My hell began Sept. 2012. I felt weird, off balance, shaky. I just blew it off as though I had low blood sugar from not eating adequately. This symptom continued, I went to Primary who did EKG, fasting sugar & blew me off.
January 2013 rolls around, I begin having weird heart beats. Fast heart beats, arrhythmia. I was afraid, went to primary. He said I had anxiety (from just looking at me) & sent me on my way. I returned between 15 - 20 times before he agreed to do blood work (all the norm; thyroid, anemia, kidney function, etc) with no negative result. After my pleading; he agrees to refer Me to a cardiologist. I had 2 ECGs, too many EKGs, 2 stress tests & three holter monitors, cholesterol check, etc. after returning appx 20 times to this cardiologist crying HELP ME!! I’m told by cardio & electrophysiologist (who also viewed my charts) that i suffer benign PVCs of unknown origin & Inappropriate Sinus Tachycardia (whivh means benign elevated heart rate), and to seek mental counseling. I return to primary throughout the year for same symptoms… Nothing comes of it.
I still feel horrid at this point & it’s growing by the day, it’s now mid 2014, I’m miserable. Sick after meals, tired, anxious, burping; sometimes HUNDREDS of times a day, shoulder/back pain, chest pain, palpitations, pvcs, bloating, constantly on verge of passing out, feeling faint ALL the time… weak, Just 100% miserable & waiting to die.
Returned at least 10-15 visits before primary finally agrees that it may be gallbladder related, ultrasound shows no stones, he says to try to stop worryong so much. I return 4 times, he refers me for a HIDA scan of gall & results determine it’s barely functioning & requires removal. (I still question this one, now Nov 2014), I have removal January 2015. Not getting better and feeling like DEATH, I Return to primary at least 8 times, complaining of nearly fainting & being short of breath, tired, achy & burping, brain fog, inability to study, shaking, etc. He says I’m anxious & over reacting, but agrees on 4 hour glucose exam. He calls me to come in for results & explains that I suffer from reactive hypoglycemia. "Here is it! Your mystery illness diagnosis," he says. Basically, my blood sugar crashes after meals.. says there are no known causes & to change my diet, eat every two hours.. Cut sugar & eat protein. Keep in mind: I’ve been prescribed beta blockers, PPIs, xanex, anti depressants, had eyes checked, and so on, now to have SOMETHING found. But, my gut says: this isn’t all. I know it, I feel it.
I go home, puzzled! Still burping chronically. (Now told it is anxiety causing the burps... laughable!!! ) I'm sorry, even I can't explain this.
How does my sugar just deplete itself?? I’m burping because I’m anxious??
I make another appt. He FINALLY says I can see a Gastro! I go in, explain my anguish, she says let’s do upper endo. Once complete, she says everything looks great, except for the presence of gastritis. Tells me to await biopsy results… I receive a call Thursday 07/02/2015 that I have positive result for h pylori infection & need to begin antibiotics immediately. At this point, I’ve never even known of h pylori.
To date, I have researched h pyori (of course) and found it causes reactive hypoglycemia (which has no known causes, right??)… Also 90-100% of my other symptoms.
I am now on day 6 of antibiotic… Not feeling too good. Yesterday was pretty good.. Today not so much. I was told no treatment other than antibiotics can eradicate… Which I’m seeing may be false. If this doesn’t work, I will not do antibiotics again. This is my first time in appx 6 years on antibiotics… I hate medication!!
I am just so desperate After nearly 3 years of HELL, tears, stress, missing out, being afraid, etc. I have children who don’t deserve a mom that “doesn’t feel well enough” to go to the park.
God bless you all. I hope everyone is now in the best of health & has a full life!
** P.s any recommendations for a probiotic while on antibiotics? How long to continue? I've cut out acidic foods, what did aloe vera juice help with?