I had a spinal fusion l5s1 las feb. and i am still expeeriencing alot of pain in my lower back. It is ruining my back. My surgeon has passed me back to my general doctor who is stumped. She tried pt, muscle relaxers, took mri's and xrays (all negative). She prescribed me tramadol and hydroxizene for the pain which did help much at all but at least it was something. However she will not prescribe me anything else and has passed me on to a pain management center. i have been seeing this guy for a month now at a huge cost to myself. I have had 3 steriod injections that were very painfull and expensive and I have had no relief. I saw him today and he accused me of lieing about being in pain. He did not come right out and say it that wayy, his exact words were "casual observers inn the waiting room have said you seem just fine and you have range of motion". I was shocked and stunned and did not know how to respond. I told him that I can move, but that does not mean I am not in pain? My wife was there with me and she was so upset she started to cry. I am in so much pain daily that my life is crumbling around me. I cannot make love to my wife, I cant mess around with my kids, and any kind of excersise of entertainment that involves standing or sitting for to long is out of the question. I feel hopeless I have not cried as much as I did today. I really feel like just calling it quits, my family would be better if I wasnt around to burden them anymore. I have been told by a couple doctors that I am too young to be having these problems (im 32) and there is no medical reason for my pain. I have beenn made to feel like a drug addict and a peice of trash. I have no meds for pain now and another sleepless night ahead of me which will only cause me to think more and more about what i am doing here. PLEASE HELP!! I cant be strong for my family much longer, I have used everything I have to make it this far.
13 Apr 2011
when I was younger I went through some of what you went through other people cannot tell by looking at you if you have pain nor how bad it is, It reminds me of a time when it would have been easier to have not fought but you know I was probably a bit younger than you when I went through this, You will find someone out there that can be of help to you, Pain plays havoc with many area's of your life, I know what it's like to have others with a look on their face things got worse for me in 2003 but since I have found a doctor who is caring is compassionate and expects me to be able to function, honestly I didn't think I could take much more but in 1991 my father died, because of my inability to work I came back to live and help mom You can do this, I encourage you to hang in there even though that is asking so much you don't get it unless you've walked down that road. I am on here I want to be a friend to anyone on here that is in need the thing here our story has a common thread, Please hang on I just now noticed when this was posted and am sorry about the time but I hope you have found that person to help because it does make a difference
7 Aug 2013
plz whatever You do plz don't
I've been thier buddy
ALL my pain med bottle
standing so pretty infront of
me just waiting on me.
But plz for Ur family sake
plz Dont give in
ive had multiple fusion as well and other surgeries
I've been in & out of wheel chair due to my back
the other comments are right
like you shop around for the right car that fits you
shop around for a Dr. that fits you
Medical professional's are human they make mistakes
I've had some Dr.s said they wont touch me I'm better with what I have in R.O.M.
and others say I need a
so go figure
ALL I'm saying is PLZ. don't
I've been living with constant pain 24/365. on scale of 4&5
you will learn what helps you in time to make you feel easy
My Family physician helps
me with my meds not
every vist ALL meds go with me some meds hardly touched for example
I use when pain is
of 3 to 4 I take naproxon
when pain is 6 to 7 morphin
so whatever Dr. you choose and trust and works for you
just remember trust goes
from your family I give you hugs, Dear. hang in thier
12 Apr 2011
I know how you are feeling I had the same surgery's as you in 2007 I also have nerve damage. Physical therapy,injections every test you could thing of so here I am feeling the pain 24/7 I have tried every medication my doc.gave me so there is nothing that you can do except take the meds that are prescribed to you and find another doctor.No doctor should treat you in that manner my doctor always respects what I have to say.Good luck and be well!
11 Feb 2010
You're never to young to have back problems. I personally have back problems and I'm only 21. Luckily my MRI was positive for a lot of problems. The hard part is just finding the right doctor. Some people call this doctor shopping but it's really not if you're in real pain. I would suggest just looking for a pain specialist that will help you. It's just trial and error. You're not alone either. Just go to different doctors until you find the one that will help you. You'll find the right one eventually. Just don't give up. Don't forget about the OTC drugs. They can be just as effective as morphine (Ibuprofen was studied and was found to be equal to morphine in a clinical study.) Take the highest dose that is recommended. This will help a little until you find the right doctor for you. That's my advice to you. I wish I could help you more. Hang in there. Hope this helps and gives you some motivation. Take it easy!
