Has anyone ever tried Neurontin for Fibromyalgia pain?

Hi, If Gabapentin doesn't help, another new prescription that my physiotherapist recommended is Lyrica. A co-worker switched to that and has been thrilled at how well it works. Her mind is clear on it, and the pain is under control. Maybe ask you doctor about trying that, no real side effects that we've heard of. Good luck!

i have been on lyrica was on it for about a year when out of the blue my eyes started swelling almost shut so i had to come off it

my ex was taking lyrica and she went crazy! she had about five crazy breakdowns while we were together for like six months... i wouldn't recommend it.. she is taking soma idk how to spell it but she says that it works wonders! sorry and best of luck to you

I was on nuerontin once - like so many of the other drugs it didn't help. Sorry.

Suzanne

I used neurontin elavil tripleptal as far as the neurontin I didn't like them thats why the switch

I tried neurontin a while back. Could not handle the side effects and did not seem to help the pain at all. Just recently I tried lyrica and I still wasn't on the recommended daily dose (whatever that is), it did begin to help with the pain but the side effects were devestating!!! I know everyone is different but PLEASE beware it can turn you into a different person, it did to me. If you do find help, please let me know since I am still looking for help.

Yes it helps some, but a combination of physical therapy - neuromuscular therapy and medications is what is helping me. Don't expect any one thing to do it all.

I have been on neurontin and the only thing it relieved was pains in my legs at night. I am now on Savella for fibromyalgia. I hear it's a great medication, i've been nauseous but don't seem as exhausted.

Neurontin caused the side effect of not being able to find words - I would have to play 20 questions with my family giving them hints so they could try to figure out the word I couldn't remember. It was very frustrating. I've been on Lyrica now and it does help a lot, but has caused a lot of weight gain, and swelling in my legs. Seems everything has a lot of side effects.

I agree with wyzwolf, I've heard that Lyrica works wonders for fibromyalgia!!!

I didn't care for it. lyrica and Tramadol 37.5/325 has worked well for me. you just have to try for yourself til you find the right ones Best for you! Good luck! also I take
Elavil, Flexiril, Cymbalta, Mirapex, Lodine

my son is suffering from fibromyalgia and they took him off lyric it was awful he felt drunk and would fall down and hurt he self more but he just started taking net so were crossing are fingers but he takes cabalet and lortab 10 and mobic he also has RA

I have tried Lyrica. Worked at first but then began having problems with side affects. Also tried Neurontin and I didn't like that either due to side affects. My doctor is now having me try Cymbalta. I'm hesitant to say this, (don't want to jinks myself) but I think it is helping.

Took it for 3 days for fibromyalgia. The side effects, nausea and dizziness, were too much to handle. It didn't do anything for the pain. Maybe I didn't give it enough time, but I can't handle stuff that makes me feel like barfing. Fibromyalgia sucks big time.

I have been taking neurontin for years and it has really helped with the burning and the numbness. I also have Lupus and R.A. Many other problems too, but that's a story for another day. Hope it helps you.

I actually understand use of Neurontin for pain is a rather off-label use; it is normally used for either epileptic seizures or bipolar disorder. I am on it for nerve pain. I don't think my doctors know what is wrong; xrays and mris show degenerative disc disease and facet arthritis in my hips, lower back and neck; also cervical and spinal stenosis; and loss of nerve and muscle function on an egd and ncv done on me. Nsaids, narcotics and tylenol don't help and now I can't take those because of nonalcoholic fatty liver disease and the neurologist thinks I have fibromyalgia! Cortisone shots don't help me either. Anyone else with this problem?

Yes I was on it. No side effects and unfortunately it didn't help. When I asked Dr Why? he said I had 'referred' neuropathic pain and sometimes it doesn't work with that. I hope it works for you because it's horrile pain. Dill

I take 300 mg 3x a day and it really has helped me. If you are lactose intollerant, take a lactaid to prevent stomach upset with this medication.

inpain777
Well I read a little of the answers and looks like I'm the rare person who gabapentin has helped. I was on Lyrica for about a year 2006 and yes I felt some side effects but it did help my fibromyalgia. I was later prescribed Nuerontin and I got better results. I have been on it now going on 5 years and have had one dosage adjustment but at least those symptoms are under control. I vaguely remember some light side effects but they have receded as my pain levels from my neck problems have increased. Just as the previous posts have said the best that you can do is keep trying different meds until you find one or several that works. Good luck to you. B

