i have lupus, on darocet not helpin at all ,doc refered me to pain clinic doc there gave me fentanyln patch and oxy working very well however he ordered back nerve test and mri when i went for follow up told no nerve damage and no more scripts till he sees mri i'm in pain what can i do as the darocets dont work dont understand i thought i was there for lupus pain not back nerve problems the pain doc says if the mri is normal he cant treat me does this sound right i thought he can treat me for my cronic pain .my lupus doc said the pain clinic would be able to do what he couldnt for me.is there anything else i can do or any othe type of doc i should be seeing
9 Mar 2010
my suggestion is to go get a second opinion. either that or you need to get checked out for fibro mialgia. i hope this helps dear. but your spine has a LOT of nerves , its interconnected through your nerves through your whole body, this could really be about your lupus but your back is picking it up... i just wanted to let you know this, this is how they are able to do epiderals... because your back has the nerves from everywhere in it! so, get a second opinion or get checked for fibro mialgia as well. hope this helps, i can't answer AGAIN because it wont let me, and im so sorry if it doesn't.
9 Mar 2010
you need to find a new pain management clinic and level with them about your pain you don't mind going through their test but hey give me a break you have records from a prevouis doctor that sent you there you have a comfirm case of lupus and possible fibromyalgia i really feel for you i had to have a nervous breakdown to get help. i will pray for you. missy
9 Mar 2010
Was this doctor a physiatrist who mainly deals with back and spine pain and nerve damage or a anestheseologist (spelling) who deals with pain all kinds of pain. When I left my pain doctor who was an antheseologist and the head of a pain management clinic in a major hospital in Philadelphia Iwas refered to a pain management doctor that until the second or third visit because she did write my pain meds for me but when I asked if I could change to something other than percocet because of the tylenol factor I had taken percocet for 5 years and decided it was time to think about my liver and kidneys.
She told me she wasn't that knowledgeable about pain meds I was stunned then she told me she was treating my back pain I had told her originally that my back hurt some times and she went through the whole thing with nerve conductions and Mri's then it came down to the real problem she was not a pain management doctor she took care of patients who needed back therapy and nerve blocks this wasted alot of my time money and needless to say did nothing to help me with my pain issues. Before you go any further make sure that you are seeing a real pain management doctor who treats all kinds of pain Lupus ,RSD fibromyalgia, spinal cord injuries etc. You will find this kind of doctor in a major hospital with a pain management clinic. Be aware of pain docs in orthopedic offices they are not what you are looking for. You maybe even able to consult with you primary care doctor he/she may be willing to treat you I now go to my Primary care doctor I signed a contract and agreed to random drug testing. He manages my pain meds and my anti-depressants and anxiety meds. Hope this helps Good luck Barb
10 Mar 2010
Primary care doctors are having to fight to give out pain meds for chronic pain. The pain clinic doctors and the federal government are fighting to away the doctors right to determine you need it. This is why he is backing off. He is in the middle of a bunch of bull shit that activist are pushing for. My doctor told me this. He knows of my condition and will give me what i need for as long as he can. I go to the pain clinic and the pan clinic doctor told me he will be giving a nerve drug i failed and no more pain meds. I went off on him and told him I will inflict the pain i feel upon him personally if he dose. His eyes bulged out of his head and i said do not screw with me. I am at my wits end explaining time and time again what works and dose not. You will push me over the edge. He did not right the scrip and did not mention it again during my back shot sesoin.I say --- these dam doctors who are afraid of doing the right thing.
The drugies of the 60's and 70's started all this because the lied about there pain and got the big drugs then sued for being addicted. I stand my ground. I have the medical issues to open my mouth and fight for my right to be comfortable insted of having to live a life in pain heck I even singed a contract stating i understand the issue of possibly becoming addicted and having long term issue. I stated i do not care I can not live like this any more. Being in chronic pain has taken it toll on me. I explained i would take my own life if he was not willing to work with my proven and documented issued. He is working with me. Seriously I can handle the pain with out pain meds. So perhaps if you take my stand they will help you, you have to be firm and demanding with them bastards.I hope this works
10 Mar 2010
I was also sent to a pain clinic and very disapponted with how they handled my stiuation. At first the doctor was great. Seemed like he really cared about his patients and was sympatheic for all that was having to deal with chronic pain. He started me out on hydrs, when those didn't work changed me to oxy. When he did the neve conduction test I was diagnosed with neuropathy. Then came this new medication called Avinza. It is time released morphine and it changed my life. Matter of fact I was one of the first patients to take it. No more of the crazy side effects but I do take ultram for breakthrough pain. Then one day out of the blue, he writes major depression on my record and sends me home with 15 mg of ms contin. I was so sick going through withdrawals. I called my medical doctor and he put me back on the Avinza. Later I heard the pain doctor was taking cash under the table so he kept thoes patients. Find you another doctor. Sorry so long everybody. But I hope maybe this has helped some kfaines. Good luck... kim
14 Mar 2010
My neice was diagnoised with lupus also. She had went in one day for a complete physical and they said everything was fine. she woke up that night 3 times her size and was taken to the hospital. No one there could figure out what was wrong with her. My sister her mother at that time was a receptionist for a physciatrist and all he had to do was take one look at her and he knew immediately what was wrong with her. She has had this terrible disease since she was 16. She is now 47 and the dr. gave her predisone and demerol for the pain. I don't know what kind of pain meds. she recieves now but I know that lupus is very painful and that there should not be any need for you to have to wait on an MRI to come in. Doctors just don't care anymore, seems its all about the money they can put in their pockets. Not what they can do to help you out. SO SAD. BUT TRUE. This pain Dr. can treat you even if your MRI doesn't show up anything wrong.
