I also have fibromyalgia. FDA approved Savella for that, but it has the same ingredients as anti-depressants which are known pain killers. Still I wonder if Savella is particularly good for migraines
12 Nov 2011
Hi Sara, this is probably not going to help much but I too suffer from really bad Migraines and I have Fibromyalgia. I just wanted to say Savella I haven't tried and don't know anything about, but over several month's I have tried a host of Migraine medication to try and get some relief. The only drug that has given me a few weeks at a time with some sort of relief where the migraines are tolerable is an old drug called DHE. If you google DHE for Migraines it will explain a lot more about the drug and what DHE stands for, you might find it interesting.
Hope you don't suffer to badly from your migraines and hope someone answers with better advice about your question soon. Liz.
12 Nov 2011
I am wondering about Savella as well. I am currently on Cymbalta and want to switch to Savella because I feel like I am not getting any relief with Cymbalta for my Fibro. Migraines are a side effect of Fibro (yippy) along with so many other things. When I was finally diagnosed it was such a relief to have an answer to all of these illnesses I have had over the years. Depression another biggy.
I have found Maxalt to be the migraine medicine that works best for me. I have not had any problems with mixing it with my other medications when I need it.
Hope this helps,
12 Nov 2011
Hi Ladies, tried to respond earlier but had PC issues. Am female, 61 yrs, after a gazillion attempts with doc's etc. FINALLY got a diagnosis a month ago for Fibro. (also have Celiac) . Went on Savella about a month ago and it has been miraculous for most of my pain from back of head, neck, jaw, shoulders and down spine, hands, arms etc. It seems to work on the connective tissues that have hindered all my muscles, tendons, etc from being able to stretch out and relax and thereby able to have the strength back and the pain has almost ALL gone!! What seemed like muscle, joint etc pain was NOT, but the tissues surrounding them. If you do have Fibro I really recommend trying Savella, The side effects go away in a few weeks or less and it's well worth going through to the other side. So many "other" seemingly unrelated issues have also cleared up. I suspect your headaches could be caused by the same issues I had and if you do have Fibro it's really worth a shot.
Other blogs reports that those who tried Cymbalta and Lyrica were not pleased, but Savella is the newest (2 yrs) third generation for Fibro and many really find relief from the pain.
12 Nov 2011
Hi Liz, Jillynnie and Minda,
I gave all three of you votes up. Thanks for responding. I will look into the DHE. I used to take Maxalt, but I think because of my stroke and kidney failure (due the CT scans after the stroke), I have not been offered it.
My migraines got severe 24/7 after my stroke which appears to be the cause, so I don't think they are related to fibromyalgia.
I did have my fibromyalgia almost completely gone after gradually going on to a higher dose of Trazodone. How remarkable the relief, but now I am also going off of that due to my addiction to sweets. And the pain is greatly up all over my body. Had forgotten how bad it could be.
I'm also gradually going off of Effexor and going onto Savella. And I currently got a Butrans patch which is an opiate medication which has helped me with some of the pain. Also my migraines have been much better since i started the patch.
The reason why I'm changing from Effexor to Savella is because of the lack of sex drive.
Thanks again for your responses. I really appreciated them.
6 Jan 2012
Interesting question. I've suffered for 20 years with migraine headaches and never found a medication that would even relieve the headaches. I'd get 5-10 migraines a week. I have also suffered from fibromyalgia for 10 years + and was only diagnosed in 2010. I've tried all the fibromyalgia medication available with the same results... none. My PCP asked me to try one last medication (Savella) that he just got samples of at the time. After one week I started noticing an overall improvement in pain levels and an increase in movement. After about a month I realized that I no longer got migraine headaches. After 15 months I have had 0 migraines.
31 Aug 2012
I use Savella for my fibro and my lupus. It helps with the extreme fatigue and I really haven't had a major fibro breakdown for a year or so. I have been using Savella since it has been out on the market. The only insurance that I have found to cover it was Blue Cross/Blue Shield but then again I did have a 50.00 co-pay for the meds. To help with the migraines, I take mag oxide 500mg every day as well as using Lavender Oil on the side as soon as I notice that I am starting to get a migraine and it usually gets rid of it, I am medicine resistant to migraine medicine so I have looked to the more natural way to take care of things. Lavender oil has to be in the purest form... liquid and I place it behind my ears, on my forehead near each side of my eyebrows near my nose, a drop on each of the middle of my wrists and on the bottom of my feet. It's cheap and it works. if anyone needs help finding or obtaining lavendar oil, I can help. just let me know.
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