uklizI had a talk with my Neurologist yesterday, because the pain is just to much for me to handle. I know I am strong and can put up with a lot as most of you know. But something has got to give with this pain which has been going on for far to long and it is starting to scare me a bit. I try to stay positive as much as I can, but I guess even the strong ones have to give in from time to time. Sorry guys I just need to vent to anyone who wants to listen. I just feel I am cracking a little under all this stress, and not been able to go out and enjoy the lovely sunshine we are having which I would normally do, just makes me want to go out even more, but I can't because the sunshine just makes things worse, even though I had special glasses made to help with the sunshine, but it still make my head hurt more. Having to spend weeks in the hospital where the treatment takes such a toll on my body, and is just an unhappy time and takes a lot for me to agree to go into hospital knowing this is just going to be horrible again gets harder and harder to do and agree to. Plus I just can not understand why nothing seems to help this Migraine, for more then a few weeks. So my Dr wants to admit me into the hospital again this coming Monday, for another round of DHE for the Migraine headaches. So if any of you want to help me through the long week ahead, would be great. But I don't want this to bring anyone else down, but I will still try and comment on the site when I can in the hospital. Thanks for listening, Liz.
I had to give in and ask for help with the pain!!?
Added 9 Jul 2012:
Just got a email from my Dr who is admitting me into the hospital, he will not be back in town till late tonight. So he will aim to admit me tomorrow, once he has a bed assigned for me. Whats one more day!!!
Added 16 Jul 2012:
Hi Everyone, just wanted to add I have just got home again and I am happy to report that my headache is now at a 5/10 where it was a good 9/10 when I went into the hospital. It did take 8 treatments this time, normally it is 6. Plus the headache only got better after I had the 8th treatment. So I am going to relax and probably catch up on sleep. Liz.
Responses (12)
pledge6 Jul 2012
Hello Liz. I'll be around, as you know I spend my nights often burning the midnight oil. And your being 3 hours earlier, works to my advantage. I feel bad that you are going in for another series. Will be in touch and if you happen to see out and about, feel free to let me know and we'll have a chat or two. Bye bye nand lets keep our fingers crossed for no more pain! pledge
pledge
6 Jul 2012
Apologize for my typos :-0)
ukliz
6 Jul 2012
Thanks Pledge I look forward to talking to you, have a nice weekend. Liz.
mdwag
Anonymous 6 Jul 2012
All I can said is I am so sorry you are going through this again. After my neurological determined I did not have a artery in my brain getting ready to explode, he gave me Imitrex, did nothing for the pain, told me I'd just have to deal with them.
Somehow, one of my psych meds decreased my 3 day migraine episodes. Don't know which one, but they are pretty infrequent now, thank the Lord. Hoping you find some relief,
Laura
ukliz
6 Jul 2012
Nice to hear from you Laura, nice to hear your Migraines are furthaer apart now. You lucky thing, you take care. Liz.
endlessPred6 Jul 2012
Very sorry to hear about the intensity of your pain. Asking for help does take strength. Getting the help one more time, even more. I don't know what it is like to hurt like that. I do admire your willingness to get the help.,I sure dislike hospitals. I know you will go. It may seem an endless nightmare. Thank goodness you can walk out in the sun at times. Hang onto that and the ones you love. You will do this once more. My prayers are with you. Karen
ukliz
6 Jul 2012
Thanks Karen, I am sure it was just one of those weak moments that you get, when you think it is just getting to much I know I will yet again snap out of it long enough to have the courage to go back in for more treatment on Monday.
Thanks again for answering, Liz.
endlessPred
6 Jul 2012
I am in a pretty weak,spot myself right now. Somedays can be pretty tough. My hubby has made me small fresh strawberry malts. Continuing to look forward. Maybe I can get a taste tonight. Yeah! Other wise one great big ouch. lol. So,it goes.
Lisa016 Jul 2012
Dear Liz,
Everybody has to ask for help sometime and it has nothing to do with how strong you are or aren't. Constant pain will wear anyone down. Personally I think it takes more strength to know when you need it and ask for help.
