I would like to hear from others who have been prescribed Topamax for weight loss. Not so much those who have used it for seizures or migraines and experienced weight loss as a side effect, but those whose doctors prescribed Topamax as an off label weight loss drug.
I have personally been taking Topamax since March 1, 2009. I have gone from 295 lbs to 230lbs (to date) and continue to lose.
1 Jul 2009
I haven't used Topamax myself but there are two reviews on the link below. Hope it helps.
http://www.drugs.com/comments/topiramate/topamax-for-obesity.html
17 Jul 2009
i was perscribed topamax for weight loss and i have lost 10 pounds
does it make you just not want to eat thats what it does to me
16 Aug 2009
I was prescribed Topamax two weeks ago for off-label use for my fibromyalgia, and I have noticed, although I'm still titrating up (am at 75 mg/day right now with the ultimate goal being 150 mg/day) that my appetite has decreased significantly and I've lost six pounds. I have not, however, noticed a change in taste in carbonated beverages that a lot of other people mention -- at least not yet -- nor a change in the taste of food or particular food cravings. I'm just not that hungry very often, and when I do eat, I don't need to eat much to feel full. I gained 20 pounds in 10 weeks on Neurontin, so I'm delighted with the weight-loss side effect of Topamax.
7 Jan 2010
yes I have and it works quit well. It affects your brain by shutting down some part that controls your hunger. I stopped taking it and gained 15 pounds... and no matter what I did or how little I eat, It seems to not come off as easy as when I took the Topamax. If you don't have insurance. get your dr. to order it from canada. about 1/3 the price of 400 plus dollars here in the states.
8 Apr 2010
I just started taking Topamax to control binge eating. I am taking 100 mg at night to hopefully control the side effects during the day, I'm wondering if anyone else is taking all of their medication at night only? So far, I think it is helping a little. Maybe it takes some time to really kick in, I hope.
Princess22008
8 Apr 2010
I take all my meds at night (Topamax, Seroquel, Cymbalta, and Lamictal) and I have noticed that I have lost about 30 pounds since January when I started the Topamax. On my list of things to do for the day is eat since when your not hungry you forget that your body still needs food. My only thing that I don't like is that with an increased dose I get a metallic taste in my mouth but I can deal with that as long as I continue to lose weight.
annarensland
4 Nov 2012
I just started a few weeks ago I am at 50mg for night eating sydrom, yes it helps however my appitite is coming back I think I may need to go up, how do you feel, what was your dosage did you notice a difference in 50-75-100?
4 Dec 2010
I've been on Topamax for migraines since October of 2009. At first I lost 30 pounds almost immediately. I really had no appetite, I loved it. I take it 3 times a day, but I've recently gained almost all the weight back. I'm wondering if the appetite-loss symptoms have gone away, or if I've just been eating more than usual. But I definitely love the drug for migraines and for the weight loss.
4 Apr 2011
Yeah, I started a gradual dose for weight loss, but not without severe consequenses because I was upping my own dose to lose faster, so don't do that! Stick to what the Doc sais it'll work great for you, I started at 267 pounds and at 5 months later I was at 205 so, Yeah it does work. That was 5 years ago, Last week I started back on, I am 256 so I'm starting at 25 mg for 2 weeks in a matter of 2 months I'll be at 100 mg 2x per day. However, this serves 3 purpouses for me Hypertension, Body Mass Index and Alcholism. Wonder Drug Sent From Heaven! I love it. Good Luck to you!
29 Jul 2011
I know this reply is rather late after your origional post, but I would not take Topamax for weight loss especially if you are female. There is a multimillion dollar lawsuit against the makers of Topamax at the moment for birth defects like cleft palate and spina bifida, Google topamax and lawsuit and you will get more info, at the moment they have paid out $81m in damages.
annarensland
4 Nov 2012
Doses anyone know why drs are so afaid of giving this med to people to help them in weight issues, it may not be siezures but can lead to heart and other health related diseases
9 Sep 2011
obesity, binge eating, compusive overeating, and bulimia are all common uses for Topamax. these, however are referred to as "off-label" uses because it hasn't solely been researched to diagnose or treat these issues. this means, they have no real data showing significant research upon these subject matters.
2 Nov 2011
I know this was asked quite some time ago but maybe somebody is still reading up on it.I was precribed topamax for loosing weight,I was 199lbs, and now I'm at 118.