Yes I have been on neurontin now for about 9 months. My dosage was just upped from 300mg a day to 900mg a day. I have had severe fibromyalgia now for 4 years. These medicine has helped with the neuropathy pain tremendously. Also my doctor just started me on nortriptyline, 25 mg a day for 3 days then 50mg for 3 days, then 75mg for 3 days and finally 100mg thereafter. I can not begin to tell you how awful this muscle disease is. I was just awarded my permanent disability because I have such a severe form of it. My oldest sister has it as well, but she has a VERY mild form of it. Why hers is mild and mind is SO severe, heaven only knows.

By HIS Amazing Grace,

Linda

i have fibermyalgia been trying to find the right meds for me..first they gave my lyrca it just hated my body.so i tryed cymbolta that was good if i wanted to sleep 24 7 So i take elivil and my feet pain is alot better but when i have fiber fogs nothing helpso the is my new meds the doctors want me to work with.i take elivil for my feet pain i take tramadol,neurontin.clexeand ambein to sleep i am us to all these med except the neurontin that is new to me lyrcia mad me sick and cymbolta i just wanted to sleep allday so i am hoping for good meeds to come through and stop our pain hope the new one works ,

I've tried it and it did absolutely nothing for me! I have had fibromyalgia for 11 yrs. now. Narcotic pain meds are very effective on me. I knw every body is unique and what may work on some of us... wont work on others...
good luck to you!

The most reliable rx i is Soma. also hydrocodone. Get 2hrs of sunlight a day and move around. I know it's hard but ithelps alot if u stay active. Neurontin made me turn stoic like. Also made me feel like a zombie..not to mention alot of weight gain and edema. Personally, i would not recommend it.

I have taken it before and yes it helped a lot for fibromyalgia..good luck..

Lucy,
I have been hearing a lot also about the lack of vitamin d with fibromyalgia..I have crohns dx,fibromyalgia,pelvic adhesive dx, pelvic floor tension, severe 42 degree scoliosis with impimgment,degenerative disc dx plus 13 reconstucfive surgeries after I tore during childbirth ..I take duragisic 100 mg and oxy for break thru and soma..nothing seems to work anymore after nearly 10 years ..i do not absorb properly because of the crohns dx but my doctor will not up my patch ..I am just so tired of pain everyday..

I know you have had a lot of answers, I have not read them all but I just started neurontin/gabapentin and have had a lot of success with it. Lyrica swelled my lips..weird huh.

Hi,iam on gabapentin 2400mg.Was paying for lyrica 45$ for a 4 day supply.Was on 200mg 2 times a day.Well had to go back on the gab because of the $.Lyrica helped me so much more with a lot less meds.Most insurance comp will not pay because no generic,not for a while i was told.22 operations just on leg,4 doctors of mine appealed it and still was turned down.iam not sure if anyone added this which i did not see is,it used for manny reasons.The one i would like to add that may help someone out was,its also helps opiate withdrawals also.
Hope this helps someone,
Hannible.

I was dx with fibro/cfs about 8-9 yrs ago,, and just recently with lupus, I also have R/A Hep-C and osteoporosis , Oh and lower back disk issues.. ok the quest was about (neurontin) of all the opiats I take this drug helps the best (for me) I take 400-milgs 3x a day It's great espicially for the fibro pain, & tinggelling i get in hands & feet..Oh ya I have diabetes to.. I take metformin for that

Anyone with fibro should have their vitamin D checked!!! i was diagnosed w/fibro
and during the process of elimination they found my vitiman d was 7 (30-80). That helped my pain more than anything... I do take neurotin for OCD it did not help fibro.

I was on it for about a year, I thought it helped a bit, but I gained almost 100#, I thought it was just inactivity, but when I went off it I lost 75# without even trying... amazing for me!!

Neurontin for Fibromyalgia pain. Yes I've taken it before for my Fibromyalgia. It was a good med for me for awhile but I gain alots of weight. I'm currently taking Amitriptyline 37.5mg at night time. I started out at 25mg at night. This med has helped the most but it seems to be habit forming. I also take Melatonin 18mg at night to get to sleep.

