... patch. My dx is several bulging discs (cervical spine) and spinal stenosis with nerve impingment. I had lyme disease for 5 or 6 years but doctor refused to acknowledge and insisted it was a false/positive test result. I changed dr's and I had a full blown case of LYME disease with co-infections-Erhlichia, Bartonella, and Babesia. My former Dr had me on methotrexate (a strong anti-rheumatic drug) which I had to self inject x2 per week. I was literally bed bound after these injections for about 2 days with very bad nausea, vomiting, and weakness. I later discovered that methotrexate is contraindicated with LYME disease. Anyhow is there anyone out there who has struggled with chronic pain and experienced trouble obtaining pain control for chronic pain? And does this med Butrans (Buprenorphine) work as well or better than the oxycodone? My Dr does not seem to what to increase the oxycodone. I;ve been on 15mg x2 day for several months and have acquired a tolerance but my Dr does not seem to want to increase. I'm between a rock and a hard place. Without the pain control I am in constant pain a solid 8. The pain med oxycodone brings it down to a 3-4 but does not last more than a couple of hrs. Anyone out there experiencing these issues? I would love to have some support. I'm isolated and have no friends as I could no longer work due to this illness. Thanks
Responses (4)
29 Mar 2012
So sorry to hear your predicament Jan, I really am. And I totally understand what you are going through. I believe that the new medicine is a long acting opiod. They also use it for addiction, but it can be used for pain control also. The only problem is that it fills up your opiod receptors, so if you need more meds, they won't work. Someone PLEASE correct me if I am wrong!! I just wanted you to know that we hear you and we are listening! I understand the pain, and also dealing with pain doctors in this country unfortunately, ,make you feel like you are abusing drugs. They are more concerned with how much they give you than how bad your pain level goes. I just had surgery, and I went back to my PM doctor.
30 Mar 2012
Hi Jan4acure, & welcome to the site. I have chrontic pain & had to change pain doctors as well, because the clinic I used to go to would only give me methadone for pain control. Right! They don't prescribe 4 to 6 hour pain meds. Luckily my PCP knows all my conditions & treats all but the pain, so he got on the phone & called every pain center in the area until he found one that would give me what I really needed which is now 15mg of oxycodone every 4 to 6 hours. I started back from the methadone to vicodin which really used to help me, but soon found I was way beyond it, & they had no problem writing me oxy at the dose I am at now. I wonder if a longer acting pain med like oxycontin would be better for you or have they explored doing surgery? It sounds like if you have a stenosis you need surgery not more pain meds. Just a thought. The Butrans patch is for chrontic pain. It is a transdermal patch that you get opiads from over time.
30 Mar 2012
I have been taking the Butrans patch for 3+ weeks now and have had a very good response. The patch is used to treat pain not addiction. It does have a higher affinity for opiate receptors but it has not blocked the Norco I take for breakthrough pain. I am still hoping they can adjust the dose of the patch so I won't need pills at all. The other benefit is that it is a steady state in your blood so you don't have ups and downs like short acting pills. I have also found that it has improved my mood, it seems to act a bit like an antidepressant. Or maybe it just helped my pain so I am happier! Good luck to you.
Thank You very much for your excellent knowledge & advice. Yes I would agree that pain meds certainly have helped my level of depression. I firmly believe that chronic pain definitely affects one's mental health status. I am a CADC & have a Bach. of science in MH & HS. as well as my MHRT-C . I despise they way I have been treated re: chronic pain. I have been told it all by Doctor's (psychosomatic pain, un- diagnosis bi--polar disorder, schizo-effective disorder, and simply drug seeking. None of the above, sorry Dr. I went to the extreme & admitted myself to a psychiatric hospital & they said my problems were indeed medical (mainly the LYME disease) which went untreated for 5 to 7 yrs despite testing + for it. What a nightmare. I finally found a Lyme specialist in Kennebunkport who could not believe how shabbily I was treated.
30 Mar 2012
Hi Jan, Welcome to this support group. I have been on Butrans for 3+ months, and am liking it. I believe I need to up my dosage to the Butrans 15 mcg per hour patch. I am currently on the Butrans 10 patch. I like this patch better than when I was taking Hydrocodone because I do not have that waiting period after the Hydrocodone wears off until I can take my next dose to get some relief. It is a cleaner feeling for me. I hope you like it and it will improve your quality of life.
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See Jan, you just had to give it some time, and people will come and help!! Welcome to our group!
Thank You so much for your kind words they are encouraging and helpful to me. I am still on the oxycodone because I have also done some research and yes it is used for addiction which I don't really want to add another problem to what I already am doing my best to cope with. I did find an excellent Dr. whose father-in-law had lyme disease & she understands it very well. Its a funny disease that does all sorts of wierd stuff to your body/organs/mind. I'm hangin in there for my three grown kids who never seem to let much time pass before they need me!! Again Thank You, Janice