Experienced severe neurological effects on neurontin risk of the same w savella?
- Posted:
- 24 Feb 2011 by fybromama
- Topics:
- lyrica, neurontin, vertigo, side effect, savella, confusion
Details:
I have fybromyalgia and the first med, cymbalta..nothin no help added Lyrica, well it was like being extremely drunk ALL the time. I took that short term as I was dangerous to my self confusion, fainting SEVERE vertigo after I fell down the steps I changed to neurontin.
Neurontin the side effects increased from general confusion, vertigo and babbling the first 3 months. New side effects including seizures, eye tracing, severe confusion, balance issues, loss of concentration, blackouts , inability to read and more so I quit taking tha too. On to savella
Is there anyone who had similar or worse side effects with these drugs who now take Savella. Some of the listed side effects are the same, though I know this drug is in no way relatrd to Nuerontin and its predessor Lyrica I would like to know if anyone was in my shoes and has found sucess with Savella
25 Feb 2011
Good grief, why are you still taking these meds if the side effects are so bad!? There are other options, and if your doctor isn't willing to present them to you, then you need a second opinion and or another doctor. I found little to no relief from Cymbalta, felt drunk at first from Lyrica, then as it built in my system, just felt dizzy and sick. I then was put on Methadone, and that really took care of the pain. It's the only Opioid other than Tramadol that helps with nerve pain associated with Fibromyalgia. Tramadol with long term use is habit forming, and provides very little relief for most people. The benefit vs.
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harm ratio doesn't make sense with Tramadol, however, if you have a good heart (you would need an EKG before going on) Methadone really was a life saver! I don't feel drugged out at all, I just don't feel the fibro pain! It really is something that you should look into, as long as the doctor is familiar with the med, and understands the risks and the need for an EKG. For a while, methadone was being prescribed by doctors for pain without knowing the potential risk of heart arrhythmia. Due to this lack of knowledge, a ton of people were dying from the med, taken as was prescribed, thus the reason why some doctors stay away from the med, a safe drug as long as the proper tests are run. Regarding Savella, unfortunately I do not know if it's a worth while drug or not... however did want to let you know about the methadone option for fibro pain.
Good luck to you, and hope that your feeling better soon!
Jeff K
18 Mar 2011
I hope that you're seeing a neuorologist for all these meds that effect your brain! And you can NOT stop most of these meds cold turkey, they have to be weaned gradually. Especially SSRI's or SNRI's (both Cymbalta & Savella are SNRI's) - it can take MONTHS to wean completely off some meds because everyone processes them differently. If Cymbalta didn't work for fibro, then why add yet another med to it? Why not just take a single medication, like Neurontin? As for the issues you had with the Neurontin, maybe your dose was too high? All these meds can wreak havoc on your brain, as you are experiencing. If you were having seizures, babbling & blackouts, I pray you went to a neurologist! If I were you, I'd keep a diary of my daily symptoms & EVERY medication you've tried. Also, educate yourself about the different kinds of meds used to treat Fibro (SNRI's vs GABA agonists, etc.) so you know exactly how they work in your brain.
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If you live near a big city, I'd suggest seeking a specialist at a teaching hospital, someone who's current with the latest research. Best of luck to you!
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fybromama
jk13
I meant to say "as for the issues you had with Lyrica". I hadn't slept when I posted the above. I just started taking Neurontin for PLMD & possible fibro. only on day 2, so not sure yet if it's helping.