My primary care doc. treats me for the pain. It feels like all my teeth have abcessed, excessive saliva with a metallic taste and my mouth and lips are on fire. I have lived with this pain for so long. The pain medicine doesn't even work anymore. Has anyone with the same symptoms found relief from anything ? No quality of life. Oh and it even hurts worse if I talk. HELP
5 Jun 2013
I am taking alpha lopaic acid. However you spell it. A compound specialist told me to take it for mine. I have been taking it for several months now and I can see an improvement although not a hundred percent yet. When I had severe pain on the roof of my mouth I used neosporin with pain killer in it before going to bed and it helped a lot. Was even better in the morning. I didn't die from it so In guess it is OK to use.
5 Jun 2013
That sounds like my Trigeminal Neuralgia which has given me terrible pain in my teeth and gums. Also it can affect other areas of the face, which is has also. The pain level at times is a 10 out of 10. I'm now scheduled for an MRI and MRA to check it out, which could mean surgery--- Yuck. Could it be the same thing? I am now on my 4th medication which I am not tolerating much better than the other 3 which were intolerable.
5 Jun 2013
Well I have had it for two years and it takes a long while for the lopaic acid to work. Most people taken it with the triptolyne. Whatever it is called. The neosporin just gives relief but I noticed it seemed to help the whole next day. Use the neo at nite so it wont be disturbed. I think mine started when I was put on two strong antibiotics for a tooth abscess. Give the meds time and makensurenyou are taking the right amount
11 Jun 2013
..searching for help for my symptom of a constantly burning mouth-roof.. I hit this forum..
Maybe some interesting fact of my symptom is, that I have almost certainly connected to a serious health upheaval caused by TOXIC MOULD POISONING!
All strange symptoms developed just under a year ago.. but the burning mouth sensation came with a serious flare-up in the last two weeks..
Maybe just a random bit of info above..
But, possibly look at your environment for answers..
Good luck to all..
12 Jun 2013
shania44 my heart goes out to you as I have battled this for many years. I finally ended up on the operating table with a very respected nurosurgen with a very serious brain operation that severed my glosspharneal nerve and part of the vagus nerve. These nerves go through the mouth and face. It took a long recovery but it took my pain level way down and the residual pain is being treated with Amitriptyline. This has helped me very much but it will only help people with same problem as me. Good luck and you are in my prayers.
19 Jun 2013
Hello, I also have BMS and I have tried everything, oral washes, oral creams with lidocain, etc. After a while I have realized that the only thing that really helps me to get trough the day is drinking water (always a bottle in my purse) and certain candy (like Ricola) always free of sugar, mint or citric free.
I know is frustrating but the more you focus on the pain the worst it gets, try to do stuff that requires you to be focused, socialize (yeah, even if you feel you cannot talk, is good to be around people) and think that you will have really bad days, but also better ones, and you can live with it. I am 25 years old, and even if it looks tiring to live all your live like this, there are plenty of thing that are worth it.
2 Aug 2013
Hi. BMS is an unknown syndrome and many doctors have not heard of it. It hit me out of the blue in February three year ago and it was so powerful. To cut a long story short, after many months of going to my doctor, Eastmans and Queens Sq hosp here in london. I was put on amitriptyline and it is the only medication that has helped calm it down. I take 5 x 10mg a day, I have two when I awake, two in the afternoon and one before I go to bed, but you can spread them over the day what is best for you. No one as yet knows why it occurs and there is no known cure. It can be very disabilitating and can effect daily life. I also have a dry mouth spray which helps enormously and it is the Boots chemist own make - Expert Mouth dental spray for dry mouths. BMS is always around but with the amitriptyline it will help calm the situation but you must take it for a least one month before it kicks in. If anyone else out there has any advice it would be really appreciated by all of the BMS sufferers. Regads June
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