I really want to return to a normal life. People have told me I need to excersise. What low impact exercises work for others? What can I do to return to a normal life with my family and kids other than take medication all the time?
I have Fibromyalgia and take Lyrica. Can anyone tell me what else works for them to manage their FM?
Added 13 Feb 2012:
First, I want to thank everyone who has answered this post so far. I have FM but I also have Lupus and osteoarthritis. I take Cymbalta, Lyrica, Plaquenil, Flexeril, and then take Lorcet for severe pain. Recently I had to undergo ACL reconstruction do to a work injury. I have felt so much better while going to physical therapy. Now that is stopping and it is still so cold outside. I can't get outside and exercise. I thank you all for your answers. Now could someone help me out on what I can do inside to help me continue to feel good? I know I don't want to stop taking any of my medications anymore, that is for sure!!!!!!
10 Feb 2012
Hi kcd & welcome to the site. I too have fibromyalgia along with several other very painful diseases, but I also take Lyrica. You will get many mixed reviews about Lyrica even from me. I had to be on a dose of 225mg before it REALLY helped my pain, but at this dose I got such blurry vision I had to wean myself back down & decided not to take it anymore. RIGHT! After not sleeping for a slid week at all, I caved & took 75mg pill & fell almost instantly alseep & slept 3 solid hours, got up, (right bere Christmas) & feltt so good , fibro pain was gone for the moment, I ckleaned 1/2 the day & shopped for Christmas presents which I hd been putting off forever due to pain. I shopped til 5 PM. By then my other pain issues were killing me so went home ,b ut even managed to cook dinner. I have tried to up my dose again, by 50mg more, & just can't take the blurry vision. Is it helping your pain at all? If not there are others to use.
Cymbalta, which my doc doesn't recommend because getting off of it is hard, but says I will be trying Savella next. It has seen positive results for fibro pain. I am very complicated as I have Luspus, Osteoarthritis, A severes bad back with many fractures, etc,,, but many fibro patients also find relief with going to a Pain Management doctor & getting on narcotics. The problem with this is you get tolerant of your dose & have to have it increased often. Eventually you become at such a high dose, nothing works. I wish you the best. We have many people on the site with fibro & will probably be answering your question shortly. Don't give up hope, & do a lot of research. If you click on Fibromyalgia in your question above it will take you to the support groups & list the members who also have this condiditon or are members of that particular group, but stay here with us too, as your input is invaluable...
10 Feb 2012
Hey there, I started not to answer, because I thought I couldn't be of no help, but I did anyway. I have Fibromyalgia too, unfortunately though I cannot do much of any exercising due to chronic pain in my lower back. I won't list all that is wrong. I have Osteoarthritus in both of my knees too. I cannot take Lyrica because of the side effects. Which is too bad, because it really helped my pain. My doctor prescribed me Robaxin last month for muscle spasm's in my back, and to my wonderful surprise they have helped my fibromyalgia, and my OA too. I wasn't expecting that, and you won't hear me complaining either. I'm only 41, and I wish I could exercise more than I do, but I'm an optomistic person, and I guess a little is better than none at all. I wish you the best of luck and hope you find some helpful and useful exercises, so you can interact with your family like you want to. I am married and have a four year old. So I understand where your coming from there exactly. Well Good luck to you, and God Bless. Ruth
11 Feb 2012
I have had great success with Cymbalta. No side effects at all and I have very very litle pain now, I take the maximu dose of 2 60mg capsules at bedtime and it has been wonderful I keep moving even though it is hard I do it the more you sit around the worse it is. The cymbalta allows me to move more freely too. Water therapy helps alot too. Hope this helps you some. good luck and hope you feel better soon marjorie zych
11 Feb 2012
I would love to return to a normal life as well. I've had this crap 'syndrome' for 14+ years. I started taking Lyrica in November. First 75 mg 2 X a day. It started to work--mainly giving me more energy. After a few weeks, it stopped, so I upped it to 150 mg twice a day. I really don't know if it's working or not. I still have the pain and I still take 9 ibuprofen per day. I wonder if anyone has become completely pain-free from this drug. How much are you taking? I asked for a higher dose when I saw my dr. last month, and she didn't want to give it to me.
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