If he knows anything about lupus then he should no that pain is involved with this disease. Just rediculous. No one should be in pain, I thought thats why they made pain pills for was for pain. I noticed that all these movie stars have no problem getting meds. Do you have to be rich so you can hire your own? Whats going on with drs. these days. Just fed up with all of them. Hope you get your meds. No reason for you not to. Just say I am in PAIN I NEED SOMETHING THAT REALLY WORKS!! Shrinks can write for pain meds also.
18 Mar 2010
Sorry to hear of your situation. That really stinks to say the least. Hope something has changed by now. I am a recovering addict who had an addiction to opiates for chronic pain. I was put on suboxone to help with the withdrawl, but to my surprise, it manages my pain as well. I find it to be a miracle. Maybe it could help you? Dont know, just wanted to put it out there. Hope you are in less pain and found a better doctor or clinic. Best of luck.
29 May 2010
I am at a loss. I cannot believe that your PMD said he could no longer prescribe these meds for you! Case and point... I see a PMD for chronic abdominal pain. They ordered an MRI of my back because, at times, my pain radiated through to my back. The MRi was normal, but I still get my meds every month just like before. I have adhesions from multiple surgeries, as well as nerve damage. Just because they can't SEE anything, does not mean you are not in legitimate pain! That kills me. I would suggest finding another PMD, or in the very least, ask your current PMD why are they not treating the original problem for which you came for in the beginning. It makes no sense to me whatsoever. It sounds like they are trying to cover their own butts for some reason. I would say to you, DEFINATELY find another doc. One who is somewhat sympathetic to you and who will not judge you. One who will actually do some good. Hope this helps. Heather
12 Sep 2010
I have SLE also. I take plaquenil and I often have to take steroids which I hate but they do help. If you are ever on steroids ask your dr for a sleeping pill too because I find that steroids make it very hard to sleep. You will have to have many much needed blood work done too. I have been a survivor for 14 years and I am 32. It is a very hard disease to live with and many people, even your loved ones, do not understand it or know what it is like to deal with lupus. Your pain dr sounds like an a**hole! I finally started going to a pain management dr for my pain too. They can't really "treat lupus" pain but since I have bad back issues too they help me. Lupus is a disease that a lot of drs do not really know about unless they specialize in it. I am so sorry you are going through this. I would def get another pain dr!! Yours sounds incompetent. Tramadol is like water after you are on it for a while. After years of being on it I had to get something stronger.
Many drs now a days are very hesitant about giving out pain meds because of the abuse which really sucks for people like us who really need them. Plus the govt is throwing down on drs hard these days about them too. My pain dr is a great one luckly but it took me a really long time to find her. Oxycodone really helps I find. I do not have health insurance which is awful because again lupus is so expensive to treat but most of these pain meds such as oxycodone are generic and you can get them at Walmart for pretty cheap. I recommend doing something lightly active. I knit, it helps my joint pain a lot and I also stretch on a workout ball everyday and it helps a lot! Taking a hot bath with epsom salt does wonders! There are many educational information out there. If you haven't already, go to the Lupus Foundation of America website and request phamplets for your family and friends. They also can help you with getting your meds at little or no cost. They are also an amazing site to help you with any questions you may have. They also have support groups and dr referrals. I would join also, they ask for a donation but since lupus is a very expensive disease you do not have to pay anything. You will get lots of support and helpful information along with Lupus Now magazine! Good luck!! I wish you the best!
22 Nov 2010
I have always found that the pain meds have a limited window of usefulness. I have also used massage (light) and acupuncture for pain management and found it worked better than any combination of meds I have tried. Problem with the narcotics is huge potential for getting addicted AND making really poor choices and messing one's life up worse than necessary. See if you can find an acupuncturist. I also used hypnotism with some success for pain management. Good luck.
26 May 2011
I have actually found that going to find the cause of the pain is the best way to take care of the pain in the long run. So many of us are so keen on going to a drug because it's easy and it's fast but all it is doing is covering up the pain. After a length of time that pain medicine just won't cut it anymore because our body becomes so accustomed to the dosage we are at.
This past year I have gone to see a Maximized Living doctor in Minnesota and since we have been correcting the cause of my symptoms I no longer suffer from headaches on a weekly basis. My allergies are nearly gone and I have so much more energy. This is not the result of taking any drugs.
I urge everyone to go find a Maximized Living doctor in your area and find the cause of your problem.
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