fonieMy insurance says that they will only pay for generic, but I took topiramate and had seizures and headaches, since I have been on topomax I have been doing fine. Has anyone had this happen and is there anything I can do?
Answers (5)
skii
masso416913 Jan 2011
Hello,
Topamax is made by Ortho-McNeil Neurologics.
They do have a patience assistance program.-
Please click on the link below to view and read full information:
http://www.ortho-mcneilneurologics.com/company_assistance.html
Also click on :
http://www.access2wellness.com/a2w/index.html
Johnson & Johnson Patient Assistance Foundation, Inc.
Patient Assistance Program
P.O. Box 221857
Charlotte, NC 28222-1857
Phone 1-800-652-6227
Fax 1-888-526-5168
I truly hope you qualify for your medication.
All the best and take care.-
fonie
14 Jan 2011
Thank you so much, I will try this.
masso4169
14 Jan 2011
You are welcome, and I hope it works out for you.-
marjorie ...14 Jan 2011
You may be able to get your doctor to send a letter saying it is medically necessary for you to take the brand name only and they will have to pay for it. Thereis also a program that helps you get your meds if you cannot afford the cost you may have to pay some depending on your income but I have put the info here, good luck and hope this helps, marjorie zych
Partnership for Prescription Assistance 1-888-477-2669 or www.PPARX.org
Cathleen186
14 Jan 2011
marjorie is right. I did that for Vivactil. Couldn't stand the generic. Say you have an allergy to the generic, then they give you the brand (no questions asked in my case). See if that works.Cathleen
marjorie zych
14 Jan 2011
Never thought of that one, allergic to the generic good one I will have to remember that what is even funnier they fell for it. Were you really allergic? Just poking fun. Hope all this has helped you get some help, marjorie zych
caringsonbj15 Jan 2011
I know some insurances that I have had experience with require the doctor to try you on 4-5 various generics to see if any will work as well as the brand name I have had similar experience with pain medications if this is so with you it may take a letter from your doctor in order to convince them to pay I know these medications are expensive but you need what works best for you please take care and have a good week end
fonie
15 Jan 2011
he caringsonbj, thank you for the info. I had my doctor send a letter in May, and blue cross denied it, so my parents paid the difference of $900 between generic and real topomax. I just got a letter from blue cross saying they have decided they will not pay any of it now, which would be about $352 more. I have tried 2 kinds of generic, and had seizures. Since I have taken name brand I have had none. I am getting the dr to write another letter. I just wonder if insurance company has any thing to other than pick on me! thanks and God Bless, fonie
astrid11121 Aug 2011
I believe Topoirimate is the generic version of Topomax, so they are the exact same thing. You should not be having any different reaction. Is it possible that there is something else going on that is contributing to the difference. I take generic Topomax, or Topirimate as well by the way.
jacie39
24 Mar 2013
I take the generic as well and I have epilepsy 2 different types and migraines but not anymore:) I find if I do get seizures it was likely of too much unnecessary stress as my doctor told me to avoid, not that easy in my home.
astrid111
1 Apr 2013
How much Topomax do you take each day?
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I have to pay $900.00 a month and now I just got a letter that blue cross will not pay any at all. It isn't fair
I also had the doctor write a letter, and blue cross still denied it. Thank you so much. I have another call in to the doctor, to see if he can write another letter.
Fonie I am so sorry and is just plain crappy..you know if you can find out a phone number where they are made the company is very good at setting up a system so you get the right kind (not generic) as they don't want people suffering... I know this because my sister went through the same and they worked it out with her insurance company to give her the right kind.
Please give this a try as the company's that make the medication do not like to hear these stories with people suffering... the best of luck and hang in there smiles Jacie P.S. skii we have to pay too much of a copay because our pharmacies are tight wads out here in my part of Canada..