I have FMS and have been suffering from severe insomnia since Jan. 2011. I have become so ill and so limited in my ability to function that I must consider starting Gabapentin in very short order. I have been avoiding it after losing 85 pounds when I got off Paxil. But this is becoming a do or die situation. Kali45
Gabapentin - How bad is weight gain? Can diet help? How good for sleep and pain?
- Posted:
- 24 May 2012 by Kali45
- Topics:
- paxil, post traumatic stress disorder, insomnia, obsessive compulsive disorder, social anxiety disorder, fibromyalgia, generalized anxiety disorder, gabapentin, anxiety and stress, panic
Answers (14)
24 May 2012
I take gabapentin. I switched to it from Lyrica. I did gain weight with that. The gabapentin doesn't seem any worse then my usual battle with weight. Without sleep you won't ever feel better. What are you doing to encourage sleep? I don't know that gabapentin does much for sleep, other then make you a little more comfortable. If you're going to bed hurting, you're not going to sleep.
THANK YOU!!!
24 May 2012
I take gabapentin & Lyrica. I have found Lyrica helps with the pain as it has 2 meds in it & gabapentin had only 1. I have severe insomnia ,& pain. I am now taking Seroquel 150-300mg at bedtime & it knocks me out & decreased my anxiety in the daytime. Nice thing about it is that it is not addictive, non-tolerant, but it can cause weight gain but now I'm awake during the day to be more active. I was originally rx'd the gabapentin for my anxiety I was experiencing last year during an extra difficult time in my life & its was 600mg & it did help a bit with getting drowsy for bedtime. Wish you all the best.
Thanks... I tried Seroquel @ 150 mg for the insomnia and it didn't help and made me anxious. I was told a dose above that... as high as 300 mg would cause weight gain but could help with anxiety and insomnia.Nice to have the confirmation that @ that dose Seroquel helped with insomnia and anxiety.
Lyrica only has one med, pregabalin, in it. Just because a medication does more then one thing does not mean it has more then one medication.
25 May 2012
I have taken 900 mg 3x day for the last 6 yrs I was told the same thing but I did not gain any weight from it. Alot of it does depend on the dosage you take. Usually the dr. will start you out on a low dosage. If you are in this much pain you really should consider at least trying the medication & monitor your weight. If you find that you are gaining weight then you can weigh the pain relief against gaining a few pounds. I am sure if you exercise more that is always beneficial if your are able to.
You also mentioned that you stopped Paxil did they put you on another anti depressant ? If not & you still need something you might talk to your dr. about Cymbalta it is another anti depressant that has been approved for FMS & I found it to help with the pain alot
.i hope you find something to help you, best of luck, Kathy
This was really helpful. I tried Cymbalta and could not tolerate the side effects. Yes... on another anti-depressant. Thanks.
Kali,
I am glad I was able to help you out at least a little bit. I think you will find that the Gabapentin will help as it usually works well for nerve pain. It is kind of funny I had a hysterectomy quite awhile back & I could not take a hormone replacement due to a blood clot. The dr. tried me on all kinds of meds to control my hot flashes the my Gyn said lets just increase the Gabapentin as it might help with the hot flashes, & sure enough they increased the dosage & I killed two stones with one med. So I believe in this drug & it is one of the few drugs that the side effects are very few. I hope you give it a try & it helps you out.
Also I am not sure how long you have been on Tramadol but you may need to either increase your dosage or try something else for pain relief.
Best of luck., Kathy
31 May 2012
Gabapentin was my miracle drug. I was dancing away on 3600mg/3/day!! No need for pain meds!! I also thought that I was eating too much. Now after all the damage was done, I found out that fluid weight is a rare side effect of the medication. I still take only 300 mg at night to help me wake up with less pain in the AM, but be careful! Now, I have so much fluid weight all over my body, I will NEVER lose it again. I have to wear compression hose daily to make sure that I don't develop clots and my hands and arms and face are always swollen. It's a pain. Wish I had been more astute at the time, knowing that I wasn't eating any more, and I was still exercising. If it works without the side effects, it is a great medication. Just be aware of the side effects.
Thank you so much for sharing..it is the side effects that I am so worried about! I really appreciate hearing your experience.
