... injury in '05. It was controlled with Mobic for years and then 4 years ago I had to start taking pain meds for it occasionally. Well in August of last year I fell twice and ended up with a bulging disc at L5-S1. My pain increased by a lot including severe sciatica of the left leg. After a long ordeal of being shuffled from doc to doc I started epidural steroid injection in December. I am to have one every 3 weeks for 3 shots. I had severe pain for about 4 days following the first shot, then a return to normal pain levels, no improvement. After the second injection I had greatly increased pain for 7 days and then a severe flare landing me in the ER. I have had difficulty urinating (now have a UTI due to this), continuous stabbing pain at the injection site and following the injection path which makes it impossible to sit for long, increased sciatic pain on my left leg and NEW sciatic pain in my RIGHT leg, severe back spasms, and numbness down my left leg. Has anyone else had experiences like this with steroid injections?? My doctor is not taking me seriously at all. But the nurse said this happens several times a year with patients at this clinic. Is it the med or are they screwing up the actual injection process??? Please help
7 Feb 2013
My god you've had a time of it. I am so sorry to hear about this. I have almost the exact same condition as you. I've had several steroid injections, plus got six nerves burned. None of it does a damn thing to help. Listen, this is just my opinion but if I were you, I'd get the hell out of that place. This sounds like a very badly run clinic. My injections (totaling over 12 I think) never caused lingering pain or flare-ups after a day or two. My pain did return every time, but what they are doing to you--- this just screams WRONG to me. Please don't continue to subject yourself to this. You obviously have nerve damage/ impingement and you are in pain around the clock most likely. Even if you can do nothing else, why not try a trusted, recommended, ethical chiropractor just until you can find a better pain doc? Chiro's can do a world of good even if you're as far gone as I am. Best of luck and big hugs to you. Let us know how you're doing!
10 Feb 2013
You should really consult a neurosurgeon. If your back pain is making it difficult to pee, and you have weakness and pain in your legs, this can be a medical emergency. It can be due to too much pressure and impingement on the nerves. I agree with the above poster. Get the heck away from this clinic!! They make a lot of money on these injections and it sounds as if they are doing so at the expense of the patient. Run, dont walk! Find yourself a new Dr! I would consult with a neurosurgeon. If there is enough impingement on the nerves you can have permanent damage so it is NOTHING to mess with.
13 Feb 2013
I had a similar, but not as severe, experience with back injections. I got them, spent a few weeks with increased pain recovering from the injection, then when recovered had no pain relief. If you don't get any relief (or god forbid, worsening of pain and new symptoms!) from the first injection/series of injections, then they're not going to work the next time and you shouldn't get anymore! I agree with the others, drop this doctor and get treated ASAP for the urinary symptoms! It can be a symptom of something severe going on with your back.
1 Apr 2013
Listen when any treatment does not work and it sounds like your doctor is not listening to you or to your complaints of higher levels of pain - it is time to run not walk out of that door and I would consider writting a letter of complaint to the medical board because a physician takes an oath to FIRST DO NO HARM and here you are complaining that your pain level has increased and our symptoms have increased and now you have added a UTI to the medical issues - this doctor is not taking you seriously and even if he/she does not know what to do next, at the very least an additional consult with another doctor is called for -
I suggest that you make an appointment to see a new pain doctor and a new neurologist and an orthopediest so you can be evaluated and then ask your new pain doctor to speak with the other medical specialists and then let the different doctors all work together to come up with a plan to help your reduce your chronic pain and to find out why your pain level has increased and why you are developing a UTI and how to prevent them from reoccurring -
You are entitled to good medical care and you are hiring each doctor for their medical expertise but the decisions should be yours - your doctors can recommend different avenues of treatment but you are the paying patient and you get to decide how you want to be treated - hiring a doctor is no different from hiring a roofer or a plumber -
you value their opinion and their expertise however the final decision as to what work to move forward with lies with you and while you take thier opinion into account, you do not let them make your decision - this should not be any different when you are dealing with the medical community they are specialists and you are paying for their opinions and then you decide how to move forward.
