My primary care doc. treats me for the pain. It feels like all my teeth have abcessed, excessive saliva with a metallic taste and my mouth and lips are on fire. I have lived with this pain for so long. The pain medicine doesn't even work anymore. Has anyone with the same symptoms found relief from anything ? No quality of life. Oh and it even hurts worse if I talk. HELP
11 Jun 2013
..searching for help for my symptom of a constantly burning mouth-roof.. I hit this forum..
Maybe some interesting fact of my symptom is, that I have almost certainly connected to a serious health upheaval caused by TOXIC MOULD POISONING!
All strange symptoms developed just under a year ago.. but the burning mouth sensation came with a serious flare-up in the last two weeks..
Maybe just a random bit of info above..
But, possibly look at your environment for answers..
Good luck to all..
2 Aug 2013
Hi. BMS is an unknown syndrome and many doctors have not heard of it. It hit me out of the blue in February three year ago and it was so powerful. To cut a long story short, after many months of going to my doctor, Eastmans and Queens Sq hosp here in london. I was put on amitriptyline and it is the only medication that has helped calm it down. I take 5 x 10mg a day, I have two when I awake, two in the afternoon and one before I go to bed, but you can spread them over the day what is best for you. No one as yet knows why it occurs and there is no known cure. It can be very disabilitating and can effect daily life. I also have a dry mouth spray which helps enormously and it is the Boots chemist own make - Expert Mouth dental spray for dry mouths. BMS is always around but with the amitriptyline it will help calm the situation but you must take it for a least one month before it kicks in. If anyone else out there has any advice it would be really appreciated by all of the BMS sufferers. Regads June
24 Sep 2015
Have been reading all the remarks from people with BMS. I have gone to several doctors for over a year and no one knew what was going on. That was very discouraging so I went on line and did some research and found out I have BMS. Of course most of the doctors I've seen had no idea what it is. It's a shame we live in this day and age and these so called doctors do no research into a patients problems. I finally went to another neurologist and told him what I had found out and he said it looked like I found the right diagnosis. He has prescribed alpha lopoic acid and from what I have read on here it doesn't sound like it's going to help. I'm at the point I will try anything. Like everyone else the pain is a 10 24/7. I've lost over 50 lbs in a year for not wanting to eat. My family tells me I need to eat and put back on some weight, but they don't seem to understand the pain I am in.
I've marked down all the suggestions that have been on this forum and will talk to my doctor about them. So glad I found this site to see how other people are doing with this.
21 Feb 2014
The Cure for Burning Mouth Syndrome:
you use 1-1/2 teaspoons liquid Mylanta or Maillox and 1/2 teasp. of children's liquid benadryl or store brand. Swish this in your mouth and spit out. Do this about 3 times a day.
It worked for me and my mom. We both had it so bad- it was driving us crazy. This has been passed down from a friend of hers. Good Luck.
5 Jun 2013
I am taking alpha lopaic acid. However you spell it. A compound specialist told me to take it for mine. I have been taking it for several months now and I can see an improvement although not a hundred percent yet. When I had severe pain on the roof of my mouth I used neosporin with pain killer in it before going to bed and it helped a lot. Was even better in the morning. I didn't die from it so In guess it is OK to use.
5 Jun 2013
That sounds like my Trigeminal Neuralgia which has given me terrible pain in my teeth and gums. Also it can affect other areas of the face, which is has also. The pain level at times is a 10 out of 10. I'm now scheduled for an MRI and MRA to check it out, which could mean surgery--- Yuck. Could it be the same thing? I am now on my 4th medication which I am not tolerating much better than the other 3 which were intolerable.
19 Jun 2013
Hello, I also have BMS and I have tried everything, oral washes, oral creams with lidocain, etc. After a while I have realized that the only thing that really helps me to get trough the day is drinking water (always a bottle in my purse) and certain candy (like Ricola) always free of sugar, mint or citric free.
I know is frustrating but the more you focus on the pain the worst it gets, try to do stuff that requires you to be focused, socialize (yeah, even if you feel you cannot talk, is good to be around people) and think that you will have really bad days, but also better ones, and you can live with it. I am 25 years old, and even if it looks tiring to live all your live like this, there are plenty of thing that are worth it.
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