I quit taking it mo's ago and cant seem to gain weight for nothing.I look horrible and eat constantly to try and gain some weight back and nothing is working. I'll never take Topamax again.Has anyone gone through this like I have ? I need help to gain weight back I would like to be at least at 125 lbs.
memas1
13 Dec 2011
No still not gaining any weight . : ( thank you for asking
brightpurple
31 Dec 2011
I'm sorry you have yet to gain some of your weight back. I hope you're feeling better since being off of it.
13 Dec 2011
I was put on Topamax for migraines but never lost a pound! My bff however was also given this as a rx for migraines and lost like crazy! My dose was even a higher dose than hers! Believe me, I would have loved for the weight loss everyone else was experiencing to be my result as well. I would love to know if there are others that, like myself, never lost a pound while taking it??? Go figure...
sueffun
13 Dec 2011
I don't know if you read my previous reply about Topamax but it really concerns me that you want to use Topamax for weight loss especially if you are female. There is a multimillion dollar lawsuit against the makers of Topamax at the moment for birth defects like cleft palate and spina bifida, Google topamax and lawsuit and you will get more info, at the moment they have paid out $81m in damages. If you don't plan to fall pregnant its fine, but is it worth the risk, what other problems can this drug cause. My son was on it for seizures and it caused major memory problems. . Topamax has a nickname of Dopamax, for obvious reasons.
stillgoofy
13 Dec 2011
Wow! To sueffn: That was harsh to say the least! Name calling much? Im very sorry to hear about the problems your son experienced..thats every mothers nightmare to see your child suffer from side effects from a rx med that was meant to make their lives easier. I was put on Topamax for migraines, as I said... the fact that I wouldn't have been upset with loosing a few pounds while controlling my migraines, doesn't make me a bad person, or a "dope" as you so politely hint at. My bff and myself are, simply put, two pleasantly plump, healthy adult females that shared a little playful banter concerning our different reaction to the same rx med. I apologize if you mistook my post as anything it wasn't intended to be, and I wish your son the very best.
4 Nov 2012
I am at 50mg, I started top a few weeks ago for sever night eating syndrom, I am a runner but have stopped due to weight changes and depression. I hav an eating disorder. I am on Effexor Rx, and have panic attacks once in a while, I noticed the first week at 25mg, my appitite was off but on week 2 at 50mg my appite is back, I go back to see my dr, next week she wasnt going to put me on this, I guess some dr are very against this drug I weigh almost 170pounds I am normally 120, I gained30 in 2 months at what dose did you notice weight loss? I have not lost any yet, I am in school for nursing so I dont get to run at all UGH!!
10 Dec 2012
Hello... I am glad to see these responses ! i was thinking zi sm crazy with these side effects..as u can see I am typing poorly... i have the tinglingling in my hands and the "dopemax" feeling and was gong to stop it until I read this.. I am a nurse so thought i was really missing something. Thanks to everyone for their comments. I see that i have to wait... I am taking it for headaches and hoping for the weightloss. It is hard to function though while adjusting... this is awful. I left the typos in for people to see how bad it can be..this is 50 bid.. I think I am going to just take it at hs at others have suggested...
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i was given neuontin, well, i actually requested it, but its still sitting here. im so glad i didnt start it, especially since people are sayin that it puts on more weight. i keep on gaining for no reason, other than maybe my age and dont really excercise, but i never did anyway... i luv when the docs say, excercise..ya, right ! with fibro and cfs, not to mention my arthritis and stuff, ummmmmmmm, i think most of us can relate to our excersise pretty much consists of daily living habits, if that !!
i feel your comment i just to love it when some healthly looking doc. says eat right and get plenty of exercise when it just exercise to get out of the bed in the morning and walk to coffee pot, i take lyrica 200 mg and have gained 26 lbs this yr after starting this med. i know it was the lyrica because i had been on my other med's a long time and my weight hadn't changed in 4 months. missy2
I've been on Topamax for a few months now, and my dosage is up to 200 mg/day (100 mg a.m., 100 mg p.m.), and I've lost about 17 pounds. It does help with appetite control, and it is helping some with the fibro -- mostly with morning stiffness. But I agree about the whole "get more exercise" deal the docs like to tell you; there are days when it's a struggle to take a shower, put on makeup, and go to work, much less even *think* about exercise. It's great in theory, but far more challenging in practice. Hope the Topamax is working well for you, though. :)
I too am titrating off of Gabapentin, 1500mg/daily due to excessive weight gain. I gained 11% of my total body weight, 17lbs. in 12 weeks. I am eating low carb foods which always worked for me and I am still gaining weight. Switching over to Topiramate.