Hospitalized with a mysterious rash & swelling from the waist down?

Mary, both you and your brother are in my thoughts and prayers, God Bless, mindy

Thanks, Mindy... Mary

Oh, girl you better let me know how that goes with your port! Billy damaged his when he fell. I hope it is ok. Please let us know. I haven't called my brother yet, shall be soon . You take care of yourself you hear? Thanks for the love, I can feel it... Mary

Hi Mary, I'm hoping Billy is doing ok and that your still feeling the love and well wishes from everyone. I went to the infusion center yesterday and the surgeon came to my room and showed the nurse how to and where to put the needle into the chest port, there was a problem after the needle went in when the blood return would not come out. But after a bit of teasing blood started to come out and then they flushed it and no stinging was felt, I was so happy everything went to plan and I didn't need to have anything else done. My Headache specialist has let me down once again, and there was no new orders left for me so I phoned his office up and left another message and was told he was in with a patient and that he would call back but never did yet again. So I am left again to suffer the weekend with the migraine, I am really trying hard to be patient with him but can not believe he is still making me suffer the way I am.
Anyway take care and I pray your brother is better today, Liz.

Hi Liz, gald you rinfusion & port sent well, Sometimes they can be a problem. Can't figure out your doc about yur migrains tho. What's the deal with him? Is he a neurologist of what? He should have at least called you back. Maybe he is not getting the message. Maybe a new way of approaching it. Tell them how many times you have called & wonder if he is getting the messages or what! May get a receptionist mad at you, but who cares about her anyway. It you we care about. No cange with my brother. Am going to call him in a bit. Weill let eveyone know. Thanks hon, Hope hour migraine gets better. I had them for over 35 years! They are horrible Immetrex stopped mine, but that was injections & I hear they don't make it in injectable form any longer. Too bad, because it worked! Good luck... Mary

Thanks Mary,Don't get yourself down because if you do that who else will I have to talk to. I was counting on you and a few others to keep me entertained whilst I am in the hospital, I will be taking my crafts to do whilst I am in there but I will still need company to get through the tough times. I never sleep when I am in the hospital, I am taking some DVD's to watch with me and some music to help me relax. Have you any hobbies you like to do? Have you got a favorite movie, Mine is Pretty Women with Julia Roberts and Richard Gere, me and my daughter have watched this movie so many times it has become her favorite too. Anyway try not to worry too much, I am sure Billy will be ok. Hospitals don't normally send people home, if there is anything that will be a threat to his life. You need to look after yourself first, otherwise you will not be able to help the people you want to. So find something that makes you happy, and stay away from the blues. Take care, Liz.

No he is not because of the allergic reaction he supposedly has to whatever. He is red all over & swelled up aALL over. More than usual. It's a rash too & he has scrated it open which is even scarier now he has open wounds. I don't understand his doctors at all. All they are doing is givning him pain drugs, benadryl & massive doses of lasix. Grrrr. Needs antibioitcs. They need to culture & findout which one he needs. Probably Levaquin, but have to make sure he's not allergic to it first. He was on Cipro which is in the same family as Levaquin.

I hope the docs know what they are doing!! It certainly sounds like he needs iv antibiotics! But, I'm no expert. He is still in my prayers lady.

Thanks Sis, I agree, but he could go into anaphylactic shock if they give him something he's allergic too. I not a professional, but sounds like I know more about his condition, & what needs to be done than his dumb doctors at this point! Will be checking up with him soon & will give you all an update. Thank you for being there for me... Mary

Our Dr. Mary, off to med school with you. I agree, it does indeed sound as if you know more than the docs do at this point!
Love,
Lara

Opening up is not bad, that means that they can get inside and manually attack the MRSA. Although he may not be getting antibiotics at this time, he is getting "packed" where the infection is, and it is filled with silver which is a type of antibiotic. Kills MRSA. Really open is better than closed. Been there done that, and after the Vancamaycin which is the only IV med known to fight MRSA, they didn't give me anything either. Just the packing twice a day. Also there are oxygen machines, can't think of the name which put you under bariatric pressure, immersing the entire body in O2, which kills the bacteria and encourages healing. Is he near a wound care center?

hey girlfriend! I just talked to brother & all is the same. Hasn't even seen a doctor today, Go figure! May have to hop a plane out of here other than we are in a snow storm. Could send Dzoo down there & straighten them out! Now there's an idea!

hi Ellen, no, his wound from the surgery isn't open. He says it isn't even red, but they put in a drain tube & got 600cc of fluid from where he had surgery! The MRSA was found in his urine. I know all about the open wound healing. Gary had it for 3 strait years with 8 debriding surgeries. I was his nurse. Oh my. Would hate to see that happen to my bro. He has no one to help, except visiting nurses of course, when he evers gets back home.

You know Mary... he may look forward to those "visiting nurses" ;-)

Ellen, hmmm, knowing my brother you are probably right! ;o)

Dear Mary, first of all I want to apologize... for some reason I put down Tee's name when I was writing you about my best wishes and prayers for your brother. I just now noticed it. I guess because Tee's response was right before mine?? Anyway... so sorry...
Next... I do not understand why the docs are not putting your brother on another antibiotic. Do you not know the name. They usually treat with potent if antibiotics. Do you know the name of the one to which he had the allergic reaction?? They should know of another antibiotic with which to switch him. And why Lasix? Will they not tell you?
My dear... I will keep him in my prayers... pup

Thanks Pup, I knew what you meant. The laxis is because e was all selled up so bad. Hate to get to personal, but his legs looked like piano legs, & his pivates were the size of softballs. Ouch!!! Said swelling has come down some. He was on laxix at home & has been for years for his leg edema. I agree they should cutlure & get him on something by now. Makes me so mad! You know Hippa laws. Can't tell you anything except he is a patient there & that is it! Thanks for the prayers & good thoughts. It worked the first time, am so hoping it does this time too. Have a great day! ... Mary