... about 9-10 months ago. I have been in pain for the last two years, but didnt wanna sound like a Baby to my Dr. Finally went in and this is what they said I had. I have been on Tramadol, Cymbalta, Gabapentin, Cyclobenziprein. Sorry for the spelling, but you get it. Nothing has really worked. My doctor keeps telling me hang in there, ya well It's getting old and I need here to do something. I'm a pretty tough girl and I can't even hold back the tears it hurt's so bad. Im always craby, can't sleep and I am missing way to much work. What works for you? How do I get through to my doctor? Im a mom of two kids and can't really do much with them because of the pain... HELP
Fibromyalgia - HELP... Im in so much pain I just can't take it anymore. I was diagnosed with Fibro.?
Added 27 Feb 2011:
Well thank got my doc is sending me to a pain management. Well is that a good thing or what do they do? Sorry I'm so new to thhis.... it worry me it took a long time for a lot of you to find stuff that works? Also I am very into yoga and my doc says it should really help well if that's true why hasn't it helped? It's almost as if she thinks I'm lying...ugh
19 Apr 2013
I'm not sure what to suggest as I too have been on Tramadol for many years now. Some times it does alright and some times very little. Doctors won't hardly prescribe any narcotic pain medication anymore which is a travesty for those who live with chronic and terrible pain. My family doctor did prescribe Trazadone to help me sleep at night. Again there are some nights it works and some nights it doesn't, but it might work to help you sleep as everyone is different in how medications work for them.
19 Apr 2013
I'm reading all the answers about going to a pain clinic, and or seeing a Rheumatologist. About eight years ago the Rheumatologist I had at the time referred me to a pain clinic. I had already been diagnosed with Fibromyalgia a couple of years earlier in another state. The doctor at the pain clinic did about a 60 second exam and then told me I was only depressed and that he would recommend a head doctor. Needless to say I left there in tears insulted and hurt in both body and soul. The Rheumatologist I've had for several years just recently told me to let my family doctor take over my Tramadol prescriptions because she wanted nothing to do with prescribing anything stronger to help with the pain. Even with the information being gathered about this painful disease there is still much disbelief and ignorance concerning it with many doctors still. It's very sad. It's about time all of them get on board and educate themselves in order to alleviate the pain and suffering as much as possible for those who live with it every day of their lives.
18 Feb 2011
You have gotten some good advice so far, so I can't add much but that my sister has fibro and has had good luck with a combination of medicines including gabapentin and skelaxin (another muscle relaxant). My girlfriend had success with the Savella. Lyrica is an improved formula of the gabapentin, that might work better for you.
Just some thoughts,
11 Jun 2013
Just an FYI. A correlation has been found between hyper mobility syndrome and widespread body and joint pain. I have not been dx with this condition but after reading about it i believe this may be the root of some of my FM issues. People with this condition are advised not to stretch or do certain types of yoga and to avoid high impact activity. I found info on Medline.
11 Jun 2013
I really feel sorry and will offer my help thru following suggestions.I had serious heart attack and partial paralysis 2 years back.I have recovered miraculously using following techniques for pain relief.
1.Take second opinion and go for minimum medicines.
2.Start Praying and Meditation -Daily 20 minutes
3.Go for Acupressure, Massage and well guided Physiotherapy.
4.Auto suggestion and Mantra chanting (GODs name which you have faith
for 24 hrs is the best way.Try it pl and i am speaking from experience.
5.Drink Warm water , Try for Veg diet , and improve digestion and overall
metabolism and health .
6.Go for detoxification program and alternate medicine eg homoeopathy
7.right kind of YOGA is the Best Way to overcome pain.
Total Life style change, Spiritual help can and WILL HELP you. God Bless
26 Feb 2011
Sorry it has been so long in getting back to you, I too live with Chronic pain and I live in a state where we got an Ice storm, I caught a fall on top of my original pain, I too have been through many medications, you might ask the doctor if he can prescribe a drug that is long acting such as MS Contin, Fentanyl patches, I was on Dilaudid until I caught the fall and then they finally found a pain medication along with a combination of medications that work together, Pain takes a lot out of you, it affects your ability to eat and sleep and just function through daily living, Try your best to just know that you are not alone, there are many of us here who understand and are willing to help in any way possible, maybe if you focus on making a log of what is happening then the doctor will be better able to see what is going on, I even understand that when you are in pain it takes a lot just to do the little things, My first name is Billy and my site name is Caringsonbj please take care and let us know if we can be of further help
18 Feb 2011
i too have fibro and i'm on soma's and ultrams .i am also a chronic pain suffer and just got put on some really strong meds after 3 back surgeries in just a few short weeks !fentanyl patch has help greatly with my chronic pain and also the pain from fibro !it is a guessing game when it comes to meds for fibro cause what might work for you might not work for me ! please keep going to your doctor until you get the relief you deserve ! and no it's not in your head the pain is real!!!
i have been on savella did great for fibro but ran my blood pressure sky high !i also have been on flexiril and narco's .but pm doctor changed all of my meds after my back surgeries ,she put me on what i was on in the hospital .oxy's 15mg 4 x a day the soma's 3 x a day the ultrams 2 x a day and the patch !can't say that i'm pain free but i'm hurting a lot less!
i hope you and your doctor will find the meds that are right for you ! we all deserve to live as free of pain as possible !you will find a lot of great advise on this site ! people really care and are willing to share their experince with you in hopes that your life may be made a little easier !
