I had a talk with my Neurologist yesterday, because the pain is just to much for me to handle. I know I am strong and can put up with a lot as most of you know. But something has got to give with this pain which has been going on for far to long and it is starting to scare me a bit. I try to stay positive as much as I can, but I guess even the strong ones have to give in from time to time. Sorry guys I just need to vent to anyone who wants to listen. I just feel I am cracking a little under all this stress, and not been able to go out and enjoy the lovely sunshine we are having which I would normally do, just makes me want to go out even more, but I can't because the sunshine just makes things worse, even though I had special glasses made to help with the sunshine, but it still make my head hurt more. Having to spend weeks in the hospital where the treatment takes such a toll on my body, and is just an unhappy time and takes a lot for me to agree to go into hospital knowing this is just going to be horrible again gets harder and harder to do and agree to. Plus I just can not understand why nothing seems to help this Migraine, for more then a few weeks. So my Dr wants to admit me into the hospital again this coming Monday, for another round of DHE for the Migraine headaches. So if any of you want to help me through the long week ahead, would be great. But I don't want this to bring anyone else down, but I will still try and comment on the site when I can in the hospital. Thanks for listening, Liz.
I had to give in and ask for help with the pain!!?
Added 9 Jul 2012:
Just got a email from my Dr who is admitting me into the hospital, he will not be back in town till late tonight. So he will aim to admit me tomorrow, once he has a bed assigned for me. Whats one more day!!!
Added 16 Jul 2012:
Hi Everyone, just wanted to add I have just got home again and I am happy to report that my headache is now at a 5/10 where it was a good 9/10 when I went into the hospital. It did take 8 treatments this time, normally it is 6. Plus the headache only got better after I had the 8th treatment. So I am going to relax and probably catch up on sleep. Liz.
6 Jul 2012
Hello Liz. I'll be around, as you know I spend my nights often burning the midnight oil. And your being 3 hours earlier, works to my advantage. I feel bad that you are going in for another series. Will be in touch and if you happen to see out and about, feel free to let me know and we'll have a chat or two. Bye bye nand lets keep our fingers crossed for no more pain! pledge
6 Jul 2012
All I can said is I am so sorry you are going through this again. After my neurological determined I did not have a artery in my brain getting ready to explode, he gave me Imitrex, did nothing for the pain, told me I'd just have to deal with them.
Somehow, one of my psych meds decreased my 3 day migraine episodes. Don't know which one, but they are pretty infrequent now, thank the Lord. Hoping you find some relief,
6 Jul 2012
Very sorry to hear about the intensity of your pain. Asking for help does take strength. Getting the help one more time, even more. I don't know what it is like to hurt like that. I do admire your willingness to get the help.,I sure dislike hospitals. I know you will go. It may seem an endless nightmare. Thank goodness you can walk out in the sun at times. Hang onto that and the ones you love. You will do this once more. My prayers are with you. Karen
6 Jul 2012
Everybody has to ask for help sometime and it has nothing to do with how strong you are or aren't. Constant pain will wear anyone down. Personally I think it takes more strength to know when you need it and ask for help.
It's unfortunate that we can't share pictures or videos here. I would send you the video of my granddaughter's "happy dance". If that couldn't bring a smile to your face, I'm pretty sure we could name you a hopeless case!
Like Pledge, I'm pretty much of a night owl, so if you need to talk I'm here.
Now I'll share my 2 yr old neighbor's favorite joke with you... What do you call an elephant who's wearing sunglasses? Nothing, he's incognito!
6 Jul 2012
I suffer from migraines too. They are a pain aren't they? I know what triggers mine but sometimes I go without for awhile then I get 1 a week. I tried Immitrex but I take Maoi so it interacts. Then I tried Zomig nasal spray. It worked but I had bad side effects muscle pain for 24 hours. Not worth it! It hurt too much, then I found out it was also interactions with my Maoi. Now I have Maltrol I think it is called to try at the next migraine. I tried to not use migraine meds unless I have too since they are so strong meds. I wish you some pain free soon! I have said a prayer for you Liz.
