... about 9-10 months ago. I have been in pain for the last two years, but didnt wanna sound like a Baby to my Dr. Finally went in and this is what they said I had. I have been on Tramadol, Cymbalta, Gabapentin, Cyclobenziprein. Sorry for the spelling, but you get it. Nothing has really worked. My doctor keeps telling me hang in there, ya well It's getting old and I need here to do something. I'm a pretty tough girl and I can't even hold back the tears it hurt's so bad. Im always craby, can't sleep and I am missing way to much work. What works for you? How do I get through to my doctor? Im a mom of two kids and can't really do much with them because of the pain... HELP
Fibromyalgia - HELP... Im in so much pain I just can't take it anymore. I was diagnosed with Fibro.?
Question posted by em4582 on 18 Feb 2011
Last updated on 29 September 2022 by MedLabTech
Added 27 Feb 2011:
Well thank got my doc is sending me to a pain management. Well is that a good thing or what do they do? Sorry I'm so new to thhis.... it worry me it took a long time for a lot of you to find stuff that works? Also I am very into yoga and my doc says it should really help well if that's true why hasn't it helped? It's almost as if she thinks I'm lying...ugh
44 Answers
MedLabTech
29 Sep 2022
I was diagnosed with fibromyalgia 20 years ago but suffered with it much longer just couldn’t get a diagnosis until I went to a rheumatologist. I too have tried everything recommended for fibromyalgia. Only 2 of them have worked for me: amitriptyline and tramadol hcl er.
Bobcatba
28 Sep 2022
Pain management did absolutely nothing for me. Swim therapy. The exercise therapies make everything worse. Are you going to a specialist. You need to go with one that deals with nerve just disorders only. How about you
Chett
27 Sep 2022
If I was you I'd go to a fibromyalgia doctor which is a rheumatologist. They understand our condition and will test you to verify that is what you have along with other conditions that have similar symptoms like Lime disease & Lupus . When my results came back and I didn't have Lupus or Lime disease I thought I won the lottery!!! Little did I know there is no cure for fibromyalgia & I was suffering very bad all day every day! But those other conditions aren't fun either. Back to the doctor:They should be the best doctor who knows what you are suffering with & how to treat you. It may take a few visits to get you feeling better. Make sure to be open with the doctor so he/she will know what to adjust or change. Hope this helps!!!
Kennethdaly
21 Feb 2022
I have the same as you and my doctor didn't believe me at first but I kept going back and telling over and over that the pain is very real and I said I wish you can spend just a few hours with me then you will see ,so just keep at your doctor until she\ he listens, mine finally did and now my pain is under control , you can also ask him about belbuca for pain ,it don't mess you up like Norco or the others but does great for pain at least for me it does
Bakequery
5 Jan 2022
I’m 67. I was diagnosed with fibro a long time ago. At the time I’d never even heard of it.
I’ve found that pain killers actually made my pain worse. I stopped taking all pain relievers and my pain actually decreased. When you take pain relievers initially they dull pain but as the dosage fades the pain comes back worse then it was to begin with.
There are studies proving this. So, many of you would actually be in less pain if you went off pain relievers and tried to manage the pain differently.
What works best for me is the following:
- 25 minute hot baths with 2 cups of Epsom salts 3X a week
- massages at least once a month (twice is better)
- seeing a Chiropractor 1x a week
- limiting my consumption of foods known to cause inflammation like night shades, grains, sugar, etc
- yoga at least twice a week
- weight lifting
- taking or eating foods high in Omega 3 fatty acids which reduce inflammation
- limiting consumption of foods high in Omega 6 fatty acids like seeds, seed oils, and dried beans, which increase inflammation
- Taking 400 mg of magnesium and 500 mg of curcumin 2 hours before bed. Curcumin is a derivative of turmeric . I take one with fenugreek as it needs a catalyst to work. Pepper is the best but I’m allergic to pepper.
- I also take 500 mg of curcumin or a product called Inflammatone in the morning.
- using edible marijuana 1-2 hours before bed to sleep. I live in PA and need a medical marijuana card. I buy indica flowers and make canna butter which I use to make fudge. One small piece 1-2 hours before bed will give me at least 5-6 hours of blessed sleep. Sleep is crucial. Edibles stay with you longer than vaping does.
