colostomy scar tissue region - underlying stabbing pains for 6 months - adhesions? How to treat besides more surgery?
Is there successful treatment for abdominal surgical adhesion causing chronic pain?
- Posted:
- 2 Oct 2010 by JoElize
- Topics:
- abdominal adhesions, pain, surgery
Details:
Responses (1)
midwestma3 Oct 2010
I've been through a few surgery's due to scar adhesions, due to many surgery's bowel bowel obstructions also due to adhesions, and nothing gets rid of these adhesions except a laparoscopic surgery where they can remove some of the offending adhesions, unfortunately it can and does lead to an endless cycle of repeated adhesions prodedures. I've been there in your place too many times to even count. Ask you doctor the best route to take. No mater what, every surgery leads to ore adhesions, regarless of what you try to do. I don;t want to seem like gloom and doom, it's just a fact a fact of having surgery. I wish you less painless days, and pray your doctor can come up with some solution for you. Or if someone else on this forum has a different answer, I hope they jump in and help you out here. Bless you my friend, I do know how you're feeling and what you re going through, it's a very painful condition. Best of luck again. (((hugs)))
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Hi, thanks for you response - I pretty much gathered this to be a case of having to live with the pain! I wondered what kind of radiological scan would show up adhesions, do you know? Or can they only be seen by laparascopic procedure?
Hi there,
Unfortunately, after many years of dealing with adhesions the only way they could determine there where adhesions was doing a laparoscopy prodcedcure, no x-ray or MRI could see them. I am sorry I couldn't give you better news, however this is the the only route they (the doctors) have told me they could dicover what was causing my problems. I send you ((hugs))) and best wishes, I know this is not an easy process to deal with. Pleae let us kow how you're doing, OK. I wish you all the luck in the world dealing iwth this problem. (((hugs)))midwestma
I too am suffering such intense pain that I cant even breath sometimes, the pain is in my abdomen, the entire thing is so tender as if I just had surgery, it is hot to the touch and then I get spells that the pain gets so intense it radiates through out my body into my chest so severely that it seems I am h having a heart attack. I have been in and out of the emergency room and admitted into the hospital 10 times within the last 3 and half years I get bowel obstructions, the intestines twist, and sometimes even telescope into one another. The doctors are assuming it is due to massive adhesions in my abdomen, however due to the fact that I had a gastric bypass 11 years ago in Fargo North Dakota, and Have since that time moved to Miami Florida NOT ONE SURGEON in Miami will see me because they wont touch another doctors gastric bypass patient... now you tell me how am I to get the much needed help I need to at least temporarily be out of pain.
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The pain and how I feel effects my daily life I cant work because there are days I am confined to bed because the pain is so intense, it effects my relationship, which by the way I do have a fantastic boyfriend who has been by my side every step of the way. It effects my mood and I find myself crying for absolutely no reason other than I am so tired of dealing with pain and being sick... any and all advice, or help would be greatly appreciated... oh yes my doctor prescribed yesterday the fentynal patch for the pain as the vicoden and percocet wasn't helping that much anymore..now my insurance company has to have pre-authorization to give it to me... sighs... there just is no end to it
I had laparoscopic surgery in 2001 to remove adhesions and felt great for 3 years. Since then I have had 5 more abdominal surgeries (not for adhesions) and now am having severe pain. I would gladly have laparoscopic surgery every few years to keep from going through what I am now, but unfortunately, because of all of the scarring and the amount of surgeries I have had, the doctors refuse to even consider doing ANY type of laparoscopic surgery on me. They even told me that I would NEVER be able to have a laparoscopic procedure anywhere in my abdomen again. Since I can't have laparoscopic surgery, they tell me i can't have any kind of open surgery to remove the adhesions because it is too invasive. Honestly, I would even rather have open abdominal surgery every few years to keep from being in pain daily and on meds daily.
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I have heard that there is a new gel out on the market that surgeons are using to paint the internal structures during surgery to prevent growth of adhesions and that they also are trying new techniques during surgery to keep the internal structures moist and that both of these methods are cutting down on the amount of adhesions that grow. Does anyone here know anything about either of these new ideas and if so, any suggestions on how to make my doctors listen to me? I am getting desperate for a solution other than rx drugs! Thanks!
