from a flare up and was taking Prednisone. Oh was that awful. The mood swings and depression he experienced was to much to bare. My question is what alternative medicine do docs prescribe for flare-ups? instead of prednisone. I appreciate your help.
15 Feb 2012
ive had ibs since puberty sometimes significant and have never taken prednisone which is usually prescribed for crohns disease which is totally different. please try to clarify your sons diagnosis as soon as possible and if it is truly (i hate to say"Just ibs"for it has cause me much pain) but it is not a functional disorder for example a colonoscopy or sm bowel study wont show structural changes as in chrohns disease. I've tried many things(im 55 now) and the helpful things were gluten free diet dairy free diet but drug wise a smooth muscle relaxant such as donnatol and librax as soon as symptoms start provided normalization within a few days. I have an anatomical deep bend in my lower colon that i believe contributes but the librax helps that. Search "sensitive gut" for more info. if your son has not had a colonoscopy and your dr. is prescribing prednisone- question him, or get a new one.
at 14 prednisone should not be the answer because of the serious side effects. IBS may be a life long irritant that can be controlled in at least one or a combination of more benign tx than prednisone. God bless you, and there is hope. In addition if it is crohns he's not treating it correctly. Find yourself a board certified, highly recommended gastroenterologist for sane treatment of either of these disorders. I hope this helps.
16 Feb 2012
I tend to agree Angielee, the one area where you can take control yourself is in his diet. He won't like it much especially at 14 years but a gluten free diet no dairy products at all. I once worked with a fellow who eventually found out what you now know he went through 'L' until we managed to get him to the doctor. His diagnosis came in about a 3 weeks he literally ate it up once he knew whaat the problem was. Best of luck, Cush.
16 Feb 2012
I've had IBS since my twenties and it is not fun; however, even though I had the Celiac Disease blood test and it came back negative, I've since learned that you can still be 'sensitive' to gluten, even if you are not 'allergic' to it!
I find that I just really feel better when I don't eat wheat products or dairy.
As an aside, I found one brand of ice cream made from goat's milk (I know, that doesn't sound good!) that is super creamy and I think tastes great!
It is called LaLoo's (not sure that is correct spelling), and I've gotten it at Whole Foods and also health food stores. It IS expensive, I've paid up to $6.00 for a pint, but their Dark Chocolate flavor is to die for!!!
I also found a couple of brands of bread that are gluten free and (to me) still taste good: udi's Gluten Free Foods, WHOLE GRAIN BREAD, www.glutenfree.com and another one made from Rice. I don't have this one in my fridge right now, so would have to get back to you with the name.
Many times, you can find these products in the freezer section of your regular grocery store (usually with the other 'health' foods). If not, Whole Foods carries most of them.
***I'm sure everyone in the IBS group could pass on tips to you, if you want them.
Best of Luck to you and your son,
Mary, the madhatter.
16 Feb 2012
OOPS--- FORGOT TO TELL YOU--- if the doctors want your son on cortisone steroids, ASK them to use HYDROCORTISONE, either as the generic, or name brand of Cortef. It is the most natural form (and the cheapest!), but most docs don't recommend it, as the drug companies don't hold a Patent on it, so can't make lots of money off of it!
***Dosage would be totally different from Prednisone or Dexamethasone--- so make sure if your doc writes an Rx for it that when you take it to the Pharmacist that you tell him/her what dose of Prednisone your son had been taking, and ask them if the dose on the new Hydrocortisone Rx equals it...
PS: I have been on a 'therapeutic dose' of it for almost twenty years now (for an adrenal insufficiency--- NOT for IBS!), and have had no side effects (except for weight gain). The therapeutic dose for hydrocortisone is 30 mg. or less--- and there should be none of the other nasty side effects of taking a cortisone steroid, if you keep at or below this dose.
Hope this helps,
Mary, the madhatter.
9 May 2013
Any non steroid anti inflammatory is better for you than prednisone. Even though our bodies produce about 5-8mg naturally, this drug can really do a number on you systemically,and causes a host of other issues. Imuran is a non steroid that people really benefit from, methyltrexate is another one. I did not benefit from this (methyltrexate)but a large number of people do. If the inflammatory issue is severe and needs regular treatment, you should think about Humira or embril. I've been on Humira for a year and I've gone from 60 mg of prednisone to 20mg and have recently started imuran in hopes of stopping the prednisone completely. The prednisone has caused cateracts, twitching and I'm almost positive it's the cause of a thyroid tumor I developed. Humira is very expensive so you def need insurance. This medication also has some possible side affects and is an injection that us very painful. You give it to yourself every 2 wks. And has really helped me.$5000 a month though. God bless and good luck
- Prednisone Information for Consumers
- Prednisone Information for Healthcare Professionals (includes dosage details)
- Side Effects of Prednisone (detailed)
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