I am new to this group and so happy to find other people I can talk to. I am from a small town with no support. I travel over 1 hour to get to the hospital. Sometimes I feel like I am the only one going though this. I have been on ketamine for over 1 year for degenerative disc disease. My treatments consist of going in the hospital every 30 days for about 6 to 7 hours. I receive 75 mg of ketamine in a IV for over 6 hours. Pain relief last for about 4 weeks for the 1st 60 days and then it get to be shorter as time goes on until I have no pain relief. The Doctor then ups the dosage and I start all over again. I am afraid that I will use up the ketamine limit and I will have no pain relief.
15 May 2010
Welcome cherie1957. We are a good bunch here so feel free to talk about anything at all. Have you ever tried pain pills instead? Dilaudid and Oxycodone are pretty good but unfortunately can be addictive. I don't know a whole lot about Ketamine, what does it do for you? I am curious because I have had 5 back surgeries and 22 other surgeries as well as Fybromyalgia and am always in pain. Does it help alot with pain? Please advise. Thank you and hope I have helped too and again--- Welcome to our community.
15 May 2010
Me too! Since we use the same avatar, I feel like I know you already. I'm curious about the treatment you get. On top of torn, leaking black disc @ L-4 L-5, I shattered 2 vertebrates @ L-1 and L-2. Now I'm having problems with the hardware and the bad disc was re-injured about 2 months ago. Been on and off opiates for years. The longest I went without them was 6 months. That was due to a procedure (Radio Frequency Thermocoagulation) that really numbed the area for a long time. I would LOVE to find pain relief that lasted 4 weeks! As to your concern, even if you do build a tolerance for the ketamine, other meds will work for you. Once your body adjusts being off the ketamine for a while, it should become effective again. There are so many good medications to help with chronic pain. Don't worry. Ask your doctor, they will be able to keep you as pain free as possible. It sounds as if you have a very caring doctor. Good luck to you and welcome to the forum!
16 May 2010
I know what you're going through with back pain. I've had bad back pain for 2 years now. I've tried percocet for pain relief, it worked for about a year and after that it started being less effective for pain. My doctor even tried me on oxycontin which had the same results. I am now on hydromorph contin 18mg and cesamet. The cesamet works really well for my pain relief.
16 May 2010
I have had 2 spinal fusions, 1 in 2002 and another in 2004 . Both of them failed. Since then I was in consent pain 24 hours a day. They tried so many drugs on me and none of them worked. I had to give up a job I loved and I had to give up driving. All day long I was in bed crying, finally in 2005 my primary doctor put me on Ocycodone 100mg and other drugs for breakthrough pain. I was still in pain and laid in bed all day. After about a year I started thinking about ending it all. All that medicine took away my life. My primary doctor finally told me that she couldn't do anything else for me. I went home and made a plan, wrote some letters to my children. As I was sitting at the table the local paper was on the table and I still don't know why I picked it up because I haven't read it in a year but when I opened it up there was a full page ad on a pain clinic about a hour away. That was my 1st glimmer of hope in 4 years. He is a wonderful doctor along with his staff.
He works real hard at keeping me pain free, he saved my life. He weaned me off all my medication ( 14 different meds ) and we started over. It has taken a while to find the right meds that help with my pain. In 2009 I was one of 1st patients to be offer a chance to try the new ketamine infusion program at the hospital that he was starting up. Right now besides the 75 mg of ketamine every 30 days, I wear 2 Fentanyl patches, they total together 62 mcg. Also I take 10 mg of methadone for the breakthrough pain every 8 hours. There are some months where I can go any where from 4 weeks pain free to being in pain 24/7. I never know with the treatment. When I have no pain relief from the ketamine, my doctor will up the dosage and we start all over. I am not complaining, I know I am very lucky to be in this program. I guess I am scared, what if there comes a time and he can give me no more. In the past 2 years I have had 2 discs in my neck collapses and I can not hold my neck up without a brace. They want to do 2 fusions on my neck but my chances are not good because I have all ready had 2 failed fusions in my back. I have also started having a lot of pain in my legs and have had trouble walking. I have taken some falls, the last one I had 10 staples in my head. I feel like I should feel 100 years old instead of 53. I live with a wonderful man who takes really good care of me but I know he is getting tired of this. I met him just 2 months before my back pain start and he has been by my side the whole time. He retired 2 years ago and our dream was to travel but I can't even ride in a car for a hour without being in pain. He is finally taking 1 month vacation with his friend but I know he is worried about leaving me. I am so sorry about writing all this it's just I have no one to talk to. No one that understand what I go through everyday. Thank you for writing me. Cherie
3 Nov 2010
For years I've been on 350 Mikes Fentanyl /72 hrs; 60mg oxy BID/75 oxy for breakthru pain. with minimal success. Cervical stabilizations and lumbar
stabilizations. (3 of 7 surgeries in the last 10 years) Best temporary relief was with IV ket at .5mg/kg/.5hr. I feel so good I sometimes think a miracle has taken place. Other times I just have sex with my wife.
30 Mar 2012
hi.i have had nerve caughterisation twice now ,it worked the first time for six months .then had it done again and found no it hasnt worked.am on a number ov tablets inc morphine .diazepan.etc .constant pain all day and every day.now the pain managment team want to try ketamine on me.i have had all treatments done on me .all i want is to have a normal life.will ketamine work for me ? my pain out ov 0 to ten is ten.
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