I'm so sorry..but did you regain your memory ?

hows the savella doing ? are you feeling better ?

Hello yes the Savella has helped Me. My pain and stiffness in my neck and shoulders has not been hurting as much as it did before. I still do have the Fatigue, I quess that will always be a issue with Fibromyalgia. I don't know what kind of medicine out there that will help the Fatigue problem. So if anyone out there has had a medicine that has been precribed for extreme tireness, Please let Me know!

I have only heard of neurontin being used for norological problems. I did no someone with this and she was on Lamictal. She also wore patches she could move or put where the paiin was the worst. Sorry I do not know more. God Bless Good Luck

the savella may not be right for everyone i for one could not take it frist i had suicidal thoughts that was severe then i went to exterme hositlely so if anybody is taking this please be very careful i was on it for about 3 months before it started messing me up

I tried Neurontin and many other meds. None of them really helped. Narcotics can help, but you are too young to start on that drastic idea. I am not really sure they help all that much, but they allow me to keep working. If I couldn't work I would have a new problem -- boredom. I really like working and need the activity and interaction wih people.

I take lyrica and it's been a life saver. I still have bad days but now get out of bed everyday which is a good feeling. The only downfall is the cost. There is still no generic and without insurance is would not be able to afford it.

Luvdazy,
I am new here, so glad you posted..I have crohns dx, fibromyalgia,arthritis,13. Reconstructive surgeries, a colostomy bag,pelvic floor tension, pelvic adhesive dx..among just a. Few , my scoliosis is a severe 42. Degrees..so there for pain is bad, I have been on fentenyl for many yrs, maybe 6 and it is not doing anything..how were you when you weaned off it, why did you? And the neuron tin really worked because it didn't for me very well..I have reached a point where pian medications just are not working anymore..what is your advice? Scared of withdrawals from fentenyl..mine are bad, my crohms flares I get super, super sick!

when,,when,,, will our prayers be answered ? i had so much to add bt too tired just now..i wish all who are sufferring , (relief) ... and I will keep praying ^i^

Yep, fibromyalgia keeps one from sleeping all night if the pain is bad enough.
My nerves still radiate down my legs and it's been almost 3 years since my diagnosis and the sciatica the summer before that doctor visit in which I suffered with thru that summer [2010]. I hate it! I also have Thoracic Kyphosis Acquired, attributed from bending over the side of the bathtub for years to try and save time washing my hair. I don't do this anymore, I don't want to make it worse. I did this when I colored my hair too, I thought I was saving time, but instead I injured myself and needed to get physical therapy [3 different years, different areas each time]. I also sprained my knee doing a quick movement and ended up aggravating my ACL and my sciatic nerve with that too so my nerves were radiating all over my whole body.

I was able to drop my pain medication in half after going on an anti/depressant ..those receptors in the brain work hand in hand..when the pain receptor is triggered, the pain is..and vice-versa..I really believe in them after 11 years of severe pain and not being able to control pain I can now stand straight, go for walks ..etc

Hi, I too suffer with fibromyalgia and take cymbalta for it,helps a little bit,so for now i'll take that till My Doctor tries something else. I have a whole lot of medical painfull problems,and to top it off also Bi-polar,anxiety, osteoporosis, 4 herniated discs in Lumbar region. so I have been suffering for well over 20 yrs. Lyrica did not help me at all. I hope and pray that soon we all will have a medication or herbal treatment to help us get rid of the pain, My Prayers are with all of you!

Good for you in taking charge of the bed situation. I hope the bed works. Anything is worth a try. I have not been to bed yet, I was up all night with flu like symptoms, don't know if it was related to the meds i take or if I now have the flu! I think if people with Fibro. could get a good night sleep that would make a HUGE difference, Good luck and let me know how the bed works out when you get it.

thank you missy..i spoke to the regional manager on mon, explained what happened, told him i refuse to pay a dime..all i want is my exchange since its not my fault once again the bed has defects, anyway, he gave me the tempurpedic, with the special low profile frame which he said is 200 bucks more, but he threw it in there ... so i dont pay anything more, and im satisfied... being that he said its a special order, i have to call him on monday ( i hope he didnt mean special order with bed bugs ) cause on the consumers affair site, that is a major complaint with this company... sooooooooo, you know ill be up all night once again lookin for bugs, lol... i really hope this helps me... all im askin is for at least 2 nights out of 7 of sleep... i wish someone out here can give us a magic pill... how are you ??

