I was in a study for Rituxam for over 5 years but felt like I had built up a tolerance to it. In hopes that one of the newer RXs would work I reluctantly came off the study & started Cimzia around Feb (9 mths ago) but have not had any relief so my RA Dr is going to try me on Actemra. I have a history of ulcers, skin rashes and have had MERSA so I'm very concerned when reading the info about this drug. I know I probably would not try ANY RX if I worried about the "side effects" & my Dr didn't even seem to be aware of these things being an issue when I mentioned them; but I just wondered if anyone else has tried this new med. Any input would be greatly appreciated.
17 Feb 2014
I've been on Actemra for two years. I have gone from a sed rate of 28 (off the charts) to 2. I am practically in remission. However, I have never been so sick in my life. I am constantly battling colds and sinus infections. I had pneumonia over Christmas. My immune system is nonexistent. So much so, that I am weighing the options of living in pain versus no pain, but sick all of the time.
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I would love to join if there is a support group for actemra?
0 answers • 24 Jan 2014