even when i do dishes or laundry i feel the pain so much i just want to crawl up into a ball and cry, its getting worse what can i do?
5 Aug 2011
What medications have you tried? There are many that are prescribed for fibro pain aside from the opiate pain killers. Have you tried Lyrica, Cymbalta or Savella? These are non narcotic and really help some people. Otherwise, a diet high in omega 3's and magnesium and gentle exercise such as short walks might help. Trying to stay active, although you don't feel like it, it is important to the muscles.
Wish I could help you more,
5 Aug 2011
Hi, I have been struggling with an increase in my pain levels over the last year from my fm. I am already taking Cymbalta 60 mg and when I read over the drug sheets, there is no indication in trials that increasing it past 60 does anything to improve the pain levels. About four months ago now, I started using marijuana to help ease the pain. As a rule, I only use it at night before bedtime. It puts me to sleep right away, and I get a pretty consistent 4-5 hours of sleep before the pain wakes me up, which is really important to getting through the next day. I have used some during the day if I have to do something like vacuuming (usually my hubbie does that), but because of the "high" I restrict the daytime use as much as possible. There is a lot of info out there about the use of marijuana for fm and it doesn't have to be smoked (I don't smoke). There are prescription pills called Sativa available which have had some success with pain management.
You would really need to talk to your doctor, and unfortunately, if you are in the states (I'm not) it may be more difficult to get legal authorization to use it. In my opinion, it is worth looking into.
6 Aug 2011
Hi Eve54. I've not been diagnosed with fibromyalgia, however, I have chronic pain every day. It's non-specific; I feel the pain the most in my legs & back, especially across my shoulder blade, & also in my liver area. Many times I'm swollen, tender & sore, at varying degrees. I am just like you, Eve, if I even attempt to wash dishes I usually can only do a few minutes' worth at one time. Most of the time, I use a dishwasher but I do have some things that need to be done by hand washing. I stay inside my house all the time pretty well. If I do have to go down my porch stairs, I hang on to the railing (for dear life! LOL) & I slowly ascend, one slow stair at a time. I feel dizzy & wobbly if I walk or move too quickly. My name's Wendy (& my hubby has a nickname for me) so you're actually chatting with Wendy Weeble-Wobble. LOL
Eve & gailawannabe, I do take 120 mgs of Cymbalta daily. In my own case, I found a drastic change from the prior dosage of 60 mgs. In 2 days, I was already feeling some positive effects! Amazing!
It's been a few months now, the effects have levelled off slightly. In my particular case, it was very beneficial to have an increase of Cymbalta. My pain is at a more manageable level now & I rarely need to use Tramacet for my breakthrough pain any longer.
I'm also 54, Eve. Wishing you good health! from Wendy :)
15 Aug 2011
I can understand and relate to your feelings of pain and frustration. I was dx with fibro 3 1/2 years ago. I tried Lyrica, and I too gained sooooo much weight, it was horrible! Not to mention, I felt very strange sometimes, almost like I was high or drunk. I eventually told my doctor I had to try something else, because I couldnt handle the way it made me feel. So, he put me on a large dose of Cymbalta. That worked well for a while, then they decided to do a combo of Lyrica and Cymbalta, thinking I wouldnt gain as much weight this time. The next doctor I saw, he decided I should be on Neurontin. That didnt work very long at all. About 8 months ago, I was given samples of Savella. This is the latest drug in the line for Fibromyalgia. Eve, it worked wonders. Within a few weeks, I felt so much better. The pain was better controlled, I could function better around the house, I could go back to work... it really made a difference.
Granted it was also more expensive, but my doc gave me samples for awhile to help me out. I take 50mg twice a day now, and it has truly made a difference for me. Perhaps that might be the one to help you out. Talk to your doctor and see if it can help you. I wish you luck in your endeavors. Take care
6 Aug 2011
Hi Eve, and maso and laurie and LL (or Weeble Wobble Wendy) and oh heck, I've forgotten who else answered this already!! Tis 5:30am ish, too early for me!
As maso4169 said, Baclofen works GREAT!!! I have really noticed a huge difference!!!
Also, getting someone else to vacuum helps me, and def on the exercise too! I like to dance, but one must find out what best suits themselves with exercise!
Don't lift anything heavy (guess that was obvious, durrrrrr) try not to do too much in one day, stretch your "to do" list out. My kitchen is built for very tall people, and I always use a step stool to get items off high shelves, I try to avoid hurting my trapezius muscles as that is where fibro peeps seem to have the worst of the muscle knots!! Keep knives sharp, as using force while cooking can add extra pain to your arms. Also, keep heavy pots n pans at an easy grasp, perhaps hanging so you are not stretching up nor bending over to get them.
Also, never underestimate a good bubble bath! I find them relaxing and helpful with muscle spasms. There are an entire host of things you can do or avoid doing to help with pain, but one thing I notice, is to KEEP IT MOVING!!! If I sit around for a day or more, fuggedaboudit !!! Everything seems to get worse then!
Cymbalta made me break out in hives as did lyrica and neurontin, but as my dear friend maso points out, everyone is different, and what doesn't work for some may work for others!!!
Also, try to conciously relax those muscles, as I sit here, right now I find that I am all bunched up in the shoulder area, and I must always tell m'self not to do that!!
I could go on for HOURS on this subject, yet will try not to bore you all to sleep at the mo!!!
6 Aug 2011
Eve, I feel your pain girl. Yesterday was a horrible day for my fibromyalgia. I make myself do some stretches before I ever get out of bed on these days, or I have a tendency to fall alot. I believe after having this horrid disease for 20 years diagnosed, but probably most of my life which is what the doctor told me when he finally did put a name to all my misery. They had me believeing it was all in my head or due to marital and/or other troubles. A lot they knew, huh? I personally have tried almost all of the meds mentioned on this site for this disease, & nothing helps on certain days. I believe you need to try to keep moving. Sometimes it helps, sometimes it doesn't. I haven't been sleeping very well since they changed my meds AGAIN on the 22nd of July. I am about at my wits end. That REM sleep makes such a difference. I will sometimes just take a day off & have a pity party for Mary.
Curl up with a heating pad, muscle relaxers, pain pills, & read or watch a good movie. Make sure it's a movie that can make you laugh a little. It does help. If it's a relative comfortable day, I will take the dog for a walk,. You'd be surprised how much nature or visiting with a neighbor can do for your mood. Be sure to take your vitamins. I take a multivit/mineral, plus 2 calcium citrate with magnesium,& D3, plus I take D 3, 2000MG for my bones extra, Vit. C- 1000mg for muscle cramps(I hate orange juice),& L-Argenine which is a amino acid 1000mg a day. It seems things like the full moon, low pressure systems & other things can aggravate this condition. And why not? are we not made up of mostly water? I sincerely hope something I've said something that can help you out. It also helps if the people around you understand how you feel, which I personally don't believe they do unless they have it too. After all, you look healthy, right? The magazine "Arthritis Today": has some really good hints in it for fibomyalgia patients. I don't order many magazine anymore with the computer, but have been surprised some of the help they have been. Fibomyalgia is sponsered by The Arthritis Foundation. It may be a place to start. Pledge & our little group were speaking of getting together the other day for our morning coffee, & the very next email I got was from Web MD, on Fibromyalgia. It's article of interest? "Skip the caffeine" It was pretty funny actually. Pledge sure got a kick out of it. If you ever want to just talk, just PM me please. Sometimes talking can adjust the mood too. Your friend...
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