Just remember, it is a GREAT medication, and works fantastically for many people, so don't discount it just because I had problems. Just be aware and find any fluid retention quickly!! I had a very rare side effect. Best of luck to you!!
6 Jun 2012
Hi kali... thanks for posting this question. It is exactly the info I am looking for. I was just put on it for trigeminal neuralgia and having lost 60lbs... was also concerned about the potential weight gain. Congrats on 85!!!
I read about people gaining 25 - 30 lbs and it scared me. I'll keep you posted if I find out anything more... sleep well!!
Hi... your welcome and congrats to you too. I have heard and read about people gaining that much weight too... so I am very scared and not ready to gain weight but I'm very sick and out of options. I'd like to know how it goes for you since you are already on it. It's seems pretty individualized as far as the weight gain goes, but I watched someone pack on about 30 pounds really quick and I can't get that out of my mind.
27 Jun 2012
Good Morning,
I have been on Gabapentin for a couple of years now, as well as trazadone for sleep. I have GA, Depression, Insomnia (since 2007), & Fibromyalgia, along with a few other problems. I tried Lyrica & gained alot of weight from it. Got rid of that fast seeing I lost 200 pounds, I don't need to gain any back. I have been taking Gabapentin with Trazadone and find that I sleep alot better & it helps with the anxiety. I think I have only gained about 10 pounds in as many years from this. Talk to your physician about trying that combination. Let me know what happens. Good luck.
Hi... I am already on Trazodone for sleep alone with no success and also I am on it to support another med because of anxiety. Your answer is very helpful. Thank you. Kali
27 Jun 2012
Hello Kali45! Gabapentin is a great anti-depressant and gosh, it really helps pain. I also take Lamictal and Klonopin, which keeps me stable. The combo works wonders for me. I haven't gained any weight from Gabapentin. The only reason I gain weight is because I LOVE sweets, especially chocolate. Hardy Har Har! I have to tell you that I've tried almost the entire drug market of meds in the pain family. ALL of them made me gain weight. As far as pain I couldn't ask for a better med than Gabapentin. I take 1800mg per day. That's a lot, but some people have to take that amount to kill pain AND sleep. I'm so glad to get away from narcotics. I sure hope you start feeling better. It sounds like an awful situation to be in. I'm so sorry. I forgot to ask you if your taking anything for insomnia. I sure hope so. Please take care and may God bless you with faith, hope and love, Anna
Thanks that is really helpful. I have tried every drug available on the market in Canada for sleep including the use of drugs "off-label"... so they are prescribed for something else but have the side effect of drowsiness..no luck. For pain I have tried every non-narcotic available with no success except Gabapentin. After losing 85 pounds over a year ago I am really scared of the weight gain but I couldn't get much sicker so...
Sorry it took so long to respond, I do really appreciate you taking the time to respond. Kali
12 Jul 2012
I've been on Gabapentin for about 4 1/2 months for nerve pain due to a large tumor on my brain stem (not removable). The meds seem to be helping, hard to tell honestly since I'm still in a significant amount of pain 24/7 but I don't want to risk not taking them yet. I've lost 9 lbs since I started the medication, with a minor change in activity level/diet from before I started. I'm doing 30-45 minute walk 3-4 times a week and cutting out the fast food and losing weight slowly.
Thanks for your time... I'm so sorry to hear about your situation. I am really good about my diet but with the fibromyalgia exercise-wise I can only do gentle stretching and strolling when it comes to walking... not what gets your heart rate up or burns calories. I see your answer was posted at the end of May but I just got notification of it today and this is mid-July. Thanks for your feedback.
14 Jul 2012
Kali45... I have been on large doses of Gabapentin 2400-3600 mg a day for postherpetic neuralgia and have not had an issue with weight gain. I do seem to be hungry more often but try to be smart with snacks. This high of a dose can cause you to be dizzy, drowsy and a tad confused so, watch yourself driving, operating machinery and making important decisions until you know how you are going to react to it's use. Good Luck to you !
Thanks for your feedback. The weight gain issue seems to be very individualized but the consensus seems to be that it really does help with pain. Thanks for the extra tips because that is the dose the specialist has recommended to my family doctor.
