I have been prescribed topamax for my migraines. I asked the dr and pharmacists both how this is supposed to help migraines but dont really understand thier explaination.What it the mechanism that helps?Also I have been told to take this at bedtime so for anyone using this are there lingering side effects in the morning as well? thanks:eek:
Is Topamax effective for migraines?
- Posted:
- 5 May 2007 by SOMEWHAT_DAMAGED
- Topics:
- topamax, migraine
Answers (11)
13 May 2007
I was a chronic migraine sufferer! I have been on Topamax for 2yrs now and have been migraine free! That is why I joined this board-today... my concern is that I will have to be on the medication for the rest of my life! I swear by this medicine. My migraines were horrible!! Topamax has kept me migraine free now! I take it twice a day..morning and night. I do notice weight loss with it though. Small price to pay for relief.
27 Jun 2009
I regret to say that Topomax is useless. I have found that for me so far the only thing that I have found is Imitrex Stat with Amerge. I know that I am committing grievous error in reporting this to the group but I have had migraine so bad that I have taken two needles; then the darkened room, cool, and without sound. Some of these episodes have been known to go on for 3-4 days. My Doc is aware.
9 Sep 2009
I am NOT a medical professional. The way I understand it is Topamax is a seizure med and it calms the blood vessel activity in my brain. My migraines are most likely caused by a combination of blood vessels that get too much stimulation and an anuerysm that was recently discovered. Which Topamax helps with as well. I take a pretty large dose and like you, I take full dose at night. My only bothersome side effects are numbness/tingling in feet and hands and loss of energy in the evening. I can live with the tingling. But recently let the nuerologist know that the energy level was too much to bear and he replaced part of the Topamax with a Calcium Channel Blocker. I am still in the tranisition process, but so far I am regaining some energy and not seeing an increase in headache frequency. So I am pleased. Topamax has been a successful drug treatment for my headaches. I have taken it for over 2 years and seen a dramatic decrease in my headaches from 2 a week to less than 2 a month.
Best Wishes to you.
Wow! I had a headache the other day that wouldn't go away for 21 hours without Chlorpromazine an anti-psychotic drug given to me at ER. Have you ever heard of this as a form of treatment?? I am so sorry for you to have experienced these type of headaches 2 times a week. Life cannot go on like that, you would have no quality left. I experienced a vague/mild headache for 5 days afterwards. And told they don't think it was a migraine, how do they know for certain, as this was the first time I'd experienced this?. I don't think they treated me properly when presenting to ER, I'm confused why they chose this approach. Do you know anything about this medicine being used?
Thanks Heidihoe
10 Feb 2010
As with migraines, what works with one is a dud with another migraine sufferer.
For some, Topamax works wonders. It comes with a possibility of many side effects. My wife took it for a year or so. But it just didn't help her migraines. But she had the side effects. One being losing weight.
She loved that one, but she only weights a hundred lbs. She had the lost of words, and other side effects that were scary.And yes, she had the lasting effects in the morning(zombie)
If you don't see some relief in 3 or 4 months I would tell the Doctor. It doesn't take forever to see the results of it. If it helps, and you have side effects that are hard to tolerate talk to your Doctor about it.
The Doctor just gave you an answer he read on drugs probably. Truth was ,he just didn't know. He just knew that it does help many with migraines.
Sorry, I think I just accidentally down-voted this comment. Meant to give it a +1
11 Jun 2010
I am in my 6th week of taking it to treat my migraines, and am at 100mg. I take 50mg at night, and 50mg in the morning. I do not notice any drastic fatigue during the day. But I also have had severe insomnia for years, and thanks to this medication, I am sleeping 2-3 more hours per night than I have in years, so that may have something to do with lack of fatigue for me!
As far as the mechanism it affects, my understanding is that is works to calm overexcited nerve cells in the brain. Whatever it is, it seems to be working for me. I do have all the common side effects listed, but they pale in comparison to the pain I was dealing with, so as far as I am concerned, they are worth it. But that is just my opinion, and a personal decision that everyone has to make individually. I hope that it offers you some relief from you pain! I know it has for me! Living with the terrible pain of migraines is so draining.
17 Jun 2010
it has worked after trying everthing on the market, but seeing a neoropsychiatritst, and the haed aches arec a suspected brain injury, it took about 3 weeks to work, and i was in cronic pain. may have saved my life, it was a guess by mydoc but he sad it balances the electrical imulces in the brain keeping them even. i have mental ilness to so im on a cocktail of stuff and will sort through with specalist.
28 Sep 2010
I've been taking Topomax for over a year now. I started out on 100 mg and am now on 150 mg. 50 mg in am and 100 at night. If you can find an alternative to this med. please do. This drug has effected my memory, concentration, and causes fatigue. At first it was a God send. It worked. But I built up a resistance to it. So Dr. increases dosage. All along little side effects, not so bothersome, not compared to the debilitating migraines. Now, I have anxiety, insomnia, personality changes. The drug will effect you the next morning. Maybe not at first, but it will build up in your system. Be careful. As soon as you notice side effects, call your Dr. to get off it. Good Luck!
27 Oct 2010
I am not a medical professional but suffer migraines at least weekly. Topamax does not work for me, as a matter of fact it actually has an averse effect - it makes me extremely anxious. So much so that I pace the room after it is given. Compazine has the same effect on me. I have found that these two medications along with stadol is a favorite for ER's to give during an episode. So far I have found that solmedrol works extremely well for me, ask about it.
