I have small fiber neuropathy. I have terrible aches in my lower legs (knees to ankles) and 1 arm (elbow to wrist). If I do not take pain meds the ache will intensify until it is absolutely unbearable. The pain is usually worse in the evening and when I'm at rest. If I get up and walk around the pain lessens in severity (yet is still very painful). I currently take Lyrica and have just been prescribed Clonazepam to see if perhaps I'm also experiencing some Restless Leg Syndrome in addition to the neuropathy. I've always heard of RLS being a feeling of having to move your legs, a creepy crawly feeling... I do not have these symptoms, I merely have intense achiness that is slightly relieved by movement. I'm wondering if anyone else with RLS experiences it as more of an ache than creepy crawly feeling?
Clonazepam for RLS but not sure I have RLS?
- Posted:
- 6 Jan 2012 by smeltzera01
- Topics:
- peripheral neuropathy, pain, restless legs syndrome, clonazepam, knee
Responses (2)
ukliz8 Jan 2012
Hi, RLS is really uncomfortable and as you said you have to keep moving them to help. I also have the achiness in mostly my right leg, my left side has a lot of numbness in it so I don't feel so much. The creepy crawly feeling is more tingling for me, and I take Ropinerole for the RLS which works really well for me. The thing that tends to happen is I think my body gets used to the dose and I am always having to up the dose or take the doses earlier in the day, I tend to suffer throughout the day so I start the day with a 2mg dose and if I don't take the highest dose around 3-4 in the afternoon which is 8mg around 7pm, I am having to try and walk or at the moment for me stand to try and get any relief from the discomfort. Then around 11pm I take 6-8mg again, I hope this helps a little and hope you get more help soon take care, Liz.
9 Jan 2012
Hi, I take Clonazepam or Klonopin for a condition called Myoclonus which gives my hands, feet, then arms, legs, then full abdomen jerking, the more relaxed that I get. The full abdominal jerking only happens when I'm in a deep sleep.
But my answer shows that it may be that Clonazepam has more varied uses, since you can see how differently my need is from the "feeling of having to move your legs, a creepy crawly feeling". So I would give the Clonazepam a chance.
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