Hi all, I thought I would write about my experience about having the Botox for the first time, the Dr's wanted me to try this for my chronic Migraine. We had tried many other ways to try and get my Migraines under control, without much help. So this Friday I went and I must admit I was uncertain as to if I should really let this doctor inject me 31 times with the Botox, and it took the doctor about an hour of trying to coach me into having the injections. I was mostly scared about having a reaction to the Botox, because lately any new medications I have had, my body has reacted in some way or another and a few times had to be admitted into the hospital. So the doctor, and my husband talked me around. Then the Dr gave me 7 injections into the forehead first, and if anyone says this is nothing to have these injections, don't listen because although the initial jab with the needle doesn't feel like nothing but when the medication is injected in it hurts a lot more then I was expecting. The doctor said she wanted to do the worst ones first, and I thought thank god the other 24 will not be as bad. She left me for about 20 minutes to see if I have any reaction to the first lot of Botox, and I am please to say I was ok to have the rest of them. The other injections were not to bad, and the doctor said the ones that hurt me were because it was the side where I have the Migraines and she said this is a good thing because she is confident she was injecting in the right place to hope give me the relief they are hoping to give me.
She said it would take 4 to 7 days before I feel any difference, and 4 to 6 weeks to get the full affect of the Botox. 2 days later I am still feeling the affects of like muscle ache across both of my shoulders and I still have a bit of swelling above my left eye with some bruising, but it isn't as bad as yesterday. So these injections are going to be every 12 weeks if I have the nerve to go back for the next round, I also wanted to say about the insurance, the doctor's had trouble getting this approved. Infact this was denied last Monday and then the doctor wrote a letter on my behalf, and the decision was overturned on Wednesday and on Friday I had the Botox given to me. I just wanted to say this to other people wanting this done, to not loose hope if it is denied the first time. I don't know what this Dr wrote about me to have such a quick turn around but this might be a idea for others to ask there Dr to do if it is denied in the same way for others. I am hoping this will help others with me writing this and hope going through this will help me and anyone else with there pain. Take care everyone, Liz.
Botox Experience!!?
Added 16 Jun 2012:
It has been a week today since having the Botox injections, and I thought I would add to this post. As the days have gone on my shoulders and neck became really uncomfortable to the point I had to ask for help. The Dr's can not say for sure if it was the Botox or part of a MS flare, so the last couple of days I have been trying a muscle relaxant to see if this would help. The name of the drug I was given is METAXALONE 800 mg three times a day, I must admit today I am feeling a bit more comfortable with the shoulder and neck discomfort. But I would like to hear from anyone taking this medication or taken in the past if I should know anything about your experience with this drug.
The Botox has not made any difference to my Migraine yet, in fact last night it started to get a bit worse again, but it has been nearly 3 weeks since my last DHE treatment so this doesn't surprise me much. I am still hoping that the Botox will help and it is just taking longer then usual to take effect, the one thing I have noticed is that day by day my forehead is getting tighter and when i'm trying to move my eyebrows up I can not move them as freely then before the Botox injections. That's it for now, I will write again if things change.
Added 22 Jun 2012:
Hi all, I just wanted to add to my experience with the Botox. I have just finished with the Dr who gave me the Botox, and she didn't seem to surprised that after 2 weeks since I had the injections that I haven't had any improvement to the Migraines. We are still hoping that there will be some improvement in the next month, but if their is not she wants to try one more time with the injections. Not so sure I want to though, as I really struggled the first time with having the injections in the first place. I have been asked how many units I was given of the Botox, and the answer was 155 units. Is this the normal amount for the first time, or was this the lower end of what people have been getting for their first time?
So apart from having trouble moving my eyebrows up and down which I could do before the injections, I really haven't felt any difference at week two. Let me know if these weekly updates is helping anyone, otherwise I will not bore anyone else with the updates. Take care all, Liz.
Added 1 Jul 2012:
Just a quick update, it is now 3 weeks since I had the botox injections and I have to say that I haven't had any improvement to the migraine yet. As each week passes I am getting more disheartened that the first round of injections haven't done a thing to help with my migraines. I am trying really hard to not loose faith in the Botox working, but I would of thought it would of or should of worked a little bit by now. I know people keep saying to me give it time, but as the weeks go by it is really hard to keep faith that I am going to get some sort of relief from the Botox any time soon. Liz.
Added 6 Jul 2012:
Ok guys I think this is going to be the last entry on this round of injections. Clearly 1 month later since the injections their is not any change to my migraines, I guess when and if I decide to go through another batch of Botox injections I will post a few times explaining how things go. But if the second round was not to work, that will be the end of the Botox injections. Take care everyone, Liz.
Added 28 Sep 2012:
I thought I would do a quick update, later on today I am going to have the second round of the Botox injections all 31 one of them. I can not say I am really looking forward to the appointment, but the only thing that is making me go is that their is a very slim chance it might work in some way this time. Take care everyone, Liz.
