My life is PAIN. I cannot sleep for pain. I shy away from people because no one understands. God, my dog, and reading my Bible are all that keep me from going over the edge. My family does NOT understand. I have no one to talk to but myself and the Lord and my dog and I need friends who know what this is really like and what this kind of pain can be like. I would welcome any responses. Sincerely, Debbie7
Fibromyalgia, hypothyroidism, degenerative discs, spinal stenosis?
Added 12 Apr 2010:
I can't add much, except I aIso have Raynauds syndrome; a condition that keeps me very cold even in warm weather, especially icy hands and feet.
This is often associated with Fibromyalgia I have learned. AND my memory is shot. I cannot remember why I leave one room and go to another sometimes. Unemployed family members with teenagers and grammar school age child have moved in with me. Sometimes, the noise is not good.
12 Apr 2010
So sorry to hear about your pain and mostly your lack of support. I also have fibromyalgia,degenerative disc disease with 4 severely bulging discs,severe spinal stenosis,celiac disease,osteo arthritis,and now I am trying to find out if I have ra or lupus. I had a really tough time for awhile-but finding a group of docs who really listen and believe me has helped alot. It took a long time to find any pain relief because of reactions I had to pain meds. I later found out this was probabley because of the celiac disease had damaged my small intestine so the meds were not being absorbed. I now use fentanyl patches and they have been a godsend. One other thing that seems to help back and associated nerve pain is neurontin. Don't give up there are others who know what you are going through-and what a strong person it takes to keep up the fight everyday.
I am new to this site and have already been so impressed with all the people willing to help and give suggestions-I hope I can be helpful to others by sharing info and experiences-so please reach out if you need to. My dad lived with severe diabetes from 8 years old on-had nonhodgkins lymphoma,lost both legs because of diabetes,and had heart surgery needing 7 bipasses-yet he was always the one praying for others-never complained-worked full time as a teacher through it all and if you asked how he was-he was always "marvelous"-he passed away 3 years ago and I miss him so much during these difficult times-but I try to feel his spirit by staying strong and positive. Hope and Prayers to you!kim
2 Jun 2012
hi, debbie7 - this is long after you posted, but i wonder how you're doing. i, too, have the problems that you have - i'm afraid there are lots of us out here.
but, if what i think is right, you might - and that's a big "might" - be feeling better one of these days. i'm guessing that you're either not on any or you're on too little thyroid medication. before i was diagnosed, the pain was unbearable. i started levoxyl 5 months ago (i'm still on a low dose - going slowly, because of heart problems caused by the undiagnosed hypothyroidism), and i'm doing really well now.
lots of people - both patients and doctors sadly - think that ALL pain is fibromyalgia or arthritis or whatever. sometimes it's caused by hypothyroidism.
i would suggest that you get yourself to the doctor's office, get a tsh lab test done, and demand that you be put on thyroid medication if your tsh is higher than 3.0; if you're already on thyroid medication, and your tsh is higher than 2 (or possibly lower) and you feel so much pain, demand to be put on a higher dose. it's your right - you're the consumer!
there's no need (that is, if i'm right) to be in such pain. i hope this helps.
12 Apr 2010
Hi there Debbie7,
Sorry to hear about your condition. I have had Fibro for 2 yrs now. I have tried several things. Thyroid meds, organic, and finally gave in to Lyrica. Everything I read said they gained on avg of 40 lbs. Not a good thought on my small body frame. Long story short... i gained 15 lbs in two mths - went off the Lyrica, too many side effects. Started seeing an exercise trainer twice a week. She started me off just going through the motions. She then introduced me to Isotonix OPC-3. Basically its liquid vitamins. It fights off the free radicals that attack you body. I started taking it in January of this year. Two capfuls in the am and two in the pm. for 30 days. Then back down to one capful twice a day. It took about a month, but I'm telling you what..I feel so much better!!! Not sure if its the combination of exercising and the OPC-3 but Im not dropping either one to find out. I still have the sore muscles but I dont ache like I did. I have more energy. Im not exhausted by 7:00 pm. Im enjoying working in the yard again. Please look it up and give it try. Look up the testimonials and read for yourself. I have never believed in something as strongly as I do this. Market America sells it. Or I can give you my contact. It helps so many illness's. Good luck & God Speed! Sincerely reedeli
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