I have had Restless Leg Syndrome for years now. I am on Requip and the dosage has to keep going up every 12-18 months. The insomnia from this is killing me I am going to collapse one of these days. I kick my legs, rub them and nothing helps not even hot baths. I have paced the floors night after night to no avail, I am on the second floor now so I have to stop that so not to disturb my neighbors as I am not light, I am overweight and sometimes wondered if that caused this but that was ruled out of my mind as this happened when I was thinner too. Anyone have any ideas that I can try, at this point I will try anything I would love to be able to sleep again. I have tried mixing Ativan with the Requip but that only helped for a short time, I am still taking the Ativan 2mg at night for anxiety attacks though. I can't take it, I love sitting at the computer talking to you folks but I would like to sleep once in awhile too. My poor husband has been so patient with this but it is not fair to him, he worries about me not sleeping. My cats even cry out for me in the bedroom when they sleep with my husband which wakes him up. I am only 42 and these health issues are driving me insane!!! HELP SOMEONE!
2 May 2010
I dont know what causes it but if you cant get comfort I read clonazepam (Klonopin) is a unlabled/Investigational use and I know 1 person that says it works great and clonazepam is used for panic attacks so you kill 2 birds with 1 stone,try it If it doesnt work ,I dont know what else there is although I THINK they were coming out with a drug made for restless Leg syndrome
2 May 2010
Hi again Marjorie. There is a new med on the market for this syndrome as REM said. I saw the commercials and don't remember the name. Make an appointment, and ask your doc to look in to it. Valium is my "drug of choice" for anxiety, restlessness, etc. Fortunately, I don't need them often. 60, 10mg will last me 3+ months. Maybe try this when you go to bed. Lay flat on your back, starting with your butt muscles, squeeze them as tight as you can and hold it for 10 seconds, SLOWLY release. Do that 5 times. Then work the same tightening and loosening (slowly) down the rest of your legs. Thighs, calves, feet, even your toes. When you get to your toes, reverse the order until you reach your butt again. Remember to hold each area for 10 secs. and do each part 5 times.
Have you tried heating pads wrapped around your calves? Maybe you can ask husband to give a deep, warm oiled, leg massage starting at the thigh and work his way down (no stopping along the way now) wink wink... and end with a good foot massage. You really need to get some rest... please talk with your doc and maybe give valium a try? Good luck on getting those legs to calm down.
3 May 2010
Hello Marjorie; I use a natural cure that works for me... "most of the time" ! but i'm not sure you can use it as it involves walking and you live on the second floor , but for what it's worth... here it is! Ingredients; "Quinine Water"[it's what you use to make various Gin drinks] most large Grocery stores carry it... OK , you drink 6 to 8 oz. Quinine water chug-a-lug , or nearly. Then you go for a 15-20min. walk... relax... when you get back home. drink another 4-8oz.glass of quinine water any way you want to and then to bed and good luck! Sacosam
29 May 2010
I've had RLS almost all my life. It started when I was a preteen. As a child my parents would rub my legs with rubbing alcohol. It was an occasional problem from then on and I generally took pain meds to get me through tough periods. Then several years ago my doctor told me about Requip. It was like a miracle drug and still is. I freak out if I run out and a new prescription is needed. But I have recently found out from my husbands doctor that there could be effects for long term use of Requip. So I am thinking about asking for another med. But thinking about the cause, I used to think it had something to do with my monthly cycle. It was always very heavy and that's about the time it started. So I am thinking a vitamin K deficiency. But now my husband has it, and he is on blood thinners, and when ever his blood is too thin (vitamin K deficiency) is when his legs bother him. Not sure of course about all this, but just my thoughts.
17 Sep 2010
There is RLS med you can buy at walgreens its cheep. It desolves under the tounge and it dose not taste nasty at all to me. Anyways my husband has a problem with it too and the medication works for him. He is the type of person that won't take medication at all. I'm the type that will if it will and the med dose not work for me. I get it so bad I tryed to kill myself I couldn't take it and the tingle in my spine was the worst you can sit still for more then a second. I will say the thing that has worked for me no joke was vicoden or percoct. I have taking them when my RLS started up. Maybe it was because I was already so exaughsted maybe it realy works idk it helped me. And if you have a prescription for either I would give it a try. When your that misserable anything to help matters I know first hand. IT SUCKs. And I understand how u feel about your husband. I do feel bad too for keeping mine up and him wakeing up and basicaly going threw it with me. But I hope this helps. I also heard iron pills help too but I have never actually tried.
