I have been having chronic migraines and chronic daily headaches for almost 15 years now. I started having them right after i had my first son and the dr's cant find nothing. I have a migraine/headache everyday allday. I have had lots of MRI's, catscans, everything. I have been on all kinds of medications and nothing seems to help with the pain. I have even had botox injections and DHE and that didnt help. Does anybody have chronic migraine and daily chronic headaches and if so, what medications are you taking that help?
8 Mar 2013
It would be helpful to know what meds you have tried. Have you tried any daily preventative migraine meds such as Topomax? Have you tried nerve block and trigger point injections? They have helped me. What dose of Botox were you given? How many units? The first time I got Botox it didn't help me at all, but when the dose was increased I got a lot of help with them. And Botox is most likely to help those who have NOT been helped with the daily medications. Also have you tried Butrans patches? An herbal med, called Petadolex, ordered off the internet, is a safe medication that is evaluated by the German government unlike all herbal meds in the U.S. That one has also helped me. Also an off-label med, called Namenda has helped me. Have you tried these? I was NOT helped by any of the daily preventative meds known to help migraines.
I know I've been helped by a lot of remedies which I still take all of them, but I've had an especially difficult severe 24/7 migraine caused by a major stroke. Please let me know if any of my suggestions are new for you. I would sincerely appreciate your feedback. I'm really trying to help you. Sara
3 Oct 2013
Have you been to a chiropractor to see if it could be your cervical spine causing these headaches? Believe it or not it might just be coming from your neck. But if you've had MRIs, etc. you are probably aware of this. Just thought I'd throw that out there. I feel bad for anybody who suffers from headaches/migraines every day!
25 Aug 2015
I used to have headaches fairly often. (one to three per week) I was prescribed Topiramate (topamax) for another issue and have not had a single headache since I started taking it. Not one. That was over two years ago. I take 75mg 2x/day. My sister was prescribed 25 mg 1x/day and had no effect for her headaches. My wife can't get her doctor to look at the stuff. I have no idea why... The stuff works.
7 Mar 2013
For me, it was a beta blocker. I have had migraines since I was in 4th grade-I am in my 40's now. I was put on beta blockers in my 20's but I didnt take them long enough-I gave up on them after 1-2 months and they take longer to work than that. Later in life, I was put on a beta blocker for high blood pressure and after several months I noticed I was having less headaches. Now I get one maybe once or twice a year. Have you had your hormones tested? I know I was much worse when I was on birth control pills-my headaches were almost daily then and would last for days. It is an awful condition and I feel for you! I do know if you are taking pain medications daily, many of them can cause rebound migraines so use analgesics sparingly. I was also helped by chiropractic-my cervical curve was no longer a curve but completely straight because I had so much muscle spasms. Massage, heat or ice (whichever feels better) also helps.
Believe it or not, I have found that Celestial Seasonings Sleepytime tea will sometimes abort a migraine for me. Sometimes if I feel one coming on, I take ibuprofen, heat up a heat pack for my neck (heat works best for me because I spasm from tensing against the pain) and drink a cup of Sleepytime and sometimes, an extra beta blocker, and I can usually calm it down before it gets bad. If it gets to full swing, NOTHING much seems to help until I throw up and then sleep it off and that is not very convenient when you work and are a wife and mother! It took years of chiropractic and massage (and getting off hormones for birth control and getting on the beta blocker) before I got to a place where I could try to prevent them rather than chase them. I also know that I have a few food triggers-fresh garden tomatoes and also dry red wine are automatic triggers. If I eat garden tomatoes or drink red wine, I will pay for it later. Triggers are often something you like too. It can help to keep a food diary and see if you can pinpoint a trigger by looking for a pattern of eating a certain food then getting a headache. Good luck! I hope you can find something that works for you. Migraines are miserable.
10 Mar 2013
I am in my mid thirties and have had chronic daily migraines since I was 12 years old. I certainly understand the feeling of being alone in this nightmare. I am in pain 24/7/365. I've tried everything from meds, chiropractors, pt, injections of botox or steroids, all the way to surgeory. I've been inpatient in specialized headache hospital units multiple times being experimented on. I'm onto retrying meds for the 3rd or 4th time. I know its very hard not to give up but I have to keep trying things after all I let them do an experimental surgeory on me when I was 25 lol. I was told I could end up paralyzed or dead but I had them do it anyways. Gotta just keep plugging ahead or you're left with no hope at all.