- lose weight
For me pharmaceuticals came with too many side effects, the worst being what it did to my stomach. When your stomach and gut get damaged you become susceptible to even more autoimmune diseases.
I much prefer taking the time to invest in my health instead of living with the hell of what many of you are going through with pain relievers.
Movement is key. You CAN manage this condition with wise food choices and supplements. Also, make sure you get allergy tested. (I found out I am allergic to wheat.) Eliminate known allergens from your diet and environment.
Good luck to you.
Roseforest
3 Dec 2019
Please be careful and carefully screen pain management teams. They like to do a lot of injecting. The team I went to did not do an assessment of all that was going on with me and injected me until I got Leary of so many injections. They were however timely spaced, BUT the pain remains! I was diagnosed with RA, which is now in remission. However osteoarthritis remains in my back, coupled with bursitis. I'm so sorry to say, I've battled these demons for years. THE PAIN REMAINS!
You may able to snatch a few moments with no pain with tramadol and Tylenol. Please try to enjoy those pain free moments, they are few.
Chett
27 Sep 2022
I couldn't agree more about the pain doctors who just loosely gave out serious meds w/o really knowing ally conditions. The injections where the worst! I told them over & over that my lower back can't be touched but they never listened! A fewer minutes later I was asked to bend over the bed and the doctor proceeded to touch my back trying to find the largest trigger point then w/o any notice a needle was stuck in me. I would be shaking so bad and pleading for him to stop but he just said hold on only 4 more to go. This happened about 3-4 other visits because I thought these injections where going to take my severe pain away but I finally said I'm not feeling better! I was getting so relief for a few days but it was very limited. I asked what was he injecting me with ,& why and he said it was just lidocaine which only stayed in the muscle or bloodstream for 72 hours for most people.
The trauma that the visits put me through or much more worse on me because any type of trauma to your body can make your fibromyalgia way worse and in fact that's what he was doing. I also found out that he was filling my insurance a lot of money for these injections so even when I cried I own pain and said to stop he didn't because of a little bit more money in his bank account. I wasn't a person I was an object to get him where he wanted to be. People that were in his waiting room looked like they walked out of rehab and came there they were shaking and fidgeting and it just wasn't my normal scene little did I know he sold the medication directly to these people through a side door and it never went through any insurance so I can only assume that these people were taking some and selling the rest because why would you pay $800 for medication that your insurance would cover for $12?! It just didn't seem right to me and I changed doctors unfortunately a little bit too late but I was fortunate enough to find a doctor that helped me out and I am happy where I'm at right now.
1975zina
1 Dec 2019
Gabapentin/neurontin has varying dosage levels. Perhaps increasing your dosage of gabapentin (unless you maxed out on the highest
dose available without relief) can help. Or try Lyrica, it's also prescribed for fibromyalgia. Avoid opioids. Hope this helps.
Chrissya45
20 July 2018
Hi I’ve got severe fibro some days am ok but a lot of the time I’m in a lot pain n very tired n emotional u need to go back to the doctor and c pain management get the doctors appointment to arrange dif meds I’m still in lot pain in back n legs but not my neck starting to hurt more help
Dsdaizy2
17 Feb 2018
Try Savella I have fibro it seems to work great and I don't have any side effects, is new and specifically for fibro. They have a co pay card too.
ccgunn293
19 Sep 2022
I’m new to Savella and not sure whether it’s helping or not. I have been on it for about 4 months now and trying to allow side effects to subside. I have been experiencing like my head is on fire. It has also increased my heart rate. Mine never goes below 80 resting when sleeping and during the day varies up to 140 (heart rate) Blood pressure also elevated while at work! My normal is use 135/79 but goes above 145-90 when working. Before I was diagnosed taking FM/A blood test. Showed 90% positive for fibro. I had been on Prozac 60 mg and Wellbutrin XL 300 for many years. So this is all new to me and I work a very high stressed job working up to 10-12 hr days. Completely wipes me out and when I’m home, I literally feel like I want to do nothing. I realize that is worst thing possible. I bought Softtub for pain management and Lifepro vibration platform and it definitely helps with stiffness.
