I am suffering excruciating pain, anxiety, anger, fear and frustration as a result of a long mistreated, misdiagnosed, ignored and minimized case of TD. I have finally found a specialist who has diagnosed my condition (it is much more severe now) and he is recommending Botox injections in my tongue, jaw and face. I am very fearful but also desperate for some relief. Any info or support is greatly appreciated. Lisa Z
Responses (2)
29 Jan 2012
Hello,
Quote from wikipedia.org:
"Botox injections are used for minor focal dystonia, but not in more advanced tardive dyskinesia."
29 Jan 2012
Great answer Maso. I would like to add that Botox is extremely safe for the focal Dystonia... like around your face and jaw. I would be very hesitant in having Botox injected in the tongue as Botox causes temporary (3months or so) paralysis for the muscles in which it is injected. I would read the recommended site that Maso suggested.
Good luck Lisa... all my best to you. It sounds as though you need treatment for the more advanced stage. I understand your fear, anger, and anxiety... but you do need this treated correctly so that you can feel better and get on with your living.
Again... all my best... pup
pup, I so appreciate your support. I have read alot of these articles and different sites have different opinions on the use of Botox for this condition. My doctor said it would weaken the muscle enough to alleviate the strong movements and may make it difficult to chew or swallow temporarily. He did not, of course, mention paralysis of the tongue. I am exhausted from trying to figure out the best way to handle this but I will of course keep trying, praying and hopefully moving forward. What do you think from your research would be my better alternative? Any suggestions will be received with an open ear. At this point even alleviation of the related complications (inability to eat, severe pain and anxiety, insomnia, headaches) would help me concentrate on finding an appropriate doctor and treatment. I am just having such a hard time getting this across to the doctors I have dealt with so far. What a nightmare this has been.
pup I just read your profile and I wish you the best in your recovery from addiction. I too have had past substance dependence issues (alcohol, cocaine,methamphetamine, marijuana and others) I have been clean and sober for 4 years now with the help of God and the fellowship of special people God has put in my life. I am now a college graduate with a job as a substance abuse treatment provider and counselor. It breaks my heart that I have had to take a leave of absence from work to combat this disorder but I am hopeful that something will come through and I can go back to doing what I was meant to do. If there is anything I can do to support you in your recovery please let me know. It is possible to get free from the bondage of addiction and live a blessed, happy life. My life now is still beyond my wildest dreams, even with this affliction. May God Bless You and Keep You in the Warmth of His Grace. Lisa Z.
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maso, thank you so much for your info. My doctor is reluctant to prescribe benzos as I have hadubstance abuse issues in the past. I've been clean and sober for 4 years now and it seems as if I'm being punished for being in recovery and they don't even want to try medications that may help me. If you hear of any compassionate, knowledgeble doctors in the Phila. area please let me know. Until then I will pray and continue to appreciate any support that is offered. If I can do anything to help you please let me know. Lisa Z.
All I want is for you to find the right Dr. and the proper treatment and you are welcome.
All the best,
maso.-