... fatigue. Now, the start of the third day, my stomach is burning, as well as my urinary tract worse than ever before even while not urinating. Has this happened to anyone else?
After taking elmiron for two days, my symptoms are worse. I had rapid heartbeat the first day, and?
- Posted:
- 16 Mar 2011 by LJAY
- Topics:
- elmiron, interstitial cystitis, fatigue, burning
Details:
Answers (4)
lyndajd16 Mar 2011
If you have just started Elmiron you will not see the benefits for several weeks. Rapid heartbeat for me was checked by a cardiologist who said were caused by the other drug for bladder Tolterodine. I take a beta blocker to slow it down coz I can't stop the Tolterodine. If you have Interstitial Cystitis then it is very unpredictable and anything and everything could cause a number of different types of flare ups - that is what is so depressing about the disease I'm afraid. I have excess acid which I take Omeporazole for however I put that down to my being stressed a lot. Do you follow the IC diet and avoid all the foods/drinks you should - I follow it religiously and can confirm I am much better and have long periods now where I am comfortable. Good Luck
billnterrac17 Mar 2011
I have been taking Elmiron for about a year (maybe a little less) and I don't recall having a rapid heart beat. My pulse is normally 90 or so anyway, so I am not sure I would notice that unless it really kicked it up. It is possible that I was fatigued. I take 1 capsule 3 times a day to break up the side effects and to give round-the-clock coverage. It does take time for it to make a difference, and I remember it being about 6 weeks before I was feeling like there was less twitching and convulsing in my bladder. I have been taking Nexium at its maximum dose for several years, so it would have to really make a huge difference in my situation to notice additional stomach acid.
19 Mar 2011
it is horrible this interstitial cystits..i cannot sleep at night because of it, i cannot walk properly,bend, stand longer than 15 minutes... the medicines no longer work for me... elmiron when it is installed into the bladder is the only serious relief i get for about 2-3 hours only, thats it... i continue to take it daily because it does help with the bladder spasms some. but when the pain comes it is herendous... the installations is the best way to go as long as you can... along with the other bladder medications... i wish you well..any person dealing with this illness.. its driving me insane... really the level of pain is really bad... elmiron will take some time honey, but get the other meds to go with it to help you... endure it all... god be with you LJAY from vtech10
3 May 2011
I've never experienced the rapid heartbeat, but even after 1 year on elmiron I have constant pain and the burning you talk about. I also take cymbalta 60mg and 50mg hydroxyzine (allery med) at night.
I have hydrocodone and lorazapam for pain but the hydro doesn't work and the lorazapam helps some if I take 3-4mg.
Talk with your doctor ASAP as there are many side effects with elmron as with every drug.
Hope you feel better soon! Living in constant pain is sooo difficult!
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Similar questions
I have Interstitial cystitis. I have tried Elmiron, Clorpactin instillations. Urocyst installations?
... Bladder distention & have now started rimso-50 instillations. I am to have this every 2 weeks but was under the impression that weekly would ...
1 answer • 19 Nov 2010 • 
Did anyone find that no matter how much they exercised, they couldnt lose wight while on Elmiron?
3 answers • 4 Dec 2010 • 1 star
Is Elavil cheaper than Elmiron?
I take Elmiron for Interstitial Cystitis and Lexapro for depression. The Elmiron is $230 for a 90-day supply and that's only 2 a day. I did ...
1 answer • 26 May 2011 • 1 star
When and why was Elmiron (pentosan polysulfate) discontinued?
I was told by a pharmacist that the production of Elmiron was discontinued. Is that true, and if so, is there a suggested replacement for treatment ...
1 answer • 9 Jun 2011 • 1 star
I'm having a hard time finding a drugstore in my area that I can get Elmiron.Can someone help?
Rite Aid says they cant get Elmiron and they dont know why can you tell me what drugstore still carries it.
2 answers • 18 Jun 2011 • 1 star