I just don’t have a routine and I wished I could afford massages deep tissue more often. I use to go monthly and that helped with my neck issues. I feel like I can’t relax stay so tight and in pain. I also have osteoarthritis so have problem diffracting the two . I did find out I also had sleep apnea and trying to adjust to sleeping with mask! I find it hard to eat right, exercise, and work full time
whatkaren
18 April 2017
I also suffer from Fibromyalgia, along with arthritis. So many people do not understand the pain. I have had physicians also look at me like I was crazy, or making it up. At nights it is hard to sleep. Mornings are rough as well. It's daily discomfort, but the flair ups are awful. I was given naproxen and Muscle relaxer. It helps a little, but there has got to be something more that can be done about this. It seems as if this pain is the reason I gain weight. Because at times it is so uncomfortable that I cannot do anything. I hope all of you get the help that you need with your pain. Best wishes
Wrinkled
1 Sep 2017
You and I are are walking the same road. If fate finds an answer for you, please post it. What a gift it would be.
linseif
12 Aug 2013
as far as certain pain is concerned i couldn't sleep due to intense leg pain... i was scared to go to bed it hurt so bad... my dr. told me to take magnesium and it has been a miricle... take it alone at bedtime about 400 mg... it is a natural muscle relaxant that many many people are lacking in their systom... i have told friends and they cannot believe it!!! i hope it helps
Kishan Vasekar
11 June 2013
I really feel sorry and will offer my help thru following suggestions.I had serious heart attack and partial paralysis 2 years back.I have recovered miraculously using following techniques for pain relief.
1.Take second opinion and go for minimum medicines.
2.Start Praying and Meditation -Daily 20 minutes
3.Go for Acupressure, Massage and well guided Physiotherapy.
4.Auto suggestion and Mantra chanting (GODs name which you have faith
for 24 hrs is the best way.Try it pl and i am speaking from experience.
5.Drink Warm water , Try for Veg diet , and improve digestion and overall
metabolism and health .
6.Go for detoxification program and alternate medicine eg homoeopathy
7.right kind of YOGA is the Best Way to overcome pain.
Total Life style change, Spiritual help can and WILL HELP you. God Bless
srgryclown
11 June 2013
Just an FYI. A correlation has been found between hyper mobility syndrome and widespread body and joint pain. I have not been dx with this condition but after reading about it i believe this may be the root of some of my FM issues. People with this condition are advised not to stretch or do certain types of yoga and to avoid high impact activity. I found info on Medline.
ladykeno
19 April 2013
I'm reading all the answers about going to a pain clinic, and or seeing a Rheumatologist. About eight years ago the Rheumatologist I had at the time referred me to a pain clinic. I had already been diagnosed with Fibromyalgia a couple of years earlier in another state. The doctor at the pain clinic did about a 60 second exam and then told me I was only depressed and that he would recommend a head doctor. Needless to say I left there in tears insulted and hurt in both body and soul. The Rheumatologist I've had for several years just recently told me to let my family doctor take over my Tramadol prescriptions because she wanted nothing to do with prescribing anything stronger to help with the pain. Even with the information being gathered about this painful disease there is still much disbelief and ignorance concerning it with many doctors still. It's very sad. It's about time all of them get on board and educate themselves in order to alleviate the pain and suffering as much as possible for those who live with it every day of their lives.
ladykeno
19 April 2013
I'm not sure what to suggest as I too have been on Tramadol for many years now. Some times it does alright and some times very little. Doctors won't hardly prescribe any narcotic pain medication anymore which is a travesty for those who live with chronic and terrible pain. My family doctor did prescribe trazodone to help me sleep at night. Again there are some nights it works and some nights it doesn't, but it might work to help you sleep as everyone is different in how medications work for them.
sara12345
19 April 2013
If you can stay on the Trazodone steadily, it is likely to treat your fibromyalgia pain. I reduced my Trazodone in half more than a year ago and my fibromyalgia got sooo much worse. It then took a couple months to get back the relief that I have gotten from taking Trazodone. I used to be practically crippled by fibro. Couldn't get dressed without a lot of pain. Now I'm mostly pain free from the fibro, or relative to my intense migraine pain and stroke pain. So if you can, keep taking the Trazodone every night and see what happens with your pain.
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cymbalta, pain, fibromyalgia, tramadol
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