain, fibromyalgia
Added 8 Jul 2011:
I was diagnosed with fibromylgia and polymyositis when I was 19, I've been on over a dozen medications trying to find something to help but nothing is getting me past the pain and stiffness, the agrivation of litterally crawling on the floor to get from bed to bathroom when I wake up, the sleepless nights because I can't get comfortable in bed next to my own husband, and I'm sick of this life style of not being able to do normal everyday things like take out the trash or clean my kitchen without being in chronic pain and overwhelming lack of energy 24/7-
Responses (2)
8 Jul 2011
Hi faelord13,
I know of what you speak, I also have a horrifying case of fibro. Perhaps since the Neurontin and Flexeril is not working, you need to see your rheumatologist for something else? There are so many meds out there for us.
Have you tried Cymbalta, or Lyrica, Hydrocodone? Opiate pain meds can be very addictive, yet they work, if you take them sporadically you will not become too dependant on them.
You and your doc need to exhaust every possible avenue to relieve some of your pain and get your quality of life back! If this doc is not helping you, find a new one.
There are many members on this site with fibro and you shall have many answers and loads of support by the end of the weekend, so hang in there gurl !! The support on this site is wonderful, and you sound like you could use some !!
All the best to you,
sweetlemon
8 Jul 2011
From what I have read of your condition you are not on the correct medication. I am surprised this is all you are on. Here is what I found:
Polymyositis - adult Symptoms
Polymyositis is a systemic disease, which means it affects the whole body. Symptoms include:
•Difficulty swallowing
•Muscle pain
•Muscle weakness in the proximal muscles (shoulders, hips, etc.) that makes it difficult to raise the arms over the head, get up from a sitting position, or climb stairs
•Problems with the voice (caused by weak throat muscles)
•Shortness of breath
Patients may also have:
•Fatigue
•Fever
•Joint pain
•Loss of appetite
•Morning stiffness
•Weight loss
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