I tried Cymbata recently and it gave me 18 days of headaches so I can't take that. I've tried Lyrica, Gabapentin & Ketorolac, can't take any of these either. I also have 2 herniated discs and went off Tramadol to try the Cymbalta... so now I manage my pain with oxycodone 5/325. I cut mine in 1/2 so I'm never taking more than the equivalent of 2 tablets in a day. If I take a whole one I get sick. This isn't enough pain control at all but I'm not upping my oxy dose, I don't want to have to keep taking more and more. I also suffer from anxiety and depression, I really hoped I could have stayed on the Cymbalta as it helped all my issues at once. I have to see my doctor tomorrow and am looking for some suggestions. I do specific fibro exercises which do help to give me some energy, walking makes the all-over pain much worse afterwards, but I do get to the track and just deal with it. I also have an elliptical at home... so I'm trying to stay active but it's VERY hard! I need my pain under control so I can have enough energy just to get through a normal day. I'm very open to natural ways also. Chiropractor's don't work for me, I was told this right from the one I was seeing for a good month. I've tried a bit of massage but the pain is unbearable at times. Kim.
29 Apr 2012
I haven't tried either of those but will bring the names to my doctor on Monday. I've only been diagnosed in the past year so still trying to figure it all out. I had so many people tell me I probably had fibro but basically ignored it until it got real bad. I think when my x left 2 years ago it was a trigger that caused it to come out full force. I've not tried acupuncture since I'm quite clostophibic so not sure I can do it! I should call my naturopath and see what she can suggest too, she does acupuncture. The tramadol didn't help with the all over fibro pain, only my low back pain, this is why I went off it to try the Cymbalta. Weaning off tramadol wasn't fun at all so I think I'm going to stay away from it, being in all this pain plus adding the feeling of the flu to it was not fun! Thanks for your feedback. Kim.
20 Jul 2012
I'm in the same boat. Three HNP, fibromyalgia, chronic fatigue syndrome and I have a full time job, two soccer teams, two girls and I'm a full time dad/mom. My pain is constant level 4-8 all day/night and take 4 a day Gabapentine for fibromyalgia, 1 a day amitriptyline for full body twitching at night, 5 hydrocodone 10/325 for back and leg pain, flexeril for back spasms and liquid crack (five hour energy) for the chronic fatigue syndrome. Sleeping, sitting, walking, everything makes it worse. Yes, I'm over weight by 30 pounds and I eat very health but the weight will not come off. I also am chronically depressed but I guess that comes with the pain for all of us. I don't take anything for depression. I feel like the Dr. doesn't really care sometimes so I don't ask for more meds. I'm interested in OxyContin IS. Can anyone tell me what they think after 5 yrs of taking it how they feel they are doing.
I could stop all my activities but I'm not made that way. I'm a former triathlete, soccer player, swimmer and I cried this weekend watching the Ironman knowing I couldn't drive that distance much less compete like that ever again. My goal is to enjoy my kids every second possible and when I can't do that anymore, my kids will know I did everything I could to be with them. It might put me in an early grave but that's the way I want it.
21 Jul 2012
You should try the Savella mentioned above. I am helped a lot by Trazodone.
Also what has helped me a lot is a Migun bed. It is a platform which has special heated jade balls that go back and forth on body as well as up in the air and down. You should be able to try it for free at any of their stores. I tried it almost every day for 2 weeks and then bought it. It was like I was suddenly 20 years younger with my legs. I couldn't believe the difference. Yes, it is costly, but the whole family can use it as a massage.
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