@Corenakaye- I have gone through the exact same thing that you are describing! I had just as many hospital admissions and was even screamed at (yes, literally screamed at) by one of the surgeons because he said there was nothing wrong with me physically. He said it was all in my head and I was addicted to pain killers. I was so distraught over that and it took me a few months of being practically bedridded before I finally got the courage to seek help. Now I am being told that the only help I can get is rx drugs and I am on a lot now. I take 26 pills every day just to be able to do light housework and do an office job part time. I am only 39 and tired of feeling like I am 89. I also had gastric bypass and originally lost 176 pounds, but have gained back 70 of them since I am immobile and can't even walk for exercise because every step pulls and rips in my abdomen.
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May I ask if your bypass was a success and did you lose all of your excess weight and keep it off? I was 384 to start with, got down to 208 and have since gained back to 278. Many of the docs tell me that if I lose weight, my pain should go away. I can't lose weight when I can't get up and move to burn calories! I still eat very little and don't eat sweets, but my metabolism is so slow that even with restricted calories, I have to exercise to lose weight and maintain the loss. I have the same problem with surgeons too. You are right, once you have had gastric bypass, no other doctor will touch you! It sucks that you are going through this as well as everyone else on here, but I am relieved to know that I am not crazy or an addict and that other people can relate to what I am going through! I am so glad I found this group!
I am so relieved to see that I am not suffering alone, but, by the same token, very disappointed that so many people are suffering as I am. I have had so many abdominal surgeries, which have left so much extremely painful scar tissue. I too have had a small bowel obstruction due to Crohn's Disease, and this is the only time that a surgeon was willing to go in and help clean-up some of the scar tissue. I don't understand why doctors are so reluctant to help people with this condition. The pain is so unbearable. I am 44 years old and can only get out of bed for two, maybe four hours at a time before my pain killer wears off and I have to lay back down. I have a 15-year old, and feel like the worse mother in the world because I am always in the bed. I use to be able to cook him dinner, but as of late he has to feed himself.
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Doctors do not know the damage that they do when they accuse it the pain as being "in your head" or say that "your addicted to pain meds." This pain is not in my head, and if I did not have my pain medicine, I could not even get out of bed. I have spent all week crying because I cannot convenience a surgeon to even take a look to see if they can help me. I'm so tired of hurting and so want to totally be off pain medicine as I am afraid of addiction. Doctors, just because you can't see it on an x-ray or CT Scan does not mean that it doesn't exist. If you believe in prayer, please keep me in yours. That a doctor is kind and open-minded enough to consider helping me. I'm so tired of this.
I, too had a gastric bypass three years ago. following that a ruptured bowel led to faecal peritonitis. I now suffer such severe pain that I have had to give up my job ( which I loved) and have no social life as I suffer such severe pain. It starts at around five pm and will go on until three or four in the morning. I have fentanyl patches ( 100 micrograms) and oral morphine for breakthrough pain. Has anyone got a good pain control regime? It feels wrong to take a 24 hour delivery patch when the pain is not there 24 hours a day? Does diet restriction help? It feels like the bowel is obstructing so maybe there is some sense in taking a liquid diet.? Any other ideas? I have a wonderful husband who will do anything to help but we have run out of ideas and I am feeling desperate.
Hi I have had adhesions for just over a year, every night taking strong meds. - have just started eating a low residue diet, but having a meal replacment dring for evening meal. For me this is actualy working and haven't had any pain killers for 3 days! I do a lot of exercise as well though. - hope this helps you.
Clare
This is a huge problem, I have been dealing with adhesions for over 20 years, after 6 surgeries not for the adhesions but for ovarian cycts and other female problems I am left in severe pain, it gets so bad I can't breath. I to was told no more surgery. I was doing well on oxycontin until the formula change but I can't seem to find the right meds since. I have taken Avinza, mscontin and oxir. the morphine type drugs are hard on my bowels and make me tired. The ir works great but its short acting and doctors are not comfortable prescribing it at large doses. I have tried everything and I mean everything. Narcotic analgesics work the best but they have side effects. It's been so bad that I am seeing my doctor today to put me in the hospital or prescibe the right cocktail of meds, I feel useless, everything I due increases the pain. I live in fear. If I due get the pain to a tolerable level I am terrified to move because it will come back. I am only 49 and this is hell.