9 Sep 2015
As terrible as this sounds, I'm glad to know I'm not alone. I started having daily headaches and occasional migraines a little over a year ago, at 37 years old. I had never had migraines before. I went to my primary dr, he ordered an MRI & started me on Topamax for prevention, Maxalt & Bupap for rescue. MRI was normal. The Topamax worked for a few months, but then the migraines became more frequent, so increased the Topamax to 150mg. That didn't work, so he referred me to a neurologist that is a headache specialist. He has me on Propanolol 120mg daily (because I can't tolerate 160mg because it drops my blood pressure too low), Amitriptyline 25mg daily, still on Topamax, Klonopin 0.5mg daily, and I still have Maxalt & Bupap for rescue. The problem is, I now have daily migraines, instead of daily headaches. No one can tell me why.
I have done the "migraine diet" excluding certain things from my diet for a week to see if the headaches get better. Nope. I've omitted ALL analgesics for 10 days to see if what I was experiencing was medication overuse headaches... nope. I'm in almost constant pain as the rescue meds aren't cutting it. All I can do is knock myself out with Benadryl and Dramamine along with the rescue meds to ease the pain, but that doesn't work very well when you have to work, or do homework with your kid. I've begged my doctor for something to help with the pain but he basically ignores me. I'm planning to try Botox injections soon. I have an appointment with the neurologist Thursday to discuss, hopefully that will help. I don't know how some of you have done this for years and years. I feel like I'm losing my mind.
7 Mar 2013
Hi jcjackson82, I have been having migraine headaches since I was a teenager, and I am well over 30 now, lol. I know EXACTLY what you are going through!! NOTHING helped my headaches! I in my mid 20's to mid 30's I would get a migraine, and it would last for 3-5 days straight! I would have to break down and go to the ER or my doctor and get a shot of Demerol and go home and sleep it off only to wake up and have another come on 6 to 12 hours later!! Sometimes I would wake up with a headache and have to go back to the ER or my doctor, and you know what happens when you do that... they accuse you of drug seeking!! (I am a recovering addict now, but this was before I started using and it was a contributing factor to my addiction!!)... Anyway... my doctor thinks that mine were hormonal because I never had a headache during my 3 pregnancies but as soon as I gave birth, they came back within a month of each kid! My constant headaches stopped after I had my ovaries removed.
I had endometriosis and had to have my ovaries removed and now I only have 1 or 2 migraines a year.
I just wanted to share my story with you and let you know that you are not alone when it comes to these nasty headaches!!
I so hope that you can find relief soon!!
25 Mar 2013
I have had migraines and daily chronic headaches since I had a memory as a child. I am 46 now and they have become unbearable lately. Your description seems similar to mine although I have not received the Botox. I did have an IUD inserted 3 months ago due to severe menstral periods which helped greatly. Possibly this is the cause. Not sure which would be worse if i had it removed
I was just placed on Topamax (no terrible side affects at all - actually none) and this has helped. The doc also prescribed Napralen (time released Naproxin). It works wonders for chronic headaches! Problem is it costs almost $400 a prescription and insurance will not cover it because they say the alternative is Naproxin which is not time released. Naproxin does work but it is like Ibuprofin. It works and once it wears off the headaches comes right back. The side effects of Napralen is possible water gain. It's high doses of salt. Working out will help.
Good luck with your headaches and migraines. I really think its just a mystery that we have to manage with pain medicine unless we are lucky enough to receive a diagnosis that is treatable. You're not alone.
I go for my MRI next week and I will receive neck therapy for the next month. If the Naproxin or Naprolen keep water weight on I'm just going to stick with Ibubrofin and hope the Topamax covers most of my pain. Best to you.
23 May 2013
I have had chronic daily h/a and chronic migraines for 8 years. In2009 they found 2 brain aneurysms and in2012 they clipped the biggest one because it was blinding me. They left the other untouched. I have had no relief after surgery. I have been on so many meds with no luck and in and out of hospitals including several admission @ Diamond Headache Clinic I wish you luck.
16 Jun 2015
Not sure if you are still watching this thread since it was posted a couple years ago. However, I was diagnosed with migraines 20 plus years ago, I started off not needing a preventive just a rescue med if I got a migraine. And, more often than not if I could fall asleep I would wake without the migraine. Not so lucky anymore! I met a terrific neurologist ten years ago who started me on Topamax, I remain on that medication today, its used for serveral different things migraine prevention being one of them.
You mentioned having daily headaches as well as daily migraines, since a migraine is not just a headache, its important you get it all figured out. There is so much information, medication, etc available for migraines now I had home health for over three years, off and on of course, when I would get in a pattern of a migraine that would not go away, over 3 days, my nero would order home health, which is iv infusion, it always worked. There is so much they can do now for us migraine sufferers, best of luck
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