Added 28 Sep 2012:
I thought I would do a quick update, later on today I am going to have the second round of the Botox injections all 31 one of them. I can not say I am really looking forward to the appointment, but the only thing that is making me go is that their is a very slim chance it might work in some way this time. Take care everyone, Liz.
Responses (13)
Your welcome. Liz
11 Jun 2012
Hi Liz,
I'm so proud of you for toughing out the Botox injections. Don't think that the injections aren't working if you don't feel any difference within the 4 to 7 days that you were told. My botox doctor told me 4 days to 2 weeks, but it always takes 15 days for it to work for me. When I told him that, he said that he had one other patient who also said that it took 15 days for it to work for her.
Hi Sara, thank you so much for answering, I really thought I was being a baby but I too have Fibromyalgia do you really think this is why it might of been painful the way it was. The Dr who done the injections she was really gentle, and she kept stopping and asking me if I wanted her to stop. But this just made it worse, because I just wanted her to finish quickly but it was hard for me to just let her keep doing the injections one after another. But the Dr was so patient and caring that I am glad that she was doing the injections on me. I am still hoping that this will help me, I am not sure how much Botox she gave me. All I saw was three syringes with as much medication that you could fill them with, and all of them were empty when she had finished.
I had a 3pm appointment and it was gone 5pm by the time me and my husband left the office, but grateful I was not rushed one way or another. Thanks, Liz.
Liz,
You were very fortunate to have such a caring and patient doctor. I think it works better for the doctor to quickly do the injections, because once the needle is out, the pain is over. To give you a comparison, my 25 injections take about 10 minutes.
Yes, it does hurt over the forehead. Everyone will tell you that. Just remember the migraine pain and how much you have suffered with that.
I'll really look forward to hearing how you do. Also I have heard that with repeated injections, the relief gets better.
All the best to you.
Sara
Thanks Mary, no change in the headache yet, and this morning my left eye was still swollen a bit just above the eyebrow and my eye where the tear duct is more bruised. But I will let people know if it changes the Migraine in any way, thanks for caring as always. Liz
Thanks for taking the time to comment. Liz.
I have a friend who used to get horrible, disabling migraines ALL the time. She got Botox and it did help. What helped the most was - it's like a hearing aid in her ears, but it gives "white noise" - noise generators. Turns out her migraines are more of a sensory problem and by drowning out some noises she gets relief. She did the Botox for a couple of years and ignored signs that she was developing an allergy to it. She now has swallowing problems and no voice for 3 months now. Her drs think things will come back - just takes time. She did have definite signs, but the Botox was helping so much she ignored them. I used to have migraines all the time and I can see that happening. I think it can help you a lot - just be aware that it can cause problems too. I hope you can get relief from your migraines and this works for you! ElizaJane
Thanks, I am really hoping I get something out of this and my pain will not be as bad anymore. Take care, Liz.
14 Jun 2012
Hey Liz!! I really hope that the botox works for you! I paid about 10 years ago to have a small amount injected where someone would inject for women with wrinkles, because she told me that her sister got phenomenal relief from the injections. it was NOT a walk in the park, but by gosh, I got no migraines for three months!! I was thrilled!! Ever since then, I have been trying to get more injections, now supposedly covered by insurance as you learned, but no one will do them on me. I suffer from migraines most of the time, and am allowed to take the statins 18 times a month. the rest of the time, I am working with ice etc., to reduce the severity.
Best of luck to you!! You have renewed my interest in finding someone who just won't give you pills, but will actually help with migraines again!! I really hope that they work on you as well as they did on me some 10 years ago.
Hi Msfino, sorry to hear that your suffering also with the Migraines. So far the Botox has not done anything for the Migraine, but I am still hoping that in the coming weeks I will get some relief from the pain. This pain is so old it is getting harder and harder to stay positive and not let it bring me down to much. Take care of yourself, and let us know if you do try Botox again and if you get any relief from the injections, Liz.
Hello Msfino. Have you talked with your dermatologist about this? Since you have a history of success, I would think you could get something going again. It would be wonderful for you to get relief again. I suggest the dermo because they have the training for nerves, muscles etc. just curious. Karen
16 Jun 2012
I think I may have asked you this awhile back, but am not sure. Have you tried the ergotamine nasal spray for migraines - Migranal Nasal Spray? I've been hospitalized twice in the past for my migraines and had IV DHE - and this is similar, though weaker. Just wanted to be sure you knew about it. - ElizaJane
Hi, yes I have tried the nasal spray, I remember it being really messy and made my nose really drip and done nothing to the Migraine. But thanks for thinking of me and I hope you are not suffering from your Migraines these days. Liz.
16 Jun 2012
Speaking of the ergotamine nasal spray--another one that has worked for me is a "Lidocaine hydrochloride" 2% nasal spray which needs a prescription. It is unpleasant, but usually calms down a developing severe migraine.