12 Feb 2010
I have had two spinal fusions that did not work. It started in 1997 and I am 55yrs old now. I know what it feels like to be in pain no matter how your range of motion is. Once our backs are fused, you have very little range of motion where the fusion is. I don't care what the doctors say. I was better off before I had the two major surgeries. I agree with the other response. Find a doctor that will work with you. It may take a month or in my case it took me a week to find another doctor to work with me. I am not what you would call a lucky person, I just have a good family to back me and support me with whatever I choose. And I choose not to live in pain. I just want a life that is functional and one that I don't feel like I am abusing my pain for whatever stupid reasons these so called doctors come up with. You have my support. Don't give in to these so called pain management docs. There are regular GP's out there who will work with you too. God Bless you and your family. Kimmie1
20 Feb 2010
I've had all the injections did not work had spinal fusion L5-S1 did not work just had a spinal cord stimulator implanted took the edge off with the meds oxycontin lortab and flector patches find another doctor.never give up I can't understand how a doctor would treat you like that my doctor will do anything I ask he understands everything I tell him.good luck
22 Jul 2011
No your family would not be better off without you as it was stated it's not doctor shopping it's a matter of finding a pain management doctor who will work with you to make your life functional and give you enough ease until you can go through a somewhat more normal ability to do things with being miserable, I know their are pain doctors who utilize injections then their are pain management doctor's who treat you with medications and other treatments that compliment each other and for the most part utilize medications that are long acting and also prescribe medications that can be used in combination for pain not totally controlled inbetween time for your long acting pain medicine.
5 years ago I was in a situation without a doctor who would take my insurance and was forced to find a pain medicine specialist, I asked friends had a good friend who was a physician and I asked him, I located a physician who is an internist with a sub speciality in pain management, I have back, leg and neck pain part caused by polio the other was exacerbated by a fall this past winter in which I broke vertebraes and messed the disc up in my bac/neck area, Don't give up the pain management doctor who you find will soon realize that range of motion isn't the only problem their is to diagnosing someone in pain, there are many on this site who live their daily lives in chronic pain, you will find support here from many people it may give you the push that you need to keep fighting to get the help that you need, expect and deserve. I wish you only the best
12 Feb 2010
I have had low back pain for 15 years, I am 40, the last 5 have been the worst as far as the pain. I was addicted to the pain meds for 5 years, and that is when I went to a pain clinic. The clinic saved my life, they have everything in one office that deals with pain. The clinic has P.T., O.T., psychologists, podiatrist, x-ray, procedure rooms for injections, plus more. The pain clinic detoxed me 13 months ago, and was put on Suboxone as pain control, worked fantastic for the first 10 months, it is losing it's pain control for me. Surgeons will not touch my back, I have too many things wrong, they have all said that they would not be able to fix everything, so why do it. I am on private disability insurance right now, and I am applying for federal currently. I was a union commercial construction carpenter, that is where I damaged my back. I to weep over the financial burden I have put us through, the fact that I can not pick up or play on the floor with my 4 year old daughter, and the constant pain. All of the medicines I have taken, including back injections (probably 20 injections total so far), have caused more problems. I have contracted cataracts, sleep apnea, low testosterone, bleeding ulcers, addiction. There are no stories that are worse than our own, so please do not think that I am trying to make my pain seem worse. I have thought that everybody would be better off without me many times, trust me, brother, they would not. Do not give up, yes I am standing up, sitting down constantly while even writing this message, I am constantly in strong pain, about a 7 on pain scale. Your children need a father, your wife needs a husband, you need to come to grips with the fact that you will always be in pain, I do not know why, but it has helped me. You need to give your wife all of your pain medicine, let her have full control of when, and how many pills you take, my wife has had to do the same. I know it is kind of degrading, but face it, we are drug addicts, do not be ashamed of that, the addiction sneaks up and all of a sudden it is out of control. I have more to say, but I have to go, stay strong, put a smile on your face for your wife, even if you have to fake it, kiss her and tell her that you love her. In my prayers, N.I.B.
