I believe I have Fybromyalgia but the Rheumatologist is reluctant to confirm a diagnosis. She put me on Pregabalin but that made me woozy and 'completely out of it'. Pain Clinic has suggested Tramadol - I am seeing the Doctor at the PC tomorrow. At present apart from the trigger area pains in the shoulders and neck I have a 'nerve' pain running up my neck and into the skull and causing extreme sharp pain over the eye and in the temple. Worse at night. Codiene/Paracetomol is not helping. I also have double vision at present which I believe is caused by this pain. An examination at the Eye Clinic showed no problems with my sight. I await an appt with an Orthoptist. I am 78yrs old.
21 Nov 2011
I have had severe pain in the eyes and the back of the head more than the temple and the eye, but when it happens for me, I actually use an ice pack on my neck - it is the only thing that works - no pain killers help. Perhaps you could try putting an ice pack around your neck when this happens and see if it helps. It certainly can't hurt.
Hopefully they can find what is happening soon for you, and although it is nice to have a diagnosis, my hope for you is that it is something more "curable" that fibromyalgia. It is a life long struggle.
Take care. Gail
21 Nov 2011
Hi portico, Due to fibromyalgia, I constantly have severe pain all over my forehead and around my eyes. I was initially diagnosed with fibromyalgia about 20 years ago, and along with the pain of standard pressure or trigger points, my skin hurts a lot in many places. In fact, it's easier to say where it doesn't hurt. About a year ago, I started taking Lyrica. I haven't had any side effects, and I believe it's been helpful. I suggest you speak with your doctor about trying it, as I know it's prescribed frequently for fibromyalgia. I can also say that in my case, lack of sleep has compounded the severity of my pain problems. I bought a Select Comfort (sleep number) bed, some good ear plugs, and a sound machine. I'm now sleeping a little better, but irregular sleep patterns continue to irritate my condition. I can really sympathize with you and wish you the best in your search for relief. Sincerely, keemo7
22 Nov 2011
Has anyone ever evulated you for migraines. That can also go along with Fibromyalgia. ice can be very helpful and it is also a lot of help. have you ever tried accupuncture? When my head pain gets so bad and nothing seems to help accupuncture has worked wonders. I am lucky for my insurance has that coverage but if it didn't I would pay the cash to get some relief from a few visits. I hope you feel relief soon!
23 Nov 2011
my eyes bother me too!but i idn't put in together with my fibr!but i guess it makes sense !i can't read for long either because my eyes hurt and i can't make out the words because they are blurred !but unlike you my eye sight is poor so i just thought it was my eyes ,so thank for enlightening me!and i pray that you get relief !what works for me might not work for you because our bodies are different !wishing you the best!
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