17 Sep 2010
I also have RLS, and it can miserable. I have4 been on klonopin for a number of years and it has helped me. Sometimes if I am lying in bed watching tv, all of a sudden it feels like something crawling under my skin and I can't keep my legs still and I have to get up and move myl legs, but the klonopin has really helped. Sounds like you are really miserable. Good luck on finding some relief.
22 Sep 2010
PLEASE READ, This gave me so much relief and well still does! I'm 38 and have RLS since I was a small child. I used to take Requip, it worked well. BUT, i have good news!! There is this topical gel that I get for my chronic back pain that I found out if you rub on your legs back and front and knees (everywhere you hurt), but don't massage in too much(you don't want to rub it in and rub it all away.) Okay, are you ready? the miracle gel is: Voltaren Gel (diclofenac sodium topical gel) 1%, it is by prescription only. My doctor prescribes it for my bulging discs, herniated discs, spine pain, and lower back pain, blah blah... Most important try to get your doctor to prescribe this or give you samples! I have lots of extra sample tubes, wish I could toss them your way :) Hope this helps a little :) thanks
12 Apr 2011
I'm on here looking for others who are going off of Requip, which my husband is doing at the moment. The Requip helps, but it seems like the longer he is on it, the worse the symptoms become when he forgets to refill, as well as symptoms starting much earlier in the day. Also, he is having lots of side effects which we think are due to the Requip (thrashing in sleep, vivid dreams, increased anxiety and compulsiveness).
A friend of ours, an older lady, has struggled with RLS for years and has recently started Omega-3 therapy. She is taking 6000 mg per day and told us her RLS has pretty much gone. My husband started taking O-3 but didn't notice a difference, until he took it right before bed. Last night he was like a stone in the bed. He didn't twitch, didn't thrash, didn't talk in his sleep. When he woke in the morning, he didn't realize the difference (still felt like a train had run over him, fibromyalgia) but I, the co-sleeper, was astounded at the difference! He is on day 3 of his half dosage Requip so we will see if the O-3 continues to help as we get him completely off Requip.
14 Apr 2011
Hi Marjorie, I just saw your post today. I have had RLS for 30 years and the older I got the worse It got. I take Sinemet 25/100mg. 15 to 20 min. before I go to bed and it is working. I take the generic. Some Relatives of mine take high doses of Folic Acid and it works, but it did not work for me. The dosage that is recommended is between 5 and 30mg (NOT MCG.) You must do this with your Doctors ok, it is a prescription. You should have your Folic Acid levels tested every few months.
One Relative takes 7MG and the other takes 15MG. It comes in 1MG tablets. Another home remedy I have heard about but have not tried yet, is to put a bar of soap under your BOTTOM SHEET near your legs. It sounds crazy, but I have heard it really works.
I think the best soap is Dove. My Sister takes 1000mg Calcium Citrate and 500mg of Magnesium and 600IU of Vitamin D at bedtime and it works for her. If you go to a Health Food store you can get capsules with all 3 ingredients in them. I hope this helps.
13 May 2011
my husband also worries about how this rls and ras keeps me up, i find instead of rolling around in bed, i get up, go to the table with my laptop, read, drink my coffee and come to this site, with in an hour or two, its gone and im able to get back to bed.some say, and it does help is percocet. but like with my rls, its worse because im trying to taper off of percocet. i also had one dr point at my head like i was nuts, saying its neurological
13 May 2011
I too would recommend clonazepam, start low 1 mg.-2mg. Try to stop requip, I don't think it is right for you. Clonazepam also helps with sleep, larger doses can cause some foggy feelings during the day. Sometimes restless legs are caused by drugs, for example, cymbalta. Ask your pharmacist--they are the best experts on drugs and drug interactions.
I know your pain. Keep searching, there is an answer! jcoffman
17 Sep 2011
I have been on pramipexole for over 10 years. I find that I need to take it about 4 or 5 hours before bed time. Yes if I don't take it I can not stand it. I deliver busses and left my pramipexole in KS on my way to Calif. I call my dr and stopped in Flagstaff AZ @ wal*mart to have my prescription filled. Beleave me I don't forget anymore. I set my alarm on my cell phone to remind me when it time to take pramipexole.
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