Just spoke to my Neuro. and he suggested this when I said I didn't want Clonipin for Tardive Dyskinesia. What do you think?
Has anyone ever been prescribed Vitamin E for Tardive Dyskinesia?
- Posted:
- 15 Jun 2012 by Pegaboomer
- Topics:
- vitamins, tardive dyskinesia, vitamin e
Details:
Answers (5)
saucerman16 Jun 2012
Dear Pegaboomer, Right now I take 1600 IUs of Vitamin E. It doesn't seem to help me at all. I went off of it for awhile because it was becoming expensive and still didn't see any change in the severity of my mouth movements. However, my psychiatrist talked me into going back on it when I started another new med called Xenazine (tetrabenazine). What are your symptoms and how severe are they? Do you suffer from headaches when you first wake up? When were you diagnosed? Again, I would love to talk to you if you want to private question me I will reply with my #. I was officially diagnosed in January 2012 but I first began exhibiting symptoms as far back as February of 2011. At first, I thought it was a dental problem and the dentist agreed, but I had still mentioned it to my psych and he should have been able to recognize it for what it was.
Delila
Pegaboomer
16 Jun 2012
Yes. I'll post about it when I start it. Thanks
Images*1116 Jun 2012
Hi Pegaboomer..An answer to your question regarding Vitamin E. Don't waste your money or your time. In recent study's they have found no benefit in taking Vit. E as a treatment for Tardive Dyskensia.
My Neurologist and I have found that the best treatment for me has been a combo of 2 drugs prescribed by my Neurologist. The 1st is 200 mg. of Amantadine split as 100 mg./a.m. and 100 mg./p.m. The 2nd is 250 mg. of Mysoline (generic-Primidone) 2x daily am and pm. The Mysoline was added slowly at 50 mg. dosages until results were seen. I believe in the beginning I saw results at 150 mg before bed with addition 50 mg in afternoon. Due to having to maintain Antipsychotic drug therapy for Bipolar Disorder my Tardive Dyskensia is progressive. The Mysoline dosage that I now take is the maximum dosage.
Pegaboomer
16 Jun 2012
Wow! Thank you SO much. You've given me a handle on what to research and how to possibly open my mind to other meds. My Neuro is a "researcher" TTL. My Psychiatrist, however, is an older woman who doesn't seem to be "up to date" on her meds. The one who prescribed Abilify for me is no longer with the practice. I changed immediately when I started to recognize symptoms. When my Neuro diagnosed me, I went back to the Psychiatrist and she said, "In 40 years of practice I've never seen TD." Sheesh! I am limited in resources by my insurance company. I am also in my upper 60's, so need to start thinking in terms of less meds instead of more. I am held pretty steadily mood-wise on Cymbalta. I've tapered off Xanax, and am currently tapering off Vicodin. WD's are quite uncomfortable, but not debilitating. Symptoms of TD are with me every minute with a very sore tongue and mouth.
kaismama
16 Jun 2012
I was reading this because I never heard of Vit E for TD. I cannot believe that your shrink said that. I've seen quite a few cases in my 40 yrs as a nurse, I think she wasn't paying attention if she missed it all these years.
Images*11
jghay28 Mar 2013
Not for sure if you will read this as you posted it last June. I have TD from Abilify and I am treated by having Botox injected into my jaws, shoulders and neck to stop the movements. It does work but let me warn you it is painful as the injections are done with a large needle that is hooked up to a monitor that measures the electrical signals given off by the muscle being injected, the monitor gives off a sound when the needle is in the right place, the Doc moving it around causing more pain until he/she finds the right spot to inject. And no it does not do anything for the wrinkles in my face
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Thanks. I'm already bruising just from the baby aspirin I take in the a.m.! I'll do some more research on it. So far, nothing alarming has turned up.