23 Mar 2011
It took a while, but Topamax decreased my occurrence of migraine from 4-5 a month lasting 3-4 days down to one very horrible menstrual migraine lasting about as long... I was on the drug for some time before it washed away my other migraines... I have yet been able to get that menstrual migraine under control... Imitrex injections fail... :o( So I have been really happy with the Topamax... the side effect of weight control isn't too shabby either... ;)
oh... one very important thing is when this drug builds in your system... if you miss a dose you can get into pretty bad shape really fast!!! I ran out one time and was a mess... Another time I was running low and merely went from 200 to 150mg a night just to try to make it last me... by the time I got my refill I was nearly having a panic attack!!! Thought I could come through my own skin... insomnia... So be v ery careful DO NOT run out of this medication... Also kinda scares that if they ever want to take me off of it, it will be a miserable ride!!!
18 Jun 2011
I take 50mg 3 times a day and the last is before bed and I have no problems in the morning. I like it as there is no after affect and I have maybe 1 migraine every three months and they are not real bad but once you are on this don't go off as your migraines will come back and could be real bad. I also use this for pain and I have lost weight with it too.
After trying sanomigran, inderal, propranolol and most recently amitriptyline (which has made me gain crazy weight) none have managed to control my daily headaches or frequent migraine attacks. My gp has referred me to a neurologist, next move looking to be topamax. I feel really scared after reading through the various forums on this medicine and its side effects, but am at the point where i would try anything for relief. I would welcome positive feedback to help me think that this may be the one that gives me a hope! Thx
7 Sep 2011
i still have headachke and not puting words together , not being happy with not being told why i was put on the meds with out doing my own research. and no one told me the most important part and that was MAYBE DRIVING ON THIS MEDICATION WAS ADVISED FOR EVERYONE ! Why doesnt any one talk about that ? i know i have been only taking it four on 2 weeks but i think this is something any doctor should advise evryone !
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I took topamax for about a year, and yes it definitely helped my everyday headaches, that were bad. I do not suffer from migraines, but cluster headaches. I believe it works with the blood flow in the brain, and other mechanisms. The major problem I had with it with the brain fog. I could not think,speak,spell, or put words together effectively like I used too. I am just getting back to the hang of things now, slowly, but steady. I taped off of 100mg daily..over 2 weeks..This is day 2 without any topamax, and I must say, I feel a whole lot sharper. I will have to see if I can stay off this, nothing is guaranteed, headaches might come back. If a person has a serious problem with migraines, or headaches, I would recommend topamax. Don't take so much, that it is an overkill. The more I read, the more I see people taking way too much. Every case is different, everyone is different, but please keep that in mind. A person starts out slowly...
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see if 75mg daily or 100mg daily works for awhile before you up it... It will take a couple weeks, to really know, so give it time. Other side effects are weight loss, soda tastes like ... lethargic and sometimes alittle depression, but not everyone. I see these things more now then when I was taking topamax. I might have to go back on it... we will see... People who suffer from headaches will do just about anything to get relief, and this did work for me... My headaches were first stress... then rebound headaches,,I kept taking too much OTC medicine, which is really bad. For any of you taking too much advil, tylenol, or other over the counter pills daily... Be careful..What I went through getting off of ibrophphen was absurd. They recommened to be hospitalized, and I thought, no way... I now see why... It hurts really bad to all of a sudden stop taking headache medicine, when your brain is so used to it... It causes more headaches. Hence,,rebound headaches for me. Made mine worse is that I took fioricet on top of that, which is a barbituiate.(sp) I kept taking them, not realizing I was making my situation worse. Learn from my mistakes..Don't overdo, you pay for that...
I have read many posts on topamax. Seems to me it is better handled by someone older then 25 or so... not saying it won't work on a 20 year old, but i saw many complaints in that age group... Read many posts to get a good grip on this medicine... Remember..Dr's are usually trying to do what is best, but not all of them. you need to do your own homework. The doctor is not taking this pill, you are... educate yourself, and slow and steady... If you take it and decide its not for you... taper slowly off... seriously...
I will post more as time goes on if I have to go back on topamax or not.. Any questions,,feel free to send... God Bless... Keep the Faith...
I was taking Topamax for about 5 years and I have no insurance and was wondering if I could get any help in filling my perscriptions.
I've been taking Topamax for migranes for 6 years & it works.I have them from time to time but i have imatrex on hand.It usualy happens from heat or stress but i don't have them every day.I'm on other bipolar meds so i don't lose weight.
I take this for migranes,i don't know how it works.It was created for epalepsy but i use to have migranes days on end every week.Now i might have 1 or 2 a month.I think as you age they lessen.My girl freind is 70 now & she stopped having them years ago.Since i've been reading about the pill for bipolar i've been uping the dose to get rid of the other pills i take for bipolar.It seems to be working & i've got rid of 3 doses of other pills.I'm a phamacy tech but i'm working with my doctor.I really feel that people won't have to take the pill forever.I think in the years your bodys hormones have alot to do with it.Both times when i was pregnaut i never had 1 migrane in the whole 9 months.I hope this helpped you.
Be careful with long term Topamax. I have been on 200 mg for a few years and I am now having eye problems. Eye twitching and pain and they tell me that yes that can happen and it can be permanent. Thanks, now you tell me.