... Am currently on cymbalta 60mg daily, mobic 15mg daily, zanaflex 2mg up to 3 times per day as needed. I was on cymbalta in the past,i was on it prior to my last pregnancy. My son turned 2 the end of august. After pregnancy due to breast feeding I was placed back on cymbalta, any who I have been back on it for about 3 months & I really do not see that it is helping me as far as the fibro pain. I do not want to try lyrica as it is known to cause major weight gain & I have read several negative things from people taking it. The zanaflex helps somewhat. I was on flexeril before, but it caused me to have day time sleepiness the next day that just would not go away. The mobic helps very little. Also after the birth of my last son, I started experiencing severe leg pains & severe back pain, also numbness & tingling in my arms & legs. Blood work was done, I was tested for ms which I did not have, a nerve test was done where I was poked with needles all over. The pain was so severe in my legs & back. I also often experienced my leg giving out while walking & actually falling several times. I feel I need different medicines to treat my condition. I also suffer from chronic fatigue & insomnia most of the time. I take restoril for sleep, sometimes it helps, sometimes it does not. I was just curious to know from other fibro sufferers, what they take, what has & has not helped, etc... Thanks. Please excuse any typos as I am typing one handed due to a hand injury..All comments, recommendations, experience will be very much appreciated!
I am 29 years old. I suffer from fibromyalgia. I have tried several anti-depressants in the past. I?
- Posted:
- 4 Dec 2010 by houseofbradford
- Topics:
- cymbalta, mobic, zanaflex, depression, anxiety, muscle spasm, pain, back pain, fibromyalgia, generalized anxiety disorder, chronic fatigue syndrome (cfs), pregnancy
Responses (11)
5 Dec 2010
i've been on soma for almost a month now for my fibro and it seems to help with most of the pain !but i've heard a lot of people say it makes them sleepy .doesn't affect me that way .when i first went on it i did feel drunk on and off for a while but not now !
savella is another med i was on for fibro but it ran my blood pressure up so i couldn't take it and it really did work for the fibro pain !
most of what you said about sleep and fatigue goes along with the fibro !i had it all chronic fatigue ,restless leg ,i.b.s. ,insomnia ect. come to find out i had fibromyalgia and all these problems comes with it ! lucky us not !!
7 Dec 2010
Hello houseof bradford, I wish there was a mirecal drug for the pain we experience, but unfortunateley it's all trial and erar when it comes to trying to find something that works, The Dr's are so stuck on their degrees that they do not stop and listen to what we are feeling and when it comes to pain they think they know but only we live in this body and know how much pain we are in. So find a Dr. that will listen or make your provider listen to you. Get tuff and if they dont listen then fire them and find one that will. I am going thru this myself since i have moved to a new town. Let's move on to medications, It took me and my last provider about a yr to find what worked best and this is what i take for Fibro, 150 mg's Lyrica 3x's per day and starting out at low doses you get increased appetite and you will gain weight.
7 Dec 2010
Hi houseofbradford. If you click on the "Drugs A to Z" at the top of the page, type in the various medications, you can read up on them. Then scroll to the bottom of the page(s) and look for "reviews." This is also a good source of info from people prescribed the medication you look up. The reviews for Gabapentin received some positive feedback for treating fibro. Good luck on getting this pain under control.
best wishes,
chris
3 Apr 2011
What you are describing is Fibromyalgia. All of the pains and numbness, etc... that is all still Fibro, just the not quite as well know part. I suggest getting acupressure from someone who knows what they are doing. They will straighten you out and help you drastically... also, just using antidepressants to treat Fibro is crap. Been there, done that...
3 Apr 2011
I have chronic fatigue and fibermyalgia which is what your illness sounds like. Some of my worst symptoms were whole body aches and pains. exhaustion, nausea, dizziness, among many others, and I had to retire. I started out on Cymbalta, and it may have helped but was still very ill. The doctor found Savella which is the first medication made specifically for all the symptoms of fibermyalgia, came out late 2009. I started taking it in April or May 2010. He also prescibed Provigil which is a stimulant and is used a lot in sleep disorders for people like me who did shift work. I have always had insomnia, and take 1/2 of a generic ambien most nights to get to sleep. Between those 3 medications, I got my life back.
