i had surgery 5 yrs ago to remove an ovary thought to be cancerous. it was not. but i have continuing abdominal pain and bladder problems ever since. the pain is all day every day and limits every thing i need to do. so grocery shopping, combing my hair, fgetting out of the car, on and on, anyrthing related to andomial muscles causes pain. i am miserable and of course, now severly depressed the pain medications, many, last at most two hours, cause nausea headaches so then i take a pill for each of those, cannot find a surgeion to remove them, and i now know why after been to 15 docters, two universities etc. they don't want to foolow another doctor's surgery if he
would have told me i would suffer like this i would not have had the surgery.
Am searching for help to find surgeon to remove abdominal adhesions?
- Posted:
- 20 Oct 2011 by sppisces
- Topics:
- abdominal adhesions, pain, surgery, bladder
Added 19 Nov 2011:
hi, was just wondering dave if you may have found any surgeons or can tell me how to look on here for surgeons that qill at leat do laprocsopy tp look at these adhseions, i went back to the original surgeon 3 weeks ago and he would not make eue contact when i asked if he would do this. the pain is worse and the pain med is not working as well. now they want me to go to physical therapy, and i thought about this when that is done the adhesions will still be thwre unless there is a a way to loosen them i just don't get this whole thing at all they aren't going away
Responses (4)
Anonymous 20 Oct 2011
i just removed both my ovaries and it immediately eliminated the cramps and aches and pains in stomache, do you still have your uterus, could be the problem too, i removed everything and so far so good, only thing is im in medically induced menopause and on hormones, got anxiety now but medication to help with that, but all in all i feel good, hope this helps
Anonymous 20 Oct 2011
Hi sppisecs, Did you have your ovary removed with an endoscope or an incision? The long term pain you describe is very unusual, going on for 5 tears. Has anyone done an abdominal X-Ray? Do you have normal bowel movements? Have you had a lower bowel X-Ray with dye? Or a colonoscopy ? Let me know if you have these tests or any others. Have you had any fever associated with this? It is not uncommon for a doctor to do an Exploratory surgery, for abdominal pain. Especially for prolonged abdominal pain. If you can let me know all the above and any more test you have had I may me able to give you a better answer. Thanks Dave
Anonymous 21 Oct 2011
Hi Dave here. Sense you have X-RAY's and a CT scan I think they would have found out if there is anything left in there from surgery. To bad, If they had left something in there you would be a rich woman. That's a slam dunk Malpractice suit. I do believe your pain is from adhesion's! Severe contentious abdominal pain should be a reason for exploratory surgery. On X-Ray or CT scan you cannot see adhesion's. They are tough fibrous bands of scaring due to previous surgery's. The 15 doctors you have been to are they all surgeons? You said that at lest 2 agreed with the adhesion's were causing your pain. Get those medical record's from those 2 doctors and show them to your original doctor. With 2 doctors saying your pain is due to your adhesion's will give you more support and evidence to present to your doctor. It will give Him/Her more reasons to operate on you.
sppisces
21 Oct 2011
on you on fb or you mean friend's list on this site? you are the only one on this site i have communicated with it would overwhelm me to have nmore, glad to know you are in the medical field. i have every paper there is from everyone and everywhere, because one doctor always wants to know something. i was going to report the dr i have now but decided i need to concentrate on getting this taken care of as it is consumeing my life and trying to fight made me more in pain, i have all the papers from medicare, state board of california all of them and one day would concetrate on that then go back to finding help for the pain and it became too much i actually atrarting a suit against the original doctor bit when medicare told me they would just reprimand him that won't help me. and trying to find a lswyerto take my case is near impossible here in calif. i found a doctor in internet in las gatos, wondered if you wanted to look him up for info. his name is dr.
pup676722 Oct 2011
Dear sppisces... it is not uncommon to have adhesions (scar tissue) after sugery. Every time your abdomen is entered for a surgical procedure there is a chance of developing adhesions. You have had two surgeries in the same area in the abdominal cavity. Your body responds by developing these because it is basically saying "hey, you are not suppose to be here.". Adhesions depend on how a person scars. If you are of Mediterranean decent, olive complected, you, by nature, are going to have a greater propensity to scar aka adhesions. Some of these adhesions stick to the bowel and get rigid and can cause severe pain with many types of activities. It is not the fault of the original surgeon... not all the time. It is mainly, as I said how you scar and how many surgeries that you have had. A colonoscopy WILL NOT show adhesions... it is a procedure that looks inside the colon, not outside. Your adhesions are outside the colon.
