For those of you taking Midodrine for POTS how does it benifit you?

27 Mar 2010

There are a few reviews, which you may find useful, in the link below.

http://www.drugs.com/comments/midodrine/

18 Mar 2011

Can you update us on how each drug worked for you? I had several cardiologists/electrophysiologists tell me that neither drug is very helpful in treating POTS. Apparently it will lower your HR, but yet the symptoms of POTs (dizziness, headache, fatigue, etc) remain. Was that the case for you?

18 Oct 2011

i'm on midodrine and it has really helped my symptoms. I don't get dizzy nearly as often and has allowed me to continue living a normal life. Before i was on it i hardly wanted to get out of bed because i was exhausted so easily.

29 Feb 2012

ANYONE CONSIDERING MIDODRINE please look it up on the FDA site. Almost no testing has been done on this med. I am take it as a last resort.
Yes I take it. It has (apparently common) severe side effects:palpitations, flushing, hot flashes, itching. Also for me, anxiety. Must start with very low doses (2.5mg) I increased from 2.5 twice daily to 5 mg twice daily and had extreme severe side effects felt like i'd been punched in stomach with every dose, short of breath, palpitations, could barely stand. Now on 2.5 3 x daily. Yes in fact it does help pull up my BP.It is specifically for low BP when standing which is NOT classic for POTs. POTS is typically norm BP but High pulse when standing. I have been hospitalized both times I had this adjusted.It is a potent drug. I am also on florinef, toprol, and digoxin (for heart).

29 Feb 2012

I personally hate the drug. I take it three times a day with Propafenone... both make me feel terrible. Unable to eat,but gain weight. Also,the itching and hallucinations are pretty bad. I've noticed that while I take horse doses of both heart meds it still only controls my heart rate for a few hours at a time. And I've already had 3 ablations of the heart.
Best of luck!