Just to add to your arsenal of treatments, Liz.
Sara
6 Jul 2012
Dear Liz,
I hope by now you're seeing some effect on your migraine from the botox. I actually had my pm dr ask me about it the other day when we were discussing my migraine. I'm so much more fortunate than a lot of you since mine can be controlled fairly well with immitrex nasal spray. I wish you were as lucky in that respect as I. But I wanted you to know that I do read your updates regularly and thank you for posting them. I am quite curious to see how this ends up for you since you never know if one day it ends up being a treatment that I'll have to consider. Here's to keeping my fingers crossed for you!
Lisa
Hi Lisa, thanks for writing and letting me know that you read my updates, I am really hoping I can help someone not have to go through all the pain and suffering in the same way I am having to go through. I am still holding out some glimmer of hope that the Botox will help in some way, but I think if this was true it will not be with the first set of injections I had, but maybe the second lot will do more for me, fingers crossed. Take care Liz.
Good morning Meg, hope you have been doing ok. Wow this is an old post, the Botox never worked the two times I had the injections. I found some of the injections to be very painful, and my neurologist said if the Botox showed no sign of working having the third round would probably be the same no help.
But he left it up to me to make the final yes or no, I am not against the idea and I know a lot of people have had great results it just wasn't any help for me.
I no longer see the headache specialist here where I live, he just didn't help my case and never returned calls from my other dr's so it was a joint agreement to get rid of him.
Hi Liz,
thats too bad it didn't work... I really hate pain so I hope they are not too painful... especially if they do not work. will let you know, that is if I can find you again.
Meg
5 Feb 2013
Hi Liz, Your postings have been interesting..I just went in on Sunday and had my 31 injections of botox. I can't say they were fun and they did hurt but I would do it again.
I am glad you went for your second 31 injections, I can't see giving up now.
Of course, it is a little early for me to see any results. Although I have been quite sick since I returned home, its a 3 hour drive for us, my breathing is bad and I just cannot get up and about very much and feel like crap.
keep posting, hopefully I can find you again...
meg
Hi Meg thanks for the update, the back of my neck where I had some of the Botox put just doe not feel the same. But as I said before it does work well for others and I am all for others trying it and they should. But with me it didn't help, but no big surprise their, with all the other things I have tried over the past 1 1/2 years and had some sort of reaction. If you are concerned about the effects from the Botox, call your Dr's office where you had it done and leave a message to have someone call you back and talk about your feeling like since the injections. Take care, and I will add you to my list of friends so you can talk when ever you want. Liz.
Meg, Good for you for giving it a try. Just know that the first dose may not be right. I started on 100 units which did nothing for me. Now I'm at 245 units, but the doctor said that it could be further increased. And my injections take 15 days to work. My doctor said that one other patient claimed the same thing, but he still likes to tell people that it should work in 1 to 2 weeks. Hope that it might be your life saver.
Sara
10 Feb 2013
Hi Liz, Nice to meet you. I read with great interest your recent post about giving Botox a chance for your migraines. After all the discomfort of the injections it's a shame you got no relief. I must say my friends have had mixed results, only one pleased with it working well for migraine sufferers.
Anyway I wanted to introduce myself as we have so many friends here in common. Also to congratulate you on the accomplishments of your great daughter. What a terrific Mom you must be, and rightfully very proud!
Regards,
4N Substances aka Frenchie
Hi and welcome to the site, you picked a great site to join. Thanks for your kind words about my daughter, I am worried about her as she is now in the UK living with a family until the end of April. Once she has done her exams, she then tours Europe until she arrives back in the USA on the 22nd of May. This is the first time we will be apart for this long, but I am sure it will benefit both of us this time away from each other. I am also so excited for her and can not wait to hear all those stories she will be full of when she gets back home.
I am in the hospital at the moment, since Thursday having treatment (DHE), for the Migraines and also I am having a MS flare. So I am not having so much fun at the moment, although I know this is where I need to be.
It is always nice to see people comment on old questions and answers, this is what I wanted when I joined the site. If I could help someone in some way through my experiences, then I have done what I set out to do when joining this site. Take care and I look forward to getting to know you a bit better, Liz.
Liz I'm wishing you well during this hospital stay. I'm praying for you to return home much stronger and more comfortable. Thanks for taking the time to reply!
I can understand so well your worry for your daughter. I worried so much when mine left for college and she had never given me a single reason-so I invented scary things! Ha Ha!
Remember that you gave her good roots-now give her wings. Don't let your concerns color her joy-an experience of a lifetime for her. Celebrate it!
My daughter is well established in her career and I now have a 2 yr old granddaughter, the light of my life.
Thinking of you and sending my best wishes-let us know how you're doing. I'd like to stay in touch.
Frenchie
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Thanks Pledge, yes fingers crossed I get some relief in the coming weeks from having this done. Hope the rest of your weekend is a good one, take care Liz.
Will do and thank you, pledge