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the surgery, called an ooparectomy was done thru my old casearn scar. i have mri's ct's iside xrays, colonoscoy you name it and vbeen to 5 urologists 3 surgeions and way too many dr visits, 1st 4 yrs orinal gyneco,logist surgeon had me going back and forth between him and our local rulogist all with no offer for pain. i myself went to 3 pain doctors. finally one dr admitted he believed my pain was and is do to adhesions, but are your ready suggest i see mental health for this. i am 64 yrs old and am very angry that i have to take so much pain medicine and cannot enjoy life. when i asked him how often this happened with this type of surgery i really did not get an answer, hiowever he said well at your age and not be active( how can i be) when every movement rips pain thru my abdomen. i said to i'm being punished because of my age, and he suggested i see someone. i have changed all my doctors.
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new primary keeps saying after each visit, she wished she'd never agreed to take me. after 4th time i stood up and told how rude she is and now she doesn't say it.
Hi Dave here. Thank you for your medical history.That really helps me allot. I am a surgical assistant for well over 30 years. (I am not a doctor) I too am 64. You should not have to live in that pain for so long. If I may ask where do you live? Small towns seem to have small doctors. After telling me they went through your old scar is very helpful. Just getting to your ovary they more than likely had to wade through old adhesion's from your C-Section. From all the test you have had rules out allot of really bad things going on. Not to say your pain is not bad. Your organs per say feel no pain. When pain comes from an inflamed organ, say the appendix, when it get's inflamed the pain actually comes from the lining of the inside of your abdomen, called the peritoneum. That's not true for all organs! Some have pain receptors, like your ureter that transports urine from the kidneys to the bladder.
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Some organs you can feel pain but only if they are diseased to the point if inflammation. Gallbladder pain is only felt when it becomes very distended and interacts with the peritoneum. That's why you can't feel cancer growing until there is inflammation involved. Their are cases where adhesion's cause parts of your bowel to block off, that is treated as an emergency. All of this is really mumbo-Jumbo and is not an answer for your pain. I do believe your pain is due to adhesion's, there is something pulling on your peritoneum because the pain is only there when you move. (Am I correct about that) I can't believe the way your doctor is treating you. In today's claimant due to malpractice suits, doctors are very careful or reluctant to operate without a clear cut diagnosis. At 64 an operation is not a benign thing, there could be some serious compilations develop. I wish I had a clear cut answer for you. Although chronic pain could be a reason to do an exploratory operation. Please keep me posted. Try a General Surgeon, not an OB. Some one will have to help you. I will do some research on your condition, I wish I could be of more help. Dave
thank you dave, when you mention is my pain only when i move, no it just grabs me and i have to stop doing what am doing, if at grocery store and reach for something it stabs pain in abdomen and people constantly ask are you ok no i say, then they want to know if a scooter would help, no because getting up and down causes pain. the pain pills take up to 2 hrs to work and last about 2 hrs. i am so angry at the way the doctors, pain doctors treat me. yes i live in a small town, california, but have been referred to u,c, stanford near san francisco, where i saw a urologist, and a surgeon who both agreed on the diagnosis of scar tissue, but said they did not recommend surgery and also i have been to u,c, dais sacramento saw urologist, pain management, and 0b-gyn who agree but offered only pain med. and as far as my age, he had no problem doung surgery 5 yrs ago i was 58.
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i did not experience any of this with the casearn, so i get really worried that something else is wrong, left something in there maybe? this tuesday against my better judgement i am seeing the doctor who did the surgery to plead with jim to remove these adhesions, if he won't i don't know what to do. these medicines scare me. with each new thing i read, i get scared. read somewhere where methadone caused a black out while driving, now i am scared to drive. i take methodone 3xs day , i between that norco 4 xs, and just last week given fentanyl patch, with all that i only get 2hrs of non free pain. because it aches with pain when, sleeping, my gasterontoligost said it could not be ibs as the original doctor kept saying, sorry iam tired of typing.