It's unfortunate that we can't share pictures or videos here. I would send you the video of my granddaughter's "happy dance". If that couldn't bring a smile to your face, I'm pretty sure we could name you a hopeless case!
Like Pledge, I'm pretty much of a night owl, so if you need to talk I'm here.
Now I'll share my 2 yr old neighbor's favorite joke with you... What do you call an elephant who's wearing sunglasses? Nothing, he's incognito!
Hugs, Lisa
ukliz
7 Jul 2012
Hi Lisa, thanks for caring and for trying to make me smile, I am sure I will end up talking to a few of you on this site whilst in the hospital. Thanks again, Liz.
6 Jul 2012
Hi Liz,
I suffer from migraines too. They are a pain aren't they? I know what triggers mine but sometimes I go without for awhile then I get 1 a week. I tried Immitrex but I take Maoi so it interacts. Then I tried Zomig nasal spray. It worked but I had bad side effects muscle pain for 24 hours. Not worth it! It hurt too much, then I found out it was also interactions with my Maoi. Now I have Maltrol I think it is called to try at the next migraine. I tried to not use migraine meds unless I have too since they are so strong meds. I wish you some pain free soon! I have said a prayer for you Liz.
Take care,
Smileyhappy
ukliz
7 Jul 2012
Thanks for answering and saying a prayer for me. Take care, Liz.
Anonymous 6 Jul 2012
Hi Liz, I hope they find something better to help you with these horrible headaches.You already have enough on your plate to handle, shouldn't have to be having this too. I will be here whenever you need me. Haven't been on much myself, but will look for your emails... xo Mary
ukliz
7 Jul 2012
Hi Mary, I know you will be looking out for me, hope your not suffering too much today. I will keep you up to date as to what is happening, I was at the hospital all afternoon today seeing my favorite PCP, if you know what I mean.
Will talk to you over the weekend, hugs Liz.
ElizaJane237 Jul 2012
Hi sweetie - I know I'm not around much but I've replied to you before and I'll be around this weekend. I lived the migraines-all-the-time life for a long time. I still take my Relpax at least 12 times a month and so far it helps most of the time. I think I've found most of my triggers (foods) but I didn't really process that I was taking that much Relpax! I'm wanting to get off meds so I 've got to figure out what it is doing for me and find a natural way to do it. Most of the time I am just oblivious to this blessing in my life - no migraines! I should just be happy. And I am - and how I wish you could be too!! I am praying for you this weekend and praying that some devoted intern will want to please his boss when you are in the hospital next week and will find the solution to your migraines - ElizaJane
ukliz
7 Jul 2012
Hi, I have not come across any triggers as yet, but keen to have this investigated. I will probably bring this up next week whilst in the hospital, it makes sense to me. that maybe it might have something to do with what I am eating. I will try and remember next week to ask, thanks Liz.
ElizaJane23
7 Jul 2012
That's actually pretty scary - neurologists usually think of food triggers, artificial sweeteners, dyes. You need to go see an allergist who can test you for some of these things, and for the others you go on an allergen-free diet and graduallly add foods back in, one at a time, and keep specific notes to see what reactions you have. Some things take even a full week to show up. Chronic pain can be caused by allergies too, and especially migraines. I had a rash all over my face for close to a year and the local dermatologist said unless I was willing to live on antibiotics and steroids he couldn't help me. I said No Way, and got an appointment with dermatology at Johns Hopkins - about an hour away.
sara123457 Jul 2012
Dear Liz,
So sorry that your pain has gotten so bad for you. You are not alone with thinking that it is just too much. There are many of us that feel that way. I don't know if I told you that a year ago, I got terribly depressed with my pain and the poor qualilty of my life. Doctors told me that the migraines could very possibly last the rest of my life since they were caused by my stroke. My doctor told me to increase my anti-depressant and to get counseling. Never had the energy to get counseling. I told her that a drug couldn't help me at all since it was all situational. (Fortunately I did increase it and 5 weeks later, my severe depression left. If you are able to increase an anti-depressant, I would recommend that you do it--BUT... below)
ukliz
7 Jul 2012
Thanks Sara,, I am not on any anti-depressants my problem is that I am frustrated most of the time. Thanks again for writing and I do believe one day in my future someone will find out why I am living my life in so much pain. Take care, Liz.
sara12345
7 Jul 2012
Liz,
I certainly understand if you don't want to try any anti-depressants. Just so desperate to help you in any way, which is probably not what you were asking for. I know that you were asking for emotional support which I hope my answer showed that as well.
