I have CRPS in my left ankle and nothing has helped so far .Just had a sympathetic nerve block done with no,or bad results .I have been referd for a spinal cord stimulator ,or a morphine pump,Is it worth a try or is it to risky ?
I would like to know if any one has had a spinial cord stimulator put in.is it a good idea ?
- Posted:
- 21 Sep 2011 by HOFFIE
- Topics:
- reflex sympathetic dystrophy syndrome, morphine, nerves
Answers (5)
22 Sep 2011
I have never had the stimulator implanted nor the morphine pump. I have always taken medication to get rid of the majority of the pain. I have refused to use these methods you mentioned because I have read so many articles regarding the relief and it not helping. I read that these methods are more a problem inplanting and taking them out. If I can answer/help you with anything else please feel free to ask. I hope this helps you. Thanks
19 Oct 2011
I had a spinal cord stimulator put in on April 25th 2004 and got it taken out 2 yrs later cause it started giving me more pain then it helped. My opinion on the stimulator is talk to more people that have had it. Me personally I didn't like it. As for the morphine pump I said no. To much can go wrong. Good Luck.
9 Nov 2011
I have had rsd for 10 years now. I tried all the treatments, the meds and just about everything else I could think of. In 2006 they did the spinal cord stimulator and I will have to say it is wonderful. I still have pain in my legs and it is spreading to other parts but I can get around, I travel and it has dulled the pain about 40%. I have to put on the charge pack about every 2 weeks (used to be once a month) for a few hours and I am good to go. I did have to worry about the rsd spreading into the surgery site but I have been lucky so far. Really think, is a relief of just 30-60% enough to make you take the risk? I can tell you that when my scs turns off I can tell the difference and I am very quick to get it recharging and turned back on. When I have more pain I can up the settings a little to see if it helps. To me, I am not sure I would still be around if it wasn't for the relief I have gotten from one. Hope this helps.
13 Nov 2011
I have full body rsd and fibromyalgia. I have the spinal cord stimulator for both sides of my body for about 10 yrs now, and when my pain gets bad, it truly does help me. Since living in Fl. I haven't had to used either one of them as much as I did when I lived in Ct. Be sure when you have stimulators put in on hips, if you do. I have one of my left hip bone, and the other one is just in my right side, and at times its so uncomfortable, it gets caught up under my ribs and hurts. So just make sure you have them put on your hip and they'll be a lot more comfortable for you. lheck
23 Jul 2012
Hi Hoffie, I have just seen this question..Here is a very late reply to your question..You may have already had a SCS implant..I dont know BUT..I had one done in December 11 after a good result trial..but I am wishing I hadnt gone for the Implant SCS as my back /spine is so much worse that it ever was prior to the op. I have crps in my left foot also..but feel things are worse..now.The SCS does help mask the pain in my foot/leg but I was better before the opp. ..Lyn n Alfie
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