6 Jul 2012
Hi Liz, I hope they find something better to help you with these horrible headaches.You already have enough on your plate to handle, shouldn't have to be having this too. I will be here whenever you need me. Haven't been on much myself, but will look for your emails... xo Mary
7 Jul 2012
Hi sweetie - I know I'm not around much but I've replied to you before and I'll be around this weekend. I lived the migraines-all-the-time life for a long time. I still take my Relpax at least 12 times a month and so far it helps most of the time. I think I've found most of my triggers (foods) but I didn't really process that I was taking that much Relpax! I'm wanting to get off meds so I 've got to figure out what it is doing for me and find a natural way to do it. Most of the time I am just oblivious to this blessing in my life - no migraines! I should just be happy. And I am - and how I wish you could be too!! I am praying for you this weekend and praying that some devoted intern will want to please his boss when you are in the hospital next week and will find the solution to your migraines - ElizaJane
7 Jul 2012
So sorry that your pain has gotten so bad for you. You are not alone with thinking that it is just too much. There are many of us that feel that way. I don't know if I told you that a year ago, I got terribly depressed with my pain and the poor qualilty of my life. Doctors told me that the migraines could very possibly last the rest of my life since they were caused by my stroke. My doctor told me to increase my anti-depressant and to get counseling. Never had the energy to get counseling. I told her that a drug couldn't help me at all since it was all situational. (Fortunately I did increase it and 5 weeks later, my severe depression left. If you are able to increase an anti-depressant, I would recommend that you do it--BUT... below)
BUT my doctor had me keep coming to her office every week, when usually I had to wait 2 months for return visits. She told me later that she thought that the pain had finally gotten to me. What she didn't say, but which I read later in the NY Times is that a certain percentage of chronic pain sufferers commit SUICIDE. That's how intolerable it can be for many people.
The fact that you are asking for help and still seeking help show that you will weather this and are strong. But know how hard it really is. It's not you. And I know that you will feel better in time. It's your nature.
So know that I am thinking of you now more than ever with prayers.
7 Jul 2012
Hi Sweety, i'm so sorry you are still suffering with this! I am praying for relief for you as soon as is possible! I can imagine how hard it is to be stuck inside when it is such a lovely day outside - i have been there also. Just remember that there are more months ahead of summer, and i really hope you can enjoy them again very soon! You are always welcome to talk to me if you like, and if it is just for a rant or to cry on my shoulder, that is perfectly fine! Thinking of you hun x
8 Jul 2012
Liz,Sorry 2 read wat ur going thru,yes even us ströng types do have enough at times,ur only human,i hate any bod pain,and gd ön u 4 seeking extra help,i will be thinking and praying 4 ur wellbeing,and i do sincerely hope u get better very søøn,Best Wishes,hang in there,Marie x
15 Jul 2012
Oh Liz, I'm so sorry to hear about your problems happening again!! Truly I am! My entire pain history started when I was hit from behind, twice, suffered a cou contra cou (sp?), and had nerve shearing which caused post traumatic migraines. I tried every therapy known to man, and still do. That led to fibro, and kept on going. I still have major migraines at least 20-25 days a month, and I KNOW what you are going through, and I would not wish this on my worst enemy. I realize that my response is late, it's hard to sit in front of the computer, the light and all, + a bad back makes sitting in this chair a short term experience anyhow, but I hope by now you are home and feeling better again!! Are you getting DHEA therapy (if that's what I seem to recall they tried on me in the hospital)? Also, I have learned that cranial sacral massage therapy, which you must get a PURE cranial sacral massage therapist, works wonderfully for migraines.
The problem is finding a massage therapist who will take the time to just do cranial sacral work, and not mix in any other massage, as cranial sacral can take up to two hours, but they never know how long it will take. It is also expensive because of the time factor, and the training factor. I had that in the hospital when I was in for migraines; two wonderful massages that actually put me to sleep, (which they NEVER do), but haven't found anyone since who is a purist. Perhaps you can!!
Good luck sweetie, and I hope that your therapy works for you!!
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