She often uses the wrong words when talking, and her short term memory is almost non existent. she is in denial. i forget sometimes and snap at her out of frustration, then i feel bad because she cant help it. its been 5 years since the accident. what can i do to help her accept her condition is real and isn't likely to improve much more so she come to terms with it? any advice on this matter would be greatly appreciated.
thank you to all who share their views
My wife has a brain injury, her ability to follow simple instructions is impaired, any advice?
- Posted:
- 3 May 2011 by tazmanbush
- Topics:
- head injury, head injury w/ intracranial hemorrhage and loss of consciousness
Responses (6)
3 May 2011
Hello tazmanbush. Life can really be a handfull, and often it seems more than we take. I can share this with you, and of course anyone else who happens to read this post. I also have memory loss, but not through a head injury, well, in some ways, it is a head injury, but one that was induced. My memory loss came through ect or electroconvulsive therapy. I rather not go into the how and where it was done, how frequent and so on and so forth. Its in so many ways, the word that I use is devastating. A good example, say reading the newspaper. I can read it, put it aside, then not long afterwards, have no memory of what was written. Much the same for posting answers here, on this site. I very much have to go back to previous posts, and reread what I've written. So, in a nutshell ha! thats me. Now what advice can I give you, no wrong word, help is a better one. Patience. As much as it might anger you, as you said, out of frustration, patience will help you to cope with her pain.
3 May 2011
Tazmanbush, welcome to this site. I too as Pledge my friend says have some short term memory difficulities. This site has been a life savor for me personally. It seems to actually help with my memory problems, because I have to try to remember who has what & why etc... My husband gets so very short with me also because he will tell me something & 2 minutes later I will ask the the same question or whatever. I try to explain to him I can't help it, but he still is having a hard time dealing with the fact that I just don't remember every little day to day details. I think if I had a wish, it would be that my husband would have a little more empathy for my problem & be more considerate instead of yelling at me because I forgot what he just told me. Just some thoughts...
Hi Mary. I just now saw your answer/comment to Tazmanbush. Our cmpter, can't figure why I am not getting notifications, such as yours when you know via e-mail that someone has answered this question. And its checked. Hmmm... oh well, a glitch, that will disappear. Its happened before and gone away. I didn't know that you had that problem Mary, the memory issue/thing. Good point though, what you said about the site being a blessing. I agree. It forces me to concentrate and so on. I am an avid cross-word fan. Ha! And I struggle and you know what? I love it. Every morning I take an hour for the puzzle. Been doing that for at least ten years. One thing that I've used for a long time, and this might sound silly, and I do it when, I'm alone, just the dogs. I talk away my actions... outloud my thoughts. You know... uh... putting on water for a cup of coffee. Instead of thinking it, I talk it out.
I do that sometimes too pledge. I haven't been on too much because of the surgery on my left hand. Been in so much trouble for using it, but it's hard not to! It hurts like the dickens. Can't wait til it's healed. Going to be months! Your friend...
Hi there Mary. I know about the ad. Thanks for mentioning it though. I went through the steps, thier questionaire, and then, the site, lays down the rates as to various programs that you and this site agree on. It seems 100% above board, but I know that you mentioned this for tazmanbush, but... beginning to ramble a bit, my trademark... I really dislike giving my payments for any reason on the internet. Take the IRS, now they will charge you for filing a paper tax return, instead of electroinc. Silly, to be charged extra, for filing via the USmail service. Ha! Who would have thought it. Times are a changing...
6 May 2011
Hello tazmanbush. Thanks for posting again. I started down here, because sometimes when I post a comment, in this case in answer to yours, it has in the past not done so, thats why I did it this way. No, you did not give me that impression, of being angry, short tempered. No, not at all. Actually, you explained yourself very well. Both the first time and the second. And we (speaking on behalf of Mary, shes a wonderfull lady, who gives of herself to so many people here) understand. I tip oy cap to you, for all the help, and I know, its a lot of hard work on your behalf, that you are giving of yourself to her. And, tazmanbush, I have two friends, one a man the other a waoman. Both severe dementia. I know, thier illness is not the same as what your girlfriend is going through yet, its the caregiving role that is much the same as yours. One of them remarked, I don't know who suffers the most, him or myself. Meaning the caregiver. Its so devastating.
Very nicely put pledge. Mary
24 Aug 2011
Hi sorry to here about your wife, im on my 6th year after tramatic brain injury at work, to say the least I at first had a hard time going from top management positions to not working or truly functioning. Your wife may be like me inside she understands what she is not doing correctly or saying correctly, it takes time but in the mean time use sticky notes to keep her reminded through the day small things like that truly help her feel more impowered and also keeps your head from blowing, My husband stuggles with things like that too. It isnt our fault but it isnt our husbands or families fault that they have a huge adjustment TOO! I have always said there is more than just one victim in my injury there are 5 my husband my 3 girls and myself. So dont beat yourself up too much but small things to help keep her reminded and keep her feeling more confident about herself really helps hope this helped some. I truly feel for what your wife and you are going through.
31 Dec 2011
Hello all.
I too have a TBI, memory loss, cognitive impairment, fatigue and more. It's unfortunate that there's so little information out there to help guide us through this life changing incident. It seems as though I may have been helped more than others in the area and I would like to share what I have done.
1. Cognitive Therapy - The woman that I see (and have been seeing for the past 7 yrs) has taught me how to adapt to this new lifestyle. She's also trained me how to remember things through lists, notes, etc.
2. Brain Games - You need to keep your mind active; crossword puzzles, Suduko, Scrabble, card games etc
3. Doctors - This is the hardest because there are not that many doctors that really know how to treat TBI. I found a fabulous Neurologist that has really helped me and now I also have an Endocrinologist that's great. You can't give up and you have to keep searching for the doctors that can help you.
Good Luck
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Hi pledge, thank you for sharing with me. i hope i didn't give the impression that i am angry or impatient, although when i reread my question i can see why someone might.
even though she was the one injured on jan. 19th 2005. we both received brain injures that day. i'v been right beside her every step of the way. she spent the first 6 weeks in the hospital. it wasn't until about week 5 that she even knew who i was. that was some very scary and lonely times. and i should add that although i refer to her as my wife, we are not married. and back then, as a "boyfriend" i didn't have much say about her treatment. by the time she went to rehab for her brain injury, they (the dr.'s and staff) knew i was the one to talk to. felt much better then but still unsure of her future.
i brought her home week 13 from rehab and have been by her for every dr. apt., therapy, kept her meds strait, so on and on.
Expand this post...
doesn't happen that often, once or twice a month on average i'd say. i forget and say something with a tone that is a little mean. i DON'T call her names or put her down, i just feel bad because i know she can't help it. i think i need the support group much worse than she does. i have been making this up as i went since the beginning, i mean , who thinks their going to wake one day and every thing has changed. your whole world flips in an instant. i need to talk to other loving caregivers and vent a little.
thanks pledge and mary, you too.