18 Feb 2011
I was diagnosed with fibro around last May. I agree with the others, if your doctor is telling you to hang in there and you have been on the meds long enough to know whether there helping or not you may want to look for a new one. It is so important that your doctor listens to you. I think others with fibro. will say the same in that you may try many meds til to find the one that brings relief. I have been on Lyrica, cymbalta, Gabapentin, and a few others. Not only did those not work I had side affects. I am now on Savella which I feel is working. I am also on Flexeril and take it at night time along w/Klonopin, Melatonin. I think taking the Flexoril at night helps my muscles relax while sleeping.
I am also a Mother of 2. And it is hard to do what you want to be doing. Accepting this condition I feel is even harder. hang in there and keep us posted on how your doing...
8 Apr 2012
I'm glad your primary physician is sending you to a main management specialist. When you are in pain, that's what you need if you haven't gotten improvement. The ideal pain management specialist, in my opinion. is one who is willing to listen, who will work to find out what pain meds work. Note: He may prescribe a narcotic pain med, such as Vicodin or Percocet, if nothing else works. As long as you take it as (s)he tells you, and you use it to get enough relief to do something other than think of your pain, you will not generally have to worry on becoming "an addict". You will slowly build tolerance, meaning you may need more, but you won't get high, and you will be able to go about your life. Good luck with that!
13 Mar 2011
I feel your pain. Just wanted to say I've nearly tried every drug out there and have been in pain for nearly 20 years. It only got to a truly unbearable point after the birth or my first daughter. Finally after my second daughter was born have I been able to find some professionals that understand the muscloskeletal system and I have been told that I am very bendy and that my ligaments are too loose so my muscles tighten up to keep my joints in place. Apparently, this is even more common after childbirth. To make a long story short I am doing Prolotherapy now with some success. Please look into it. I had to get referred by my physiotherapist and where I live there is a wait of course to get in as the demand is high. I am nearly have done now and starting to get on top of the pain and feel more human again. Feel free to ask me about it. It is so frustrating to just exist and be in pain. The Dr that I go to also do treatments like Faucett blocks (pain blocks) etc. I don't know much about that but was just told that I need Prolotherapy. Be well and be hopeful.
9 Oct 2011
Sounds all to familiar. I am a Mom of 2 children too and I feel your pain. My pain escalated after the birth of my first daughter to unbearable levels. Tried many drugs but having some success after doing prolotherapy to tighten my ligaments. The ligaments stretched even more after having children increasing my pain. I was recommended not to do yoga but instead need muscle strengthening. I currently see a physiotherapist who needles me. I helps alot to release the muscles. I still have a way to go but slowly improving. Will see if I need a bit more prolo and possibly a nerve block in my neck. Wanted to pass this along. U need to find the right people. It took me over a decade. Don't settle for pain.
3 May 2011
i didn't read all the comments, or i would have to cry in sympathy for the pain described here. i am not a fibro patient but i have a friend and her daughter who both are. when they get into the "give-me-a-knockout-drug-NOW" zone, they go climb into the bathtub and float the pain away. i've known them to float sometimes three or four hours. they toss in calming bath salts - lavender, chamomile, and a few others.
this next part i hesitate to say because it may be extremely offensive, so please understand i mention this only because another friend of mine told me about this. she's got severe chronic pain from a car wreck she was in. she and her husband use BDSM flogging as pain managment. she says after a session is over, a rush of endorphins floods her entire body and makes her feel like she's floating above the pain.
14 Feb 2012
I have been diagnoised with Fibro for 14 years. I was on Vioxx and I took myself off of it right before they banned it. I had come to the realization that all the sleeping pills and other meds they had me on were not really working. I got a perscription for a Hot Tub and go to a lady who does trigger theropy, hot stone massages and regular massages. I stay away from store bought meat with steroids injected cow and chicken meat. I also stay away from floresent lighting as much as possible. Those things can set off a attach for me. I have been drug free since 2003 from all meds as I found out the meds gave me more problems than they fixed. I walk and dance to help with the pain. I am in pain everyday but I can manage it without taking drugs. I have a therapedic mattress that helps me sleep and have to use a small pillow between my knees to release the pressure.
Since I have done these I have cut my pain more than half and even though I am in pain at least I won't get any more problems from all the horrible bad drugs that only give you more problems.
Vioxx gave me liver damage and I tried to get in the class action lawsuit against this very dangerous drug, they would not acknowledge me. They only accepted people who had heart issues from this monster killing drug. Those who were on it be very glad they took it off of the market. I am still fighting the effects of this drug that was taken off of the market in 2004.
22 Feb 2011
I have taken all the meds you have heard about so far except for Savella. The only ones that help me at this time are tramadol as needed and cyclopnezaprine at night for the fibro. Due to the many years (DX 17 yrs ago) I also have chronic anxiety which I take alprazolam in very low dose of .25 as needed. For me it works best to be prepared to change every year what I take as I become immune to most things or start having very serious sided effects. I am working with an internist and he has helped me more than any other specialist or PCP... so far so good... as I am actually doing better than I have. Could be I am on SSI and not working, but somedays I think I could even go back to work if someone wanted to hire a 60 yr old with fibro, severe anxiety and arthritis!!!
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