I am taking it for severe lichen planus.
Is anyone taking cellcept for an autoimune disease? Sue?
- Posted:
- 5 Jan 2010 by suechamp
- Topics:
- cellcept, lichen planus
Details:
Answers (4)
Marvell21 Jan 2010
The reviews are from patients who have had organ transplant, so I can't comment. Please post your question in the forum ... someone may share some knowledge.
31 Mar 2010
Is your lichen planus on your skin or is it oral? Cellucept was offered to me, but I am still thinking about it, considering I am still dealing with the side effects of prednisone. Heard there is possible kidney damage with Cellucept, and since I already have Type 1 diabetes (47years), I don't want to risk my kidneys unless this stuff works. Would appreciate knowing if it worked for you or not.
22 Nov 2011
I am taking it for Autoimmune Hepatitis (AIH). I tried AZA and could not take that, then took Mercaptopurine (6mp) for over 3 months, which didn't work. I just started CellCept. Side effects seem to be less for me so far then the 6mp, but I eventually have to get to 1000 mgs. I have also been on prednisone since June 2nd - started at 60 mg, tapered down to 20 mg, but had to go back up to 35 mgs along with Cellcept.
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Hi Marilyn, I have been talking CellCept for about 6 weeks and my lichen plantus is much better but not perfect. I have had it for 15 years and it affected all my mucus membranes and my scalp. It ruined my teeth because it caused my gums to be so inflamed. Now I am much better. Yes, I took Prednisone when I had especially bad flare ups. The side effects there were very hard to deal with, constipation, nervousness, unable to sleep, weight gain and hot flashes. I was teaching and it made that especially difficult. Just yesterday I had my eyes checked and was told I had the begining of cataracts, did I take prednisone? Yes, it is a side effect.
My doctor is testing my blood weekly, then monthly to make sure the CellCept is not damaging anything. I hope after a few more months to be able to cut my dosage down. It has an uncomfortable side effect for me, terrible gas. My friend has no side effects but is on a lower dosage. So, best wishes, please let me know how you do. I have probably been through what ever faces you. Sue