Some people seem to have nausea problems with Savella in the beginning, but I was so sick that I wouldn't known whether it was the illness or the medication. All I know was I slowly got a lot better.
I have had Fibromyalgia for 30 years. I also have IBS,IC and migraines. Add in the insomnia and fatigue I can say there are days I just feel like a truck has hit me. I have tried many treatments and medications over the years. Acupuncture does help to a small percentage so do not be afraid to try that. Any relief is welcomed. I know Elavil makes one groggy. They do say after a month or so it gets better. I took Elavil for years in my 30's. It did help me sleep and with some of the pain. I have also learned the dosage I was on was way too high and if they had lowered the dose years ago it might of been easier to stay on. Since I have multiple chronic problems finding the right medications is always a trick. I just started back on Elavil hoping it will cut some of my pain down. I had tried previously but the side effects where too much for me. After doing a lot of research on my own I learned some of the medications I was on had similiar side effects.
The Provigil or now called Nuvigil is what has helped the most... the problem is getting insurance to cover it. I'm fighting that right now. I paid out of pocket for one month ($475) and it's given me my life back. And it helps with pain a bit somehow.
21 Apr 2012
My God,, just 29 yrs..my heart goes out to you.. I started feeling symtoms well, after my thyroid & nodgel was removed I was 44 yrs,,now I'm 59.. anyway, youv'e just begun with trying diff/ meds.. I can say after a while (YOU) will know what works for you.. Fibro/cfs.. effects us all differently in every way I'm finding out in meeting others , talking and listening.. I can't take the traditional (R.A) or (fibro) meds such as lyrica, cymbalta, ect..because I have Liver issues .. I have many other auto-immune illnesess.. so for pain I take methadone, took me 2 tries , but i found out quickly that was (my) pain med.. I;m also on nerurotin 400-milgs 3x day.. but my gasro/dr just introduced me to (Savella) but I need to be sure I can be on both , before I begin .. OH i to tried Mobic, didn't help at all.. I see also you have insommia, I do also.. I go to a "sleep study" center next week-end..
5 Oct 2012
Im 35 & have been dx w/ fibro & disk disease in my neck 4 abt 10 years. For years I was put on antidepressants for pain but no help. Tried neurontin w/ some sucess 4 some years but side effects 2 bad. Tried lyrical, sevella, ultram, loads of sleep pills, elavil, other nerve pills for sleep & slews of everything n between. If feel I have been their guinea pig & it caused me to have loads of weight gain & other symptoms usually worse than fibro. Current pain Dr has me on narcotics w/little side effects, lunesta, elavil at night, topamax(which helped me loose a ton of weight), & requip. Recently found out pregnant so taken off some narcotics, elavil, topamax & requip.
3 Feb 2013
I am in your same boat. Lyrica makes uvgain weight, tramadol helps for pain , accupuncture helps. I would get so tired I would fall asleep while typing. Just got put on a med called nuvigil for energy but insurance is fighting it. Took it for a few days full price and felt like a human being. I have tried every pain med in the book and now just keep an energency supply of lortab so I don't call in too much for work. I was diagnosed with FMS as well and my pain is mainly in my legs. All fibro people talk about the extreme pain in their hands and hurting ti be touched. Have u looked into chronic fatigue syndrom as well? It matched my symptoms more and doctors seem to be more open to treat it. I just switched to prozac so well see. I loved lexapro but ws taken off of it when told I had fibro. Might go back to it if prozac doesn't make a difference.
I need to ask you if you have gotten a sleep study to test for sleep apnea. That is very common and could account for you beign so fatigued and even falling asleep. And lack of good quality sleep can affect you physically as well as put you at risk for far more severe diseases. Ask your doctor for one. Given your symptoms, you would qualify for the test.