13 Apr 2011
I know what your doctor is doing. He is having someone sit & watch how his patients move in the waiting room because of the new Federal regulations. The Feds have almost all of these doctors scared to prescribe pain meds unless they are long acting ones. I had this same problem, & went to my primary doctor to try to get him to write mine. He said he couldn't for the same reason. They blood tested the patients on pain meds,
& only 50% of them had pain meds in their systems. So they had to change their policy & not write any. I was in tears, & he knows my history of pain problem from failed back surgery twice, osteoarthritis, horrible bone pain. Mine started when I was 16, & I'll be 65 in less than 2 weeks.Been on disability since 1990 too. I had to work even with the pain until I got my kids raised. Was hospiltalized many times over that span of time. In 1988 my doctor after my wrist just broke for no reason, told me it was time for me to quit working & go on disability. I had surgery Monday on my left wrist & thumb. When it heals I have to have it in my right wrist
& index finger. All this because I have so many bone diseases. I have 2 huge pins in my thumb which hurt like hell, but I'm hoping the outcome will good where I can at least use my hands again. My primary care doctor got me into a new docor, of which is NOT associated with any pain clinic, but does pain mgmt in his office. He was so understanding, & gave me the pain meds I wanted. He was there for my surgery Monday & upped my dose of hydrcodoce 10/325mg to every 4 hours instead of every 6 hours,& also gave me tylenol & 3 (codeine) to go along with it for a few days. He also prescribed 2 nerve blocks because he knows about how I can't handle pain. I tell you all of this because somewhere there is a doctor that will help you. Please don't give up. I know how hard it is, but you children would never understand, & it would deeply hurt them if you did somthing foolish I've been there too. My husband is bipolar & manic depressed. He has tried to kill himself several times, until he finally got the right doctor (his physciatrist) & meds. He has had 10 back surgeries, 2 neck which included 4 fusions. He's as I said bipolar & manic, he has abad heart, has fibromyalgia,has psorasis all over his body, has osteoporosis, a pacemaker, & 20 surgeries on his abdomen which has left him with a huge hernia which no doctor will fix because he's full of mesh, & has immune problems. He has trouble walking because of neuropathy in his legs, &
also had a pituatary tumor. I sure I have forgotten some things. So see. Things could be worse My husband problems started when he was only 32 years old. I would wish as all the others have told you, to reconsider what you are comtemplaying. My husbands daughter sobbed & sobbed the last time my husband tried suicide. Well every time, but we almost lost him the last time, & he has lots of nerve damage from it. Please don't do anything foolish! Besides pain meds, you need to talk to a physciatrist or a counselor. Check out Web MD chrontic pain site. They have lots of info & help for people in your condition. My son has spina buifida,
& had to have his lower back fused which hasn't really helped him much either. If injections don't work there are other things to try . They want me to consider a spinal cord stmulator. First my hands tho'. Don't know if I have said anything that will help you, but I do know there are doctors that will help you. You just have to doctor shop to find the right fit.Sorry this is so long, I hope you take to heart what suicide would do to your children. They love you whether your in pain or not. Good luck to you...
12 Feb 2010
god bless you dont give up get a second opinon on your pm . i have been there . what dr ask someone in the waiting room to tell him how you move or would listen to another person . he is the dr that is bull . some drs . i just lost my pm dr because someone called and said i was giving my 14 year old pain meds . he has drug allergys . but that just tells you drs will belive anything . i have a appt monday with a new pm but i am scared what will happen .
dont give up y our wife and kids love you . have you talked to your family dr about you pm dr . you need too if he is anytype of dr he will listin to you . i have thought about giving up but i look at my son and know he would be lost . do you take anything for depression it helps cymbalta helps depression and pain . i hope you the best dont give up there is help for you you just need the right dr
12 Feb 2010
Fusions usually do not work. The pain comes back. But the surgeon now has money in his/her pocket and you have a fusion, for what !! Go see a pain management physician. A fusion can not be undone, you are now stuck for life. But maybe a pain management doc can make it liveable.
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