How dare they dismiss you and or your feelings - If the doctor does not treat you with respect then you need to move on and find a doctor that will - doctors put their pants on one leg at a time just like the rest of us - they are people and they make mistakes and they are not perfect and they cannot discount your feelings and they can't chose to ignore your symptons - they do not have that right. Doctors take an oath and part of that oath is respect for the patient. The doctor is entitled to his/her opinion however they are required to respect their patients and they also have an obligation to explain how and why that are treating you and you are entitled to understand that treatment plan and you are also entitled to know what different treatment plans are available and you arre allowed to chose which plan you would be most comfortable with pursuing even if it is not the plan most favored by the doctor. They are the expert however you are also an expert when it comes to your body. Just like with medications - if the doctor says you need antibiotics and the doctor favors one specific brand - if you know that your body has had excellent results taking a different brand then that doctor should welcome your information because no one knows you as well as you do so while the DR is a medical expert he/she is not an expert in what works best for you and or with your body. Believe in youself = you are paying this doctor for his work and you are entitled to all of the information pertaining to his treatment plan and you are allowed to disagree and to request a second opinion.
Please seek additional medical opinions and trust in your feelings - if you are not feeling like you are being listened to or properly cared for, then find another doctor that respects you and listens to you. Your feelings matter.
I will pray for you - Good Luck Angela
12 Aug 2013
I never got any relief from those epidural injections - just had to go through all the side effects from the steriods. Just be sure not to fire your old pain specialist until you have a new one who definitely will prescribe your pain meds. It can be tough to find a doctor that will in this world of doctors being afraid of the DEA coming after them. Just saying - don't fire him just yet.
20 Sep 2013
omg, the exact thing just happened to me; august 2013, i had my first set of inj for l4 and l5 discs and the pain went away for 2 weeks; then my second set 9/11 didn't give me relief when i left the hospital and then the next 8 days were the most painful of my life; i was literally laying in fetal position for that long at night and the meds i already take for my RSD didn't do ANYTHING; NOTHING!! i couldn't even walk it hurt so much, then you get depressed over that excruciating pain, and that knowing you are just going to have to deal with it. but woke up today and can walk and looked at my husband and said "omg, the pain is almost gone!!" i don't know if it took that long to work or what?? but something happened; anyone else with the same results; its better than the initial pain, but not sure i want to do them again, as the last 8 days were LITERALLY EXCRUCIATING!!
15 Jan 2015
I am going Friday, Jan 16th to get my first epidural injection for a bulging disk on the left side/bottom of my back. I get pain in both my legs sometimes, but mostly the pain is in my left leg. My pain management dr wouldn't put me on any pain medication before my injection, he said he doesn't give out narcorics for non surgerical procedures. Which is stupid! Because he knows when I'm in pain I'm not able to do anything! I even lost my job because the pain gets so bad, i sometimes cry from the pain. I am scared now to get this done after reading these comments.
21 Feb 2015
Thank you for the advise! I did not go back for the 3rd injection and I found another pain doctor.
Since I wrote the original post several things have happen. From 2013 to 2014 I went from one bulging disc and mild arthritis in my left hip... to THREE bulging discs and so much deteriation in my left hip that I have lost 2mm of bone from the ball of my femur! But all during that year I was told it was nothing and that I didn't need further tests. It was also found that I have malformed hips/pelvis and it is a miricle I walk. I will need reconstructive surgey on my pelvis and at least my left hip replaced before I am 35... I am currently 32. I will have insurance at the end of the month... finally. So I can start really searching for those to help me with my pain and conditions. For the first time in years I have hope! Pray that I find compassiant and knowledgable doctors... or at least ones willing to learn.
20 Mar 2015
I have had surgery on my back and it did help with the pain. Sciacca pain is gone. I do still have pain but its where i can function. I have had several injections in my back and i have never experienced what your going through. I also have gone yo a chiropractor and had great sucess. What ever you do please dont let them give you botox injections For your pain. I had them in my neck and i couldnt hold my head up for 6 months. Had my chiro do nassage and stretching and i now can keep my head up and the pain has lessened. You really need to find a surgeon and get a second or third opinion. It took me 40 doctors till i found one that would listen to me and help me.
Good luck and plz keep us all posted. God Bless...
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