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Thanks so much for commenting
I was on soma a while back & it literally put me in a "soma coma" so to speak. I slept for 3 days straight. I really wish there were something my dr would try me on that would help with the pain. I do feel a little better when I can get out walk some, but the Ms. weather is not allowing me to do that right now. Way too cold. I will try the ibuprofen as you suggested.Again thanks so much for comment & info.
Hi, i myself am having trouble finding the right meds. I was recently told by a new neurologist i have fibromyalgia. In the last 2 years, i was told i probably have ms... I also suffer from very similar pain, mostly in both arms, upper back and neck (altho i did have major issues with my lower back for about a year were i could not bend down at all)extreme burning sensation in my arms, tingling in arms, feet and back. I have lot of headaches/migraines and i am extremly tired all the time, even after an 8-9 hour night sleep. I have a multitude of blood test done, all normal. 6-7 mri's of my brain, spine and cervical spine (they found hyper flair signal lesions in my brain but they haven't changed at all in 2 year, therefore doc says it's not ms... ). I also suffer from chronic sinus infection (have a great remedy for that one now!) and ibs, sensitive skin and not very tolerant of chemicals and medicine and pretty much everything else on the list of fibro symptoms.
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I have tried lyrica at night... too tired (i mean even worst then usual) i have also tried clonazepam 0.5mg at night to sleep and relax (work well, not tired in morning but does not take away muscular pain... it did reduce headaches tho as i guess you sleep better, vicious circle and all!) and i just recently tried Elavil only 10 mg at night (supposed to boost un by 10 every week till at 30mg. There is no way to function on that. I felt so groggy and drugged for the last 10 days... the side effects won't disappear at all and didn't help with the pain at all. I am lost in all this, i just want a normal life back, or as close as i can get to it!
I have chronic fatigue and fibermyalgia. I take Savella and Provigil. I can't say enough good about them. I was unable to take care of myself, could no longer work, and had to retire. My children and friends took care of me. I am so much better now. Savella came out last year, and is the first drug made for specifically for all the symptoms of fibermyalgia. Provigil is a stimulant who's principle use is for sleep disorders, but works wonders for me.
I have gone on a cruise, 2 vacations, babysit my 6 mo old granddaughter, learning carpentry, am able to maintain a relationship, and trying to reorganize my house. I have to pace myself, but the pain and fatigue are manageable unless I overdo and don't pace myself. I, also, have to be able to sleep as much as my body says it wants, or I will be whipped and hurt. But I am very happy with the improvement, and have been smiling for the last 9 months.
Good Luck
I have chronic fatigue and fibermyalgia. I take Savella and Provigil. I can't say enough good about them. I was unable to take care of myself, could no longer work, and had to retire. My children and friends took care of me. I am so much better now. Savella came out last year, and is the first drug made for specifically for all the symptoms of fibermyalgia. Provigil is a stimulant who's principle use is for sleep disorders, but works wonders for me and helps my energy levels, also. I have always had insomnia. I take 1/2 of a generic Ambien most nights to get to sleep. It is usually enough. If I wake up after a few hours and can't go back to sleep, I live with it, because it doesn't happen often.
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I have gone on a cruise, 2 vacations, babysit my 6 mo old granddaughter, learning carpentry, am able to maintain a relationship, and trying to reorganize my house. I have to pace myself, but the pain and fatigue are manageable unless I overdo and don't pace myself. I, also, have to be able to sleep as much as my body says it wants, or I will be in pain and exhausted. But I am very happy with the improvement, and have been smiling for the last 9 months.
Good Luck
PS Sorry. Didn't mean to enter twice. Wanted to say that I also took Cymbalta before the Savella, and I can't begin to tell you how much better I feel now.
i agree savella is a wonderful drug for fibro,but it ran my blood pressure shy high !but it helped with the pain!but it had run my bp up too much and mine runs low!i just want some of myself back!soma's worked for me but my pm won't give them any more due to them being so addictive!
thanks for your in put!blessings!
I know everyone's body reacts differently, but I had problems with my blood pressure too. I lost almost 50 pounds and started walking. I no longer even have to take the medication and I am on the Savella still.