Hello ,

I have had Lupus for since I was 22ys. old, I am going to be 56 this month, six years ago, I was told I also had Fibromyalgia, I have been on so many different meds. Including neurotin, it made me foggy, caused bleeding ulcers in my stomache, and now my hubby was diagnosed with something called Cerebellar Ataxia? I couldn't take the neurotin, he (my hubby) has been on a low dose for over two weeks, just yesterday he began vomiting for no reason, no flu etc. Woke up this morning with same, the only thing new is his meds. Now we have to wait until Monday to contact his neurologist to find out if he can quit the meds or if he needs to wean off, I cannot remember how they do that.
However, like someone else stated each of us have such different reactions to meds, it is worth a try if you can get some relief. Bless You, you are not alone in this. :)

Yes we own a tempur pedic bed remote controlled, as we both needed one badly. After a over a year and a half I got my doctor/ neurologist/ rhumotologist/ GP/ and surgeon to write me a RX for a tempurpedic bed. I submitted all them to my BC/BS carrier and they paid about fifteen hundred toward a four thousand dollar bed. I tell you all the drugs in this world could never compare to the best night's sleep I have had in over 20 yrs. sleeping on a spring mattress. I can control the foot and head of the bed by remote, I am thankful we made the investment. No tossing and turning, I am very thin so it molds perfectly to my body. I am 5'3 and weigh 99lbs, sooo... The down side, it takes a few minutes for it to return to it's normal state. My hubby got out of bed, he's six feet tall, 198lbs. and I rolled over, into his "pit" he left, I couldn't move. LOL.. so be careful, just a bit of humor to lighten the mood, albeit, true story. I make sure I don't roll over for a while after he gets up.

Bless You and good luck

My husband and I have a "Select Comfort" Queen size bed with pillow-top. You can adjust the hardness or softness with a remote... so if you're in a flare, you can soften or harden it.
I highly recommend it!!!

Select Comfort is a Godsend for any chronic pain! I have low back issues and I LOVE my select comfort!

I couldn't afford a new tempurpidic bed so I bought a tempurpedic overlay of 2inch or 6cm thickness for around $200. That made my bed much more comfy so I ended up buying another and now it's like sleeping on a cloud and so much cheaper than a new mattress. I am definately sleeping much better and I think the pain is not so severe.

once again,,i thought i was one of only a few who ( didn't / couldn't) sleep ... i can fall asleep..never STAY asleep.. i sleep for 1-2 hrs & Im UP... i can get back to sleep ... again for 1 hr & UP... for I can't remember how many yrs now... Im to go to a sleep center,,I don't want to be on sleep-meds besides Im sure nothing will (KEEP) me asleep..

I bought a Tempurpedic bed about a year ago they are Awesome. I have had Fibro,yalgia for 30 years & sleeping was so very painful. But now I lay down & it feels like I am on a cloud. I sleep all night & wake up with very little pain.
They are expensive BUT SO WORTH IT !

i am so glad i found this site !i can now chat with folks who have fibro and know what i'm going through !i also have chronic back and stomach pain .not caused by the fibro but the fibro does make them worse i feel !i got a tens before my back surgery and at that time it was a God send !sad to say at times nothing touches my pain ! not the neurontin or the narco and the felixril
helps calm my muscle spasms .(sorry not the best at spelling but i hope you know what i mean?)and like you i was told i had ibs,cfs,rls,and so many others before i was told it was fibro !
and i still have those days when it is hard to get out of bed ! but i want to live as long as God will grant me !and staying in bed isn't going to help me !

i am glad to know there are those out there that are willing to give advice and help to others !

thanks for sharing !

Responding to Miss Brenda Fain: I agree with you, Miss Brenda. Hard for me to get out of bed, get a good night's sleep, not wake up still feeling tired and fatigued. I agree that staying in bed all day is NOT God's Will for me. Besides, I have morning meds to take, and I'd be shunning my responsibilities-like taking care of my cat. All of those things are also not God's Will for me. I recently started back on the Gabapentin bc my fibro had gotten way too far out of hand. It helps with my fibro in general terms; but my various aches and pains never totally go away anymore.

