I was in a study for Rituxam for over 5 years but felt like I had built up a tolerance to it. In hopes that one of the newer RXs would work I reluctantly came off the study & started Cimzia around Feb (9 mths ago) but have not had any relief so my RA Dr is going to try me on Actemra. I have a history of ulcers, skin rashes and have had MERSA so I'm very concerned when reading the info about this drug. I know I probably would not try ANY RX if I worried about the "side effects" & my Dr didn't even seem to be aware of these things being an issue when I mentioned them; but I just wondered if anyone else has tried this new med. Any input would be greatly appreciated.
17 Feb 2014
I've been on Actemra for two years. I have gone from a sed rate of 28 (off the charts) to 2. I am practically in remission. However, I have never been so sick in my life. I am constantly battling colds and sinus infections. I had pneumonia over Christmas. My immune system is nonexistent. So much so, that I am weighing the options of living in pain versus no pain, but sick all of the time.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
I was on Remicade for up to 9 years. Changed to Actemra after too many bad days per month on Remicade. Now, after 3 load-in doses of Actemra, ...
1 answer • 3 Jan 2012
0 answers • 8 Jul 2012
I have had RA for over 3yrs tried methotrexate and sulfasazine didn't work, humira worked for awhile and simponi didn't work at all... And ...
3 answers • 25 Mar 2013
I would love to join if there is a support group for actemra?
0 answers • 24 Jan 2014