My example shows how much a medication can help all kinds of emotions that may be affecting your mental outlook. My problem was with my situation. And the situation was exactly the same after increasing the anti-depressant, except that anti-depressants also help with physical pain as well. So maybe my pain was a little bit better.
But just forget about my suggestion. It was not meant to offend you. I sincerely hope that it didn't.
I've been to the point of not suicide, but certainly not caring if I lived or not with all the pain. And again, I wish you the best in your future.
Sara
Delila7 Jul 2012
Hi Sweety, i'm so sorry you are still suffering with this! I am praying for relief for you as soon as is possible! I can imagine how hard it is to be stuck inside when it is such a lovely day outside - i have been there also. Just remember that there are more months ahead of summer, and i really hope you can enjoy them again very soon! You are always welcome to talk to me if you like, and if it is just for a rant or to cry on my shoulder, that is perfectly fine! Thinking of you hun x
ukliz
7 Jul 2012
Hi my Friend, thanks for writing, I so hope you are feeling better today and I will send you a private message again today or tomorrow. Keep up the good work you are doing and stay strong, hugs Liz.
mazz178 Jul 2012
Liz,Sorry 2 read wat ur going thru,yes even us ströng types do have enough at times,ur only human,i hate any bod pain,and gd ön u 4 seeking extra help,i will be thinking and praying 4 ur wellbeing,and i do sincerely hope u get better very søøn,Best Wishes,hang in there,Marie x
ukliz
8 Jul 2012
Thank you Marie for answering, and for your well wishes. You take care, Liz.
msfino15 Jul 2012
Oh Liz, I'm so sorry to hear about your problems happening again!! Truly I am! My entire pain history started when I was hit from behind, twice, suffered a cou contra cou (sp?), and had nerve shearing which caused post traumatic migraines. I tried every therapy known to man, and still do. That led to fibro, and kept on going. I still have major migraines at least 20-25 days a month, and I KNOW what you are going through, and I would not wish this on my worst enemy. I realize that my response is late, it's hard to sit in front of the computer, the light and all, + a bad back makes sitting in this chair a short term experience anyhow, but I hope by now you are home and feeling better again!! Are you getting DHEA therapy (if that's what I seem to recall they tried on me in the hospital)? Also, I have learned that cranial sacral massage therapy, which you must get a PURE cranial sacral massage therapist, works wonderfully for migraines.
ukliz
15 Jul 2012
Hi, I have been in the hospital since the start of the week, and still here (Sunday) and I am going through my last treatment now, which should finish around 5pm we started at 7am. It has been one of the toughest stays where it was at it's worse yesterday, and where I should have started the last treatment in the night but I was in to much discomfort to start it. Yes the treatment is for the DHE, Kytril, and Phenegan. The last two are given slowly over several hours, then the DHE. The headache is a bit better, and should be easier to handle for the next number of days. I am not sure what or how long before the Dr's fine something that really works for me, so I don't have to keep doing these hospital trips. They were banking on the Botox working, but I have only had one round of the Botox, so fingers crossed the second lot will give me some relief.
msfino
15 Jul 2012
I really give you credit for trying to make a good experience out of a lousy situation!! 10 points to you Liz!!! I would LOVE to see your designs :-)
Ask if they have a therapist there that does cranial sacral massage. By the Upledger institute. It's used here for hospitalized migraine patients going through that therapy. I never could finish the therapy as I started getting phlebitis. I was so upset, because it was working!! Try the botox again, and if you can remember what worked, and what didn't they can tailor the shots to your personal needs. That is what they are doing with me right now.
I'm glad that the DHE therapy at least gives you some relief. I know how exhausting the headaches are. Keep in touch, and hope you sell bunches of your jewelry!!
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Thanks let's hope so. Take care, Liz.