I also am afraid to try it but appreciate hearing from experienced users. They tell you you're not alone being in constant pain but it seems like all aound you people are really living. It seems like a cra*@ shoot getting properly diagnosed and treated in our society.. I wonder does anyone know if other countries have scads of people suffering with pain and not enough relief to function or do they have more and better answers than here in the USA.

You touched on an area that we who suffer with fibro do not understand. Why is it that we have a high sensitivity to pain medicines but a low pain threshold. My fibro specialist told me that those who suffer with fibro has a high sensitivity to pain meds, which means it takes a lot of pain meds to work on our pain levels but we have a very low threshold for pain. One is in complete opposite of the other. I am very leary of going on an addictive type pain medicine, I currently take hydrocone w/ tylenol. My dosage is 500/325 three times a day. However I try to keep this level at only twice a day. I was placed on tramadol but because of the serious side affects to the liver my doctor elected to take me off. I still have to take 400 mg of naproxen to get me through the day. Has any one else experienced this that you are having difficulty control the pain thresholds but need to be able to function through out the day as well? Please comment.

Suffering w/fribo now for over 4 years!!

I am currently taking 900mg a day. 300mg three times a day. I ran out about a week ago and boy could I tell the difference. You bring up a very valid point and that is the weight gain. Also I am experiencing severe insomia. Any one else having this type of a problem. I was just added nortripyline and now I am wondering if this could be the contributing problem. I have been on the nortripyline now for about a week. I take 100mg of this. However, I have been experiencing insomia for about 3 1/2 weeks now. Any suggestions or comments would be greatly appreciated.

Did you ever find it made you depressed, or if youve been depressed made it worse ?

To INPAIN - I noticed this is an older post, but if you see this - you sound SO much like me, and I would be glad to talk to you via email. Like you, I feel like I am alone in this though I tell you, joining this site today has been the BEST thing I have done in the 14 years I have been in this 24/7 from these illnesses! Such lovely people here! Only sownside is I am in tears reading about so so many in endless pain, like me. We deserve a LIFE, a pain FREE life. God bless everyone on this forum!!

Tens unit has not helped me at all, and yes I also take gabapentin 900 mg a day. The onlt thing that has happened to me is 30 lbs of weight gain :(

Hi SCIFgirl! I too had to have a major rotar cup surgery last year. Because I already had a severe case of fibro it really compounded the healing process. I myself can tell a big difference taking the nuerotin. Now my doctor has added noritripline (sp). Any one taking this medicine, if so how are you responding to it?

Gosh, sorry you had to deal with that. Yeah, I remember the person I was too.Running from one job to another, very physically active, and now, I plan stuff around the two hours of pain free time I have after I take my oxecodone. The rest of the time Im in bed, too tired or in too much pain to get up. I take 600 mg of gabapentin at night, it helps me sleep. I think most Drs are pretty poor at helping us. They are terrified of perscribing pain meds to legitimate sufferers so they let you suffer for years before you get any help. And all my problems came about because of a reaction to Cipro !

!

From the insert with my neurontin you are caution about going off of it suddenly. It goes on to say that it can cause heart problems if you don't taper off of it.

I took Neurontin for nerve pain related to nerve damage. The side effects
were horrible. I only took one and " No mas! ". I have known with neurontin side effects that were bad; worse than what they were prescribed for.

Subutex is also used for mild to sever pain and I have taken it. It works and I like it because you don't have the highs and lows of narcotics.

i am on soma for my fibro and this seems to help me ! i was on savella and yes it worked wonderful but it ran my blood pressure sky high so please be careful!
i am also on ultrams and narco's due to chronic pain on my back and stomach.i just had two back surgeries a day apart and they gave me oxy's for pain due to surgery and niroton to help with the nerve pain !soma is a muscle relaxer but it does help with the fibro pain for me ! hope you find the right meds for your fibro ,it's a trail to find what will work for you !
we are all different and meds work differenly on us !

Brenda, would you please friend me? I have a private question to ask you & can't! Thanks, hon...