Christie00And what symptoms did you have with exception of bulls eye rash and were you ever diagnosed incorrectly because you did not have the rash? I have had an MRI with a lot wrong (like white matter changes ect) but no lesions and report said "suspected MS but no active enhancement at this time) If anyone has a story that could help me know more I would greatly appreciate it. FYI I have also been tested other mimicing diseases such Lupus, HIV, hepatitis a, b & c, syphillis, and they were all negative. Only thing to confirm M.S. would be lumbar puncture to rule other diseases out... I have no insurance so am self pay with my neurologist... any info would be greatly appreciated! Thank you!
How were you diagnosed with Lyme disease?
- Posted:
- 4 Nov 2011 by Christie00
- Topics:
- lyme disease
Details:
Responses (3)
Anonymous 4 Nov 2011
Hullo Christie!!
I don't know if this will help you at all !! But I was tested for Lyme years ago.
It was very expensive (even with good insurance!) I did not have the bullseye rash either, yet I got tested nonetheless. I saw an Infectious Disease Specialist who was just positive it was Lyme. He took so many vials of blood I thought the dude was embalming me! They must test your blood three separate times. Were you tested 3 times?
I'm so sorry you are having such a difficult time being diagnosed. What, in your secret heart, do you think you have? What do your instincts tell you?
It turned out I did NOT have Lyme by the way.
MS can be detected through an MRI or so I was told by a neuro, but that was ten years ago, so I could be wrong, I am frequently wrong!
Best wishes Christie!!
4 Nov 2011
Well you had me at "expensive even with good insurance" lol. Oh my gosh why so much blood was taken? LOL. I don't know whats wrong with me. All I do know it is neurological and affects my brain and body, I have symptoms of autoimmune disease and like I said on MRI said suspect MS but when my RPR kept coming back reactive but confirmatory always negative I thought in my heart of hearts it was lupus. With the achey muscles and all. But that test for the antibodies was negative. So I don't know what to think. I wish my doctor put as much time and effort and concern as I do. LOL. Yeah right! lol. Thank you for your input though. :)
LaurieShay4 Nov 2011
Hey Christie,
As sweetlemon said, Lyme disease is detected through a blood test and can be asymptomatic in the early stages. The cure for Lyme is cheaper than the test. 3 weeks of doxycycline and good to go unless it is progressed then I think it takes IV antibiotics.
Laurie
Christie00
4 Nov 2011
Thank you, it probably is not. I will talk to my neuro about when the next MRI is at my appointment next month.
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Hi again Christie!
I know, right, large American dollerz gurl. But that IDS (infectious disease specialist) insisted that three separate tests were neccessary!! He was right, to determine if tis lyme, one must submit to the embalming. Ugh, I loathe watching all that blood going into those vials, ick.
My doc just whipped out the Lupus word on me a few weeks ago too. We've a lot in common!!
Do you get a rash on your face (in the shape of a butterfly)? That is (supposedly) one of the hallmarks of Lupus, although not all have it. I certainly don't.
I know docs can be so dismissive, can't they? Is your Primary Care doc a goodie? Hope so!! If not, find a new one Christie!!
Best of luck gurl, I shall keep you in my thoughts,
Thank you darling You are always in my thoughts and prayers as well. :) No I don't get the butterfly rash but everything else pointed towards it, I am just lost and my neurologist stinks. With an MRI report like I had and she didnt schedule me till 3 months later and then moved it back cause shes out of ton or on vacation or whatever doctors with tons of money do. I know... Im complaining again. Lol. We are about to move to another city and I am gonna look for a GP there and maybe a new neurologist idk.