... pain but Im most worried about the leg pain because some people say it sounds like MS. My doc says it just from my fibromyalgia
21 Sep 2009
I do have a feeling similar to what you describe, although not constantly. I mostly get it when I'm lying down, and it feels like a thousand baby bee stings. I would compare it also to getting a tattoo, except all over my legs. It definately isn't pleasant, it keeps me up, and is much worse if anything touches it.
I always forget to ask my doctor about it, probably because it isn't one of my more painful symptoms. I see the doc next week, I'll ask her about it
1 Oct 2009
This is a long shot but I would guess that it is due to Myofascial Trigger Points that have not yet been diagnosed. I get something similar, but not exactly like that symptom. The myofascial can spasm like a charlie horse and constrict nerves and veins reducing blood flow and oxygen. My legs sometimes fall asleep while I am walking or standing on them. Might want to check it out with a physical therapist or message therapist to see if they can find the trigger points, work them out.
4 Jul 2011
I had severe leg pain for 6 months that went from my buttocks down the entire leg and even to the foot. Parts were burning pain and other parts were aching and/or tingling with loss of full sensation. It was very bad. I was referred to a neurosurgeon and the result was spinal surgery (a 2 level fusion and laminectomy) and removal of a "mass" that was found to be next to one of the nerve endings to the legs. I went through hell in surgery and after (I am just more than a month from the surgery). I still have the leg pain in my right leg but it is not as severe. Still it is bad and I have to say that--unless it goes away over time--the surgery is not worth it unless they can cure the pain. My neurosurgeon says now, "I can't guarantee you that it will go away" but "give it time and I am optimistic". Right now I am trying to cope and put in time hoping this will heal. But it is not worth the risk...
Try everything else before you go for spinal surgery. The surgeons really don't want to hear about your troubles after the surgery because they are thinking of their next surgery (payday).
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
... problem and what works for you?
5 answers • 21 Jan 2010
Hi, I am 68 female, and for about 2 years have had leg pains, the front of my thighs being almost unbearable, especially when trying to get up from ...
4 answers • 27 Dec 2011
Any others with fibromyalgia out there using Zetia that have experienced added muscle pain from Zetia or the tingling that they say can be associated ...
1 answer • 18 Feb 2013
I was diagnosed with Fibromyalgia about 12 years ago.Since then my symptoms have far surpassed any symptoms my Dr. has ever known fibro to cause. He ...
4 answers • 5 Mar 2014