I am a 27 yr. old female that has Chronic Pancreatitis and IBS. I have never had a drink in my life. I know that having this disease makes you lose weight but I have gained around 30 lbs but it looks like swelling, suring a flare up I could really make people believe that I am pregnant..I dont know if that is from my ibs or what??I stay in severe pain I am perscribed opana 30 2xs and endocet 10 mg 5xs while waittong on a pain pump. The opana was doing great for me until they changed the format and now my body cannot break down the pills I just end up throwing them up..I am getting ready to go in for a test to check my gallblader, liver, and small intestons for cancer and just to see how they all are working. I have lost my menstral cycle and right now just need someone to read my story and maybe tell me a different type of pain medication, why I am gaining weight, and just anything that could be helpful..My creon works when it wants even though I have to take 5 before every meal, I am on a very strict diet, nothing that I shouldnt eat. I feel like a complete burden to my mother and son they take such good care of me but they shouldnt have too and on days my depression is to the extreme to where I dont want to be here anymore…. Can u please help, I dont know how much more I can handle!!!
27 Nov 2012
Were you able to get your answers from drs of what you had because I have the exact same thing that you have? Still looking for answers and why I have no menstrual cycle at all on top of having IBS and CHronic pancreatitis, let me know what you have been able to find out.
9 Jun 2012
I am so sorry to hear about you joining our club. It sounds to me like you might have a massive pseudocyst forming. When I had my big attack, I collapsed a lung and had nearly died. What happened after was a massive pseudocyst. It was low and missed in the scans because it was so low in the abdomen. That could be the cause of the weight gain and large size. I looked pregnant (I'm a male). They managed to get a gallon of enzymes out of my body. Your doctors need to know that the pain medications isn't working. I take morphine and oxycodone. It works most of the time, sometimes it has no effect. Sometimes pancreatitis just happens. I never was a heavy drinker and my cause was high triglyceriedes. Don't feel funny about asking for better pain medications there are many. The reason a person experiences pain is to warn them something is wrong. Guess what? You already know you have a problem. No need to suffer.
If your doctor wont give you better pain medications see someone else. The standard treatment for pancreatitis is PAIN control and lots of fluids. I'm not sure where you live, but if live near Connecticut I can point you in some areas. joninct 'at' yahoo.com if you need some one to talk too.
25 Sep 2013
I have been living with chronic pancreatitis since 1995. Having a cyst removed in Dec. of that year.The pain has been byond bearable at times.
I have had countless stays in the hospitals with NPO and pain killers.
I have been a diabetic over the last 5 years... and just have gotten on some GI meds that have helped with IBS... Dexilant for a acid blocker and Zenpep as a enzyme to break down food... this has helped for having a half way normal stool... most of the time... I went two years with oily red/orange stools before starting this medication... Yes im on pain meds also... A recent Scope from the GI doctor has helped also...
Good luck to you...
25 Sep 2013
I also suffer from chronic pancreatitis and pancreatic divisum... my GI doc also has me on creon... my weight is the opposite and don't no why, everyone tells me they lose weight not me, I am 172..norm is 150... I also look like I could pass for 7 mths pregnant and doc never explains why, but I will be asking him on my fu in Nov..he did a pancreatic cancer blood test forget what it is called..and I need to find out results... I had one ERCP done to put in a stent..it was suppose to help with pain..bs..then they tried later to put a bigger stent in, but they couldn't due to to much scar tissue..I am very afraid for when I get the attacks/pain it feels like it is attacking every organ..meaning my liver/kidneys hurt and pain shoots up 2 my throat..they keep recommending surgery, but I want to the surgeon and didn't like what he told me so never went back... I don't no a whole lot regarding different pain meds... but just wanted to let u no I am behind u and u r not alone..but on a better there are alot on this site that do no a hell of alot about pain meds for there r tons of people on here with severe chronic pain and I am sure they will be adding there advice soon..hang in there and come back for support..also let us no how u make out with your test..angel1662
22 Aug 2013
Ive had chronic pancreantitis for 4 years now. I don't have any answers for you, just wanted to say hang in there and keep trying! I am dealing with the same issues you are and just know your not alone and there is support out there. I get down some then I remember those who love me and how important I am to them, just as they are to me. You have a son and mum who oviously love you. So once again hang in there and keep trying.good luck and take care.
10 Jun 2012
Hi Queen. So sorry to hear all the trouble that you have had! First and foremost, don't ever think that you are a burden to your mother or son! They love you more than life, and want nothing but you to feel the best that you possibly can!! I know, I'm a mother with children who were young when I got hurt, and all my mother wanted to do was soothe me along with my children... to this day, 17 years later, my children STILL protect me and want to take care of me. So don't you EVER feel like a burden. I'm also talking as a mother now of older children, and I would do ANYTHING (even in the chronic pain that I still suffer from) to help them too!!
Secondly, I KNOW how bad pancreatitis is, as I've also had it three times for no reason also. And the tests are very scarey when they can't explain it away for normal reasons. You must be quite frightened on top of everything else. What a heavy burden you carry on yourself. Please, I speak from experience, you have got to give yourself a break. You are not bad because the Opana formula was changed, and you have to tell the doctor. I'm willing to bet that you are not the first person to tell this to the doctor! When they changed the OxyContin formula, many, many people, including me had to change medicines, because it made us sick, and it wasn't being absorbed. I have been on this site for many years, and I have NEVER heard of anyone's doctor who didn't change their meds because of that.
Call your PM doctor first thing on Monday, and tell them what's happening. Trust me,your doctor will not be cuel, you have a legitimate reason for being in pain. Your doctor will find an acceptable substitute that will work. They can't help you if you don't speak up!
Best of luck to you! Keep thinking positive!
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