17 Jul 2012
I have been on 2nd level (900mg daily) of Gaba for a month and I've gained about 4lbs... didn't have much of an appetite before, but once I started that second level of Gaba I just can't seem to satisfy my hunger. I also started having some awful acid reflux that I thought was caused by the Gaba, but my Doc says it is caused by a different pain med compound not the Gaga. (50yrold/Male)
Thanks for your time and feedback..I really appreciate it.
Thanks. I have tried both seroquel and remeron for sleep. But stumbled on Clonidine a blood pressure med used off label for insomnia. It works for me... just .2mg as the dose has to be low because I don't suffer from high blood pressure. It doesn't knock me out all night..but broken sleep is better than none!
And back to the gabapentin weight gain issue... I have two relatives on it now who say they can't live without it and have not gained weight. I still have not tried it for fear of the weight gain. I'm already gaining weight on HRT for early menopause. Guess it's all very individualized. My family and everyone keep saying what's the point of being thin if you have no quality of life. Try it... and see what happens and go from there. I agree with them but I still haven't gone there. And why do I get an email in December for a post in May? Does this happen to other people? Kali45
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I see my GP tomorrow and must prepare, but thanks. I have tried everything, every drug on the market in Canada for sleep, "off-label drugs" that have the effect of drowsiness, excellent sleep hygiene, natural remedies with a Naturopath, everything, alternative physical therapies..and I am on something for pain now.
I was just wondering how much weight people have gained or how severe the gaining and if it can be controlled through diet.
i agree with kaismama about not sleeping if you're in pain before you go to bed. i stuggle with pain 24hrs aday with rsd. i just started ambiem, the side effects for the first few days are doing things while sleeping like eating thing you won't rember the next morning but for the first time i slept, my daughter said i was screaming at the world , roaming the house ,i woke up in the morning found my trash can over by my dresser, a bucket on my bed and all my papers on my bullentine board wripped to shreds didn't know how all that happened. the effects wore off in about two nights i just continue talking and yelling in my sleep. if i can get a whole night sleep my daughter said she'll deal with the talking and screaming. she does come in and check on me nightly. if i do wake up its because of pain and then the rest of the night is torcher cause i can't take another sleeping pill.
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thought about it the pain makes me want to die seriously i hate being awake i feel kill me cause another day is hell for me.
about the weight mine goes up and down depending what i'm taking.
take care,
judi
Sleep is essential to having a good day. The 1st thing my therapist asked me to do was get a sleep study. Did it and found I was only getting 40% sleep of time I was asleep! As for Ambien my wife did crazy things in her sleep like repaint my daughters bedroom, a neighbor washed the outside of her house in the middle of the night "to clean the house for the in-laws"! Needless to say, no more Ambien. I would highly recommend using an iPod if you have one and download a free "hypnosis" app for sleep and pain. My wife with SLE and great pain uses those now instead to sleep. I realize it's a lot of money but some phones offer same app selection. She wakes up refreshed and to no surprises of redecorated rooms!
Have you tried nortriptaline for both pain and help staying asleep?
I've just read a comment by newhope and when I am prompted to comment I get brought to a different comment by another site user. So to newhope the hypnosis sounds interesting... I try a lot of guided imagery and meditation tapes and saw someone for hypnosis and it was guided imagery. So that's helpful. And yes I have tried the drug you mentioned. Thanks for your feedback and time.
Gabapentin does not help me sleep. I suffer from no sleep at night, I finally am so exhausted from tossing & turning I fall asleep around 6 in the morning and I am awake by 10 in the morning sometimes earlier. I tried Ambiem it didn't have me do weird things I don't think(hoping) but I would wake up with horrible headaches. I have fibromyalgia, back pain, knee pain. I weigh 239 pounds which I know is too heavy for me, but I cannot see me going for the 2nd part of the duodenal switch cause then I will not absorb anything, so I would suffer more than I am now. So I am between a rock & a hard place. I know my rheumatoid physician explained why I am on Gabapentin, Klonopin, Loratabs, & Somas, they all work towards different nerves and even taking all that you would think I would pass out. I used too, but apparently my body has become immune to them. I go to bed hurting every night and it is true you won't sleep.
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I have tried watching boring movies, reading, listening to music, I even found a site that says they can do hypnotism online, nope doesn't work. My next alternative is to have my hubby literally knock me out. I hope one of you gets relief from something. I wish you all the best of luck... Always, Liz
I've taken gabapentin and i gained several pounds and continued with severe insomnia.