Fibromyalgia - HELP... Im in so much pain I just can't take it anymore. I was diagnosed with Fibro.?

18 Feb 2011

u feel your pain! i was also diagnosed with fibermyalgia - the doctor gave me savella and it does not seem to be working or i just cant tell that much.. i have been on vicodine also and they just changed it to norco. i recently tried a new med called nucynta and it helped - i was given 10 tablets for free but when i went to walgreens to get a new script they wanted $275 for 90 pills and insurance would not cover cuz it is new - that is why they gave me the norco. i cried cuz that nucynta helped me sleep and gave me 3- 4 hours of being pain free.

18 Feb 2011

Is your doctor a rhumy? If not you need to go to one. One that is very up to date on Fibro. As far as the doctor you see if he or she isn't listening you need a new doctor.
I as well suffer from fibro. but also have other conditons that make me in pain dailey.
Have you had blood work to make sure there isn't any thing else going on such as RA, and Lupus ? If not you should do this.
Elivil works well for fibro. Cymbalta didn't help me at all, a different muscle relaxer might work better than the flexeril. Sounds like the meds you are currently on Need to be changed.
Hoping this helps

18 Feb 2011

Hey em4582,

You have gotten some good advice so far, so I can't add much but that my sister has fibro and has had good luck with a combination of medicines including gabapentin and skelaxin (another muscle relaxant). My girlfriend had success with the Savella. Lyrica is an improved formula of the gabapentin, that might work better for you.

Just some thoughts,

Laurie

18 Feb 2011

18 Feb 2011

I was diagnosed with fibro around last May. I agree with the others, if your doctor is telling you to hang in there and you have been on the meds long enough to know whether there helping or not you may want to look for a new one. It is so important that your doctor listens to you. I think others with fibro. will say the same in that you may try many meds til to find the one that brings relief. I have been on Lyrica, cymbalta, Gabapentin, and a few others. Not only did those not work I had side affects. I am now on Savella which I feel is working. I am also on Flexeril and take it at night time along w/Klonopin, Melatonin. I think taking the Flexoril at night helps my muscles relax while sleeping.
I am also a Mother of 2. And it is hard to do what you want to be doing. Accepting this condition I feel is even harder. hang in there and keep us posted on how your doing...
Jfamily

22 Feb 2011

HI,

I have taken all the meds you have heard about so far except for Savella. The only ones that help me at this time are tramadol as needed and cyclopnezaprine at night for the fibro. Due to the many years (DX 17 yrs ago) I also have chronic anxiety which I take alprazolam in very low dose of .25 as needed. For me it works best to be prepared to change every year what I take as I become immune to most things or start having very serious sided effects. I am working with an internist and he has helped me more than any other specialist or PCP... so far so good... as I am actually doing better than I have. Could be I am on SSI and not working, but somedays I think I could even go back to work if someone wanted to hire a 60 yr old with fibro, severe anxiety and arthritis!!!

25 Feb 2011

I was diagnosed with Fibro years ago. My doctor tried all kinds of drugs until she hit on Vioxx. When it was taken off the market she switched me to Celebrex. It is a cox-2-inhibitor and usually prescribed for arthritis pain. IT WORKS for me.

I have even found out that I am developing some arthritis and it was only through x-rays as I never felt the pain.

Because I was having a really bad time getting restorative sleep, I purchased a foam topper for my bed. At I first got a 3 inch deep one and it was still not relieving the pressure points, so I bought a 1 inch memory foam to put on top of it. I SLEEP LIKE A BABY NOW! (Friends tell me they love my bed.)

I hope you find relief for your pain because it can make me just want to curl up in the fetal position and bawl.

26 Feb 2011

em, I also have fibromyalgia & a hundred other conditions of chrontic pain so I hear you loud & clear! My doctor put me on Lyrica as soon as it was approved by the FDA for my Fibromyalgia & WOW what a difference it did make! My problem is I got side effects from it of ankle swelling & face swelling. These are side effects, but not everyone gets them. It might be worth a try. I also am prescribed xanax to help me sleep, & that REM sleep for Fibro patients is important in the pain cycle. I would suggest you see a Rhuematologist for the Fibromyalgia & maybe write down a few suggestions you get on this forum. Tell them what you are getting now, just isn't working. I hope if you try the Lyrica you have prescription coverage as it is expensive. I wish you all the best. I will friend you, & you can send me a private question if you like.

26 Feb 2011

Are you a single mom? If you have one, let your signifigant other take care of the kids for a while, barring that your mom or your sister, till you get right.
If I were you, I would call my doc, and tell him that you can't "hang in there" and I would ask him to admit me to the hospital tonight. If you are not functioning and, more importantly, not sleeping, you need medical attention, it's the weekend so you can't just go see your GP (or whomever) tomorrow.
Sweetlemon is a good one for fibromyalgia questions - she is aces.

26 Feb 2011

Hey em4582:
Sorry it has been so long in getting back to you, I too live with Chronic pain and I live in a state where we got an Ice storm, I caught a fall on top of my original pain, I too have been through many medications, you might ask the doctor if he can prescribe a drug that is long acting such as MS Contin, Fentanyl patches, I was on Dilaudid until I caught the fall and then they finally found a pain medication along with a combination of medications that work together, Pain takes a lot out of you, it affects your ability to eat and sleep and just function through daily living, Try your best to just know that you are not alone, there are many of us here who understand and are willing to help in any way possible, maybe if you focus on making a log of what is happening then the doctor will be better able to see what is going on, I even understand that when you are in pain it takes a lot just to do the little things, My first name is Billy and my site name is Caringsonbj please take care and let us know if we can be of further help

27 Feb 2011

I'm finally on a combination that works for me. After YEARS on tramadol and ativan! I feel reborn. I use a once a week patch called Butrans *buprenorphine patch*, which we just increased from 5mcg/an hr to 10mcg/an hr. As well as Naprelan CR, a continued release 500mg version of naproxen. Once a day for that. 12.5 mg Savella twice a day. And I have 7.5/350 Lortab for breakthrough pain. The patch is technically a Schedule III controlled substance, BUT doesn't feel like a narcotic AT ALL... I can function fully and don't feel at all drugged up. This is what works for me. I will pray you can find a good dr and a system that works for you. Best wishes!

27 Feb 2011

Good for you ! I am so happy that you are finally going to get some help you desparetly need. Be prepared. Take notes. Write down all your problems, and all of your questions. Be sure to include meds your on & meds you've tried that haven't worked. It makes it a lot easier. Sometiemes we get what's called Fibrofog, & it's hard to remember or do anything. So get ahead of the game & please be prepared. I have to do this with every doc I see. I've have had Fibro for over 30 years Join the Fibromyalgia group if you haven't, & of course the pain group. Sleep is very important with Fibro & (hate to say it) exercise! Just stretching will help. Chiropractors are helpful also. The sleep part you may need a script of Xanax or Trazadone. Might ask about a script for one of them also. REM sleep is so important for Fibro pain cycyle. Good luck to you, & I hope all comes out the best for you. Remember to write things down, & ask all kinds of questions.

27 Feb 2011

13 Mar 2011

I feel your pain. Just wanted to say I've nearly tried every drug out there and have been in pain for nearly 20 years. It only got to a truly unbearable point after the birth or my first daughter. Finally after my second daughter was born have I been able to find some professionals that understand the muscloskeletal system and I have been told that I am very bendy and that my ligaments are too loose so my muscles tighten up to keep my joints in place. Apparently, this is even more common after childbirth. To make a long story short I am doing Prolotherapy now with some success. Please look into it. I had to get referred by my physiotherapist and where I live there is a wait of course to get in as the demand is high. I am nearly have done now and starting to get on top of the pain and feel more human again. Feel free to ask me about it. It is so frustrating to just exist and be in pain. The Dr that I go to also do treatments like Faucett blocks (pain blocks) etc. I don't know much about that but was just told that I need Prolotherapy. Be well and be hopeful.

14 Apr 2011

a pain specialist is what u need honey they are trained to help u in these situations your other doctor probably doesnt know much about ito treat it with meds and such pain management should get u out of pain mine gives me a small treatment doesnt hiurt trigger point and then she writes me myy pasin meds and ia m out of there but i also do physical therapy